Friday, April 18, 2014

Poop and Hashimoto Thyroiditis

I have so much to share.......

FIRST...I just got a check from a family in Colorado for $319 for Sonya's surgery!!!!!!!! That brings the total so far to $662!  So we are over my original goal but since the month is still young....Our NEW goal is $1000 for Sonya's surgery!!!!   I do know of several folks who have given on line to them also and thank you so much ( so actually we are at about $720 but I want to be able to really bless them so we are not counting that towards our goal, we are going to go OVER the goal for this little girl!)  I'm thrilled to be a part of this, what a blessing to be able to bless someone else. 

So you can give here....  http://www.gofundme.com/78kap0
or mail a check to
Grace Church
7060 Berry Road
Zephyrhills Fl
33540

When I opened the sweet card and read it, I just cried!  Thank you my friends in CO! 
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Yesterday I did not vote for us!  I was so tired by the time I got home....
http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
today's answer is TRUE


Well yesterday went great.  Sam had his swallow study first and he didn't have any reflux, but he did have some residue left over after he swallows, kind of caught in his upper throat.  Basically all he needs to do is eat slow and drink with his meal.  We will continue to use small straws so he doesn't take in too much liquid at once.

Sarah's swallow study was just about the same, she also keeps a little residue in her upper throat.  The tech also evaluated her for feeding therapy and of course recommended it.  She feels Sarah is now moving food around in her mouth and will learn to chew....ONE DAY!  She made me feel good and told me to keep gently introducing things to Sarah and that we were on the right track.  When Sarah first came home, she just swallowed, now she likes to move food around in her mouth while she is eating and she lick her lips which is like a big good sign:)   I had just started giving her popsicles and she is biting them off which is a great start for biting food!!!

We did get some surprising news.  The doctor had ordered a stomach xray and found (as she had suspected) that Sarah has a bowel blockage of poop.  She poops all the time and it is liquid.  We thought her bugs were back but the doc felt like she had an obstruction and was pooping around it.  She was right.  BUT Sarah is now on a clear liquid diet and is taking Mirelax every hour.....we have a poop house!  Already we have gotten out our steam cleaner.....I won't tell you what we had to clean but if you visit my house, you might want to be careful where you sit!  LOL

Sarah has been a trouper, I thought she would cry just getting liquids like chicken broth and jello but she is so sweet.  She is as happy as always.  I had even called the doctor's office this morning and asked what to do if she got really upset since food is important to Sarah (since she was so malnourished)  I didn't know if I could handle her being upset but she has been fine and we are offering her stuff all the time.  She eats pureed foods but they are very hearty stews, soups etc....not thin broth!

WELL.....I have BIG news.....
We went this morning to the hospital for me to have the thyroid biopsy.   The tech first did an ultrasound then the doctor came in to talk to me.  He said he did not think the things in my thyroid is actually a nodular but rather my own thyroid .  He said my thyroid is very misshapen and has a different look than most.  I told him the other doctor had said I had a disease that would cause my thyroid to quit working evidently.  THEN he said that explains everything!  He ordered another very in depth ultrasound and said I had every indication of Hashimoto Thyroiditis where basically my auto immune system is killing my thyroid and one day my thyroid will not work anymore. 

SO I did NOT have to have the needle biopsy.  The doctor said there was nothing that stuck out to him as cancer, I do have lumps all up in the thyroid but not those kinds of lumps.  He says he has seen this misdiagnosed before.   So now I need to find a really good endocrinologist for myself.   The ODD thing is my hormone levels are mainly been normal! 

I'm thankful that it doesn't seem to be cancer!  This diagnosis may explain all the pain & stiffness I have.  I push through it most of the time but I'm quite sore all over-especially my neck/shoulders area all the time.   Some days I'm sorer than others but it is always there.  I had just decided it was part of aging and carrying my little ones around. 

Well hope you all have a great weekend!

**** Update on Luke
he is off the vent and starting to respond to his family!  Please continue to pray for him!!!!!!!!

Wednesday, April 16, 2014

St Pete

 
Thinking of Sonya today as we take Sarah and Sam to  All Children's Hospital for some tests.  Wish they could access health care for Sonya so easily.  Please give to enable her to have surgery!!!!
or give through Grace Church
7060 Berry Road
Zephyrhills Fl 33540
 
 
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We took all three little ones for blood work this morning....it was not easy!   Makes me realize how important it is for us to get a wheelchair accessible van. 
answer is  Quality Assurance Program
 
 
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I do have to thank a lady named Marilyn at the lab who was EXCELLANT!  She did all three of them, and no one cried!!!!!!   They all have to have bloodwork, vials of blood.  I couldn't believe how good this lady was at getting the vein the first time!  Wow!   I had been dreading it for them, not wanting to have 3 crying little ones but it was so easy!  This lady is amazing!
 
 
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Sky Line of Tampa FL
 
 
 
Driving to St Petersburg FL across the Howard Franklin Bridge 
 
 

 
  Sarah and Sam had a big dinner and then a nice warm bath....
they are CRASHED out in our room
 
she does look a bit chubby here:)   LOVE that she is not my skinny girl anymore!
 
 

 
Steve called dibs on Sam so I have to sleep with my crazy girl who moves around all the time!

 
I can't imagine HOW Sarah's hair will look tomorrow LOL!
 
 
this picture below is taken last night
there was an owl on the church steeple!
 
 
 
 
 
today there was a circle around the sun here in Florida.
it was explained that there were crystal/ice around the sun or it was reflecting ...LOL  I don't remember exactly but it was pretty!

 
 

 
 
Thankful for a safe trip here.  Up early tomorrow for Sam's 8 am swallow study and then Sarah has one at 10:30.  The doctor wants to see if Sam is having reflux still.  And she really wants to see how Miss Sarah swallows.  Sarah will also have a feeding evaluation to check on how she eats and if she can every have the ability to really chew her food.  We still puree everything for her.  I don't mind doing it for her, but it would be best for her, to do it herself. 
 
It's been a long day, up early for the blood work, yard work at the church (thanks Gabe for all your help!) 1.5 hour drive to St Pete (With STEVE driving for the first time over here- over long bridges, construction and rush hour traffic- yeah I need an extra anxiety pill!)    We did drive around this area some, what a cute area, old houses redone, found a good place to eat a big supper and now I have sleeping little ones.  Tomorrow we're up early and then have to drive home......
 
 
PLEASE pray for Ukraine.  We think of that country and of all the ones we love who are there and we just pray that God protects them and protects Ukraine. 
 
Please continue to pray for Luke (car accident/coma) and Katie (attempted suicide)
 
Thank you!!!!
 
 

 

 

Tuesday, April 15, 2014

Prayer Requests

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
today's answer is turn and twist

We had $88 to come in yesterday all the way from Washington State!!  Thank you, we are now up to $343for Sonya's surgery!!!!!   I KNOW we will reach the $600 goal!  If you want to give directly through her site go to.....  http://www.gofundme.com/78kap0   to give on her site or through the church at
Grace Church
7060 Berry Road
Zephyrhills Fl 33540



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I have a very special prayer request......
An "internet" friend of mine's son had a terrible car accident and is in a coma.  My friend works in a county that is hostile to Christians.  They take care of orphans and help spread the love of Christ.  The parents are now at their son's bedside, will you please pray that God will have mercy on this young man (he is a believer) and heal him, bring him out of the coma with no lasting effects of it!  

My heart is heavy for many needs, some that can't be shared on here, it seems so many people are going through hard times right now!

Ukraine remains  in the news.....  There is violence in  Donetsk (Sarah's hometown) and in Makiyivka (Selah's home town) Can you imagine if this was 2 years ago (we were in Ukraine doing their adoption)! I'm so sad and heartsick.....it's surreal to see the places you've been, where your children were born, to be in the headlines like this.

http://www.kyivpost.com/content/ukraine/armed-pro-russian-separatists-lay-siege-to-donetsk-oblast-as-ukrainian-government-struggles-to-combat-343288.html


Please pray for Ukraine....I feel the whole world is at risk.

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Tomorrow all three of the little ones have to have blood draws for various tests....NOT looking forward to that at all!  I hope I don't get crazy on anyone.  I only give them one chance to get it!


I keep saying I'm going to really blog but I've been so busy lately.  My goal is to spend most of my time with the family at night and cook dinner nightly.  If I don't blog early, I just can't get to it! 

Sunday, April 13, 2014

Upper Hillsborough River Basin

 
the answer is TRUE for today Sunday!
 
 Give to Sonya's surgery!
We had $20 come in today through the church which brings the total up to $255
And someone messaged me that they gave through her site- $35!  Woohoo!!!
 http://www.gofundme.com/78kap0   to give on her site or through the church at
Grace Church
7060 Berry Road
Zephyrhills Fl 33540
 
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So we went back to the woods today after church (which was great) and lunch (which was great too)
Today I took a camera and we tried a better trail!  Lo & behold, we found a much easier way to walk in.  It's still a good 45 minute walk to the river, but it's on a better trail NOT surrounded by palmetto bushes!  This is real woods, and I'm careful of snakes.  I'd hate for one of us to get bit back in there, it would take so long to get help.  Jon carries a staff that a friend of ours had made for him.  Back in the deep woods, I'm glad he has it with him.  I actually was hoping he'd take a gun with him but since it's a wildlife management area, that only allows hunting certain times of the year, we wouldn't want to get in trouble for having a gun.  We're going to look into that, a pistol  might be ok, and a rifle not ok.   It can get spooky out there sometimes!
 
 Well I hope the pictures load up right, I can't see them at all  Just blue frames.  I'll come back in tomorrow and edit them and put an explanation to some of them.  It was fun, very hot, lots of mosquitoes who just loved me but good to get out and exercise. 
 
 
 

















 
 



 
 









Saturday, April 12, 2014

Walk in the Woods

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
Today's answer is A & B


I'm going to keep reminding everyone to give to Sonya~  http://www.gofundme.com/78kap0   to give on her site or through the church at
Grace Church
7060 Berry Road
Zephyrhills Fl 33540

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Whew!  This morning I went with Jon to the woods.  He  wanted to show me where the River is risen and is flowing under the raised train tracks....just a "little "walk....ONE hour later.....we got to the river and it was beautiful.  So sorry I didn't  take my camera, so very sorry because I will have to go back to take pictures.  What a walk....then an hour out....sweat pouring down my face.   My aunt always told me NOT to walk through or near palmetto palms as rattle snakes like to be up in them....guess what we walked through?  Acres of palmetto palms!   I had worn jogging shorts so my legs were getting whipped.  He wears jeans and a long sleeved shirt (I do not see how he stands it) 

Anyhow for a old man, 50 years old, he can hustle through the woods.  I'm already hurting LOL.  It was like walking on beach sand most of the time and you know how wearing that is.  But we got some good exercise!

Then I had to go to the store and since I was in town, I had a pedicure, I'm almost certain the ladies were talking about my dirty feet!  LOL  But I got nice red toe nails now:)  I almost fell asleep during the pedicure I was so tired.

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Have a good weekend!

Friday, April 11, 2014

Red Headed Woodpecker

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
Today's answer is TRUE

Do you think we could hit 10,000 by Sunday????????

Please vote and share....THANK YOU SO MUCH!!!!!!

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Let's keep giving to Sonya!   http://www.gofundme.com/78kap0   to give on her site or through the church at
Grace Church
7060 Berry Road
Zephyrhills Fl 33540

We have had $235 come in thus far......  our goal is at least $600 this month!  I know we can do it, every penny counts.  If you give on line, would you just drop me a line?  I'd love to tally up how much we give to them.  I want to see them fully funded!

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Well another field trip day for me:)  My roommate from my college days has bought a house down here ...WOOHOO!  So today they came over and we went out to eat (of course) and then to the Hillsborough River State Park which is one of the prettiest places on earth.  I was so happy that they got to see a REAL FLORIDA Gator sunning himself on a rock, we saw a ton of lizards, squirrels, a turtle and a Red Headed Woodpecker.  We were walking on the boardwalk and he was working on a fallen tree limb below us.  It was something to watch him knock the bark off the tree and get the bugs inside.  I've never seen anything like that before.  He was so loud, it sounded like someone was trying to knock a tree down with a hammer. 








Oh joy....my pictures aren't wanting to load so I can see them, I will trust they will load after I save this blog, for some reason that works LOL

Well hope you all have a great weekend! 

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Our nurse asked me to go cut some aloe off my plant.  She put in on Selah's lips/face area where she had bumps and they are GONE!  In the space of a few hours!!!!    so Aloe is a wonder drug!  I'm going to plant some more!

Thursday, April 10, 2014

Voting Promblems

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/

the answer today is TRUE

If you are having problems or have had problems voting can you please email
Cheryl@evoked.com  OR you can call her at 407-302-4416    I called the van company this morning and almost felt like they thought I was lying about people having issues voting.  They then directed me to this company that is running the contest.  I think they need to hear of all the problems you all have had in this voting process.  Thank you for taking the extra time to contact them on our behalf!

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Let's keep giving to Sonya!   http://www.gofundme.com/78kap0   to give on her site or through the church at
Grace Church
7060 Berry Road
Zephyrhills Fl 33540
If you haven't taken the time to read their story, please do.  I just love this sweet family!

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This week has been a play week for me!  We've got to spend lots of time with various friends which has been great.  Of course I'm feeling overwhelmed today, with lots of things coming up, paperwork to do, laundry, it's a never ending cycle!  How did I forget to take pictures yesterday??????   We spent the day with my college roommate and her daughter. The family is moving down, and we met up at their new home.  Then we all went out to eat with some friends.  I could slap myself for forgetting pictures LOL!

Selah has been ok, but has had some awful cold sores. She gets those every now and then.  Although she is back on her med to regulate her heart rate, she has times that her heart rate goes up more than we'd like.  But everything else is fine with her. 

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Don't know if I posted but my thyroid biopsy was cancelled due to their machines having issues.....  I really took that as a sign and rescheduled myself at a hospital.  So the biopsy is scheduled for next Friday and I'm just a bit freaked out now.....

Just got a lot of stuff going on in my life.  Lot of deadlines for various things, trying to make decisions for some future things....feeling overwhelmed and "in over my head"   Next fall will be a big change for us with Steve in college, trying to figure out some logistics.... Nothing working out like I'd like it to work out. 

So Life goes on......