Sunday, December 9, 2012

Day 35 Fish Oil Study

Jon stayed with Selah while I cleaned and repacked everything.  she had a fantastic day!  He worked with her with her new "nose" and she did terrific, he was able to keep it on for 25 minutes each time.  The nurse thought he could just leave it on while he was in the room but he went by what the speech therapist had said, so it wouldn't wear her out since it takes much more effort.  She seemed "more awake" today.  Jon thought it might be because of the smaller dosage of Valium as well as having to be more aware of her breathing.  He said she was moving her head at every sound and trying to figure out what was going on.  He also had her up in her chair for about 2 hours and worked with her on the side of the bed, sitting and holding her head up.  He worked her today!  Her arms stayed relaxed so that is a relief!

Tonight we went to the Genesee Country Village and had a Christmas tour of the village thanks to some friends!  It was interesting, especially the church.  The tour told the story of Christmas back in the 1840s...very interesting but very cold and rainy!  Made me thankful for the modern conveniences such as lights and heat!  LOL  When we got back to the main hall, Steve was afraid I was going to catch my butt on fire I was standing so close to the fireplace!  It took me an hour to warm up!

Tomorrow we get all our info about the transfer and say alot of good byes.....we are going to miss so many people.....   It stills seems unbelievable that we are actually leaving....  We thought we were so many different times but we were never ready before to leave.  Looking back it is obvious why we were supposed to stay, Selah couldn't have been in the Fish Oil Study if we had left and gone home.  We never wanted to leave and I think some staff thought that was odd but we just didn't have a peace, there was too much "up in the air" about Selah and we had no assurance that anywhere we could go, could do as much for her as they could here at Strongs!  Of course nothing worked out for us to leave and while it was frustrating not to have hospitals to work with us, we also were always a bit relieved when things didn't work out!  Our poor social worker here should get merit pay for all the work he has put into this transfer!  We are so thankful she is at a place neurologically that she is eligible for a rehab facility and not a hospital! 

Sorry this is short but we are having internet issues.....

So again I ask for prayer for this transfer and prayer for safety....and peace.... and no snow on Tuesday!!!!

9 comments:

  1. I'm sure you've already asked, but would you or Jon be allowed to fly with Selah? I'm sure your eldest could fill in as helpmate with the other little ones for the long drive.

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  2. I'm sure you've already asked, but would you or Jon be allowed to fly with Selah? I'm sure your eldest could fill in as helpmate with the other little ones for the long drive.

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  3. Thanx for ur post.. ya
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  4. Praying and praying for you! For encouragement, for ease of transition, for Selah's peace especially during the transition, for your whole family, for about fifty other things that come to mind as I imagine your family going through this newest big change.

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  5. Have you ever tried this out? A great exercise to add to your ab workouts! Here are some tips to help really feel this in your abs: - Initiate the movement by contracting your abs - Keep your abs "sucked in" the entire time - At the bottom of the rep, breathe out ALL the air in your lungs and contract your abs as hard as possible for 1-3 seconds.

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