Sunday, December 16, 2012
Day 42 Fish Oil Study
We went to Mandarin United Methodist this morning and was asked to share in their Sunday School class that has been such a blessing to us. It was really a blessing and we enjoyed being with everyone and felt surrounded by love & concern. Then we joined them for their Christmas Cantata and it was beautiful. It was a Celtic theme and Sam loved it! He enjoyed it so much, he was enthralled the whole time.
After lunch I went and stayed with Selah this afternoon. I took her out by myself for the first time and really enjoyed it. They have a small park on the campus of the rehab and we went there. I wasn't nervous at all with her by myself. The weather is beautiful and warm (so sorry to my northern friends!!) She did not have any therapy today so I did range of motion on all her limbs and was able to move her knees better than I ever have before. This is her 2nd day on the new drug and in my opinion she seemed more aware. One thing I noticed is, while I was talking to her nurse, Selah was looking away from me. I began to rub her arm and she turned her eyes and head towards me! I've never noticed her move quite like that when touched. She also seemed to move her head back and to alot more than usual. I am pretty realistic and try not to exaggerate anything but I really think I see a difference! Maybe tomorrow it will be clearer if she is responding as that is the 3rd day and the day when most of the responses start from this med.
She seems to be much better now that she is on meds for the infection she had. We're not seeing as much guck coming out of her trach. Hopefully she will be able to go back on the "speaking valve" tomorrow. She seemed like she was moving her mouth today both sides of her mouth. Sometimes we have just seen the muscles move on the right side but today I saw them move on both side and her tongue move but without having the speaking valve on, she can't make a noise.
I know several folks have asked me to explain about where Selah is in her coma. We had been told by our doctors in NY that she was in a level 3 or 4 coma based on the coma scale they use. Here the doctors have said she is in a persistent vegetative coma (which is what Terry Shiva was in) We had felt Selah had progressed beyond that stage. I think it is hard for people to really put her in a certain box because of where she was before the accident. So if I understand correctly, the doctors here ( or really the psychologist) feels she is out of the coma but in the PVS which is not a good thing.... who knows....
So please pray for us tomorrow as we work out more details for Selah. We are not happy with several things including the plan to discharge her on Christmas Day! We want her to be worked off the trach and we want to see much more therapy. Please pray for Selah for that this new med will make her more alert daily.
I had fun tonight at the church's Joy fellowship's Christmas party! It was good to get out and get to know my new friends better:)