Miss Selah did really good! She was evaluated from head to toe by the physical therapist. The PT was able to get full range of motion in her arms/elbows/hands and wrists. One shoulder was slightly tighter than the other. We woke Selah up and without even the benefit of being up and letting gravity help her knees to bend, the PT was easily able to bend her knees and get 40% range of motion. She also was able to get some range of motion in her ankles. If she had had the evaluation in the afternoon, we are sure her ROM would have been higher but that is higher than anyone has gotten since NY (I"m not even sure that they got that kind of ROM in NY. It will be interesting to read the report as I was in and out with all the little ones.
We had ordered a wheelchair but the company never sent it so we cancelled the order and will do one with the therapist's help so we can get exactly the one she needs. We are using a loaner one and it is not very comfy for her nor does it give her the right kind of head control.
Then it was off for another ambulance ride. Her nurse and I both went. We had the nicest EMTs again. We seem to get lucky with really sweet folks. When we got to the gastro's office we were told it would be over an hour wait! She was on a stretcher, then the EMTs weren't allowed to stay that long so we were sitting in a hall with her because we were afraid to go in the waiting room, afraid she'd get sick. The nurse and I both were getting a little ticked off, usually according to the nurse and the EMTs most doctors will take into account the child's situation and the the fact they are there on an ambulance... Finally we went in and I have to say we both liked the doctor. He had some great ideas and spent some time with us. We were thinking they were going to make us wait for a 5 minute appointment but it wasn't like that.
Selah has gained 13 pounds since the accident. That is alot of weight in less than 6 months. While we are glad she has had NO issues with her feeding....but she can't continue to gain at that pace! The doctor was able to give us some samples of a formula that is more plant based with veggies being a big part of it. He also is one of the few doctors who are all for the family blending their own food and giving it to the child. She'd have to have a much bigger gtube button as she is on the smallest one and that would involve a small surgery but it is probably something we'll do in the next few months. So we liked his innovative ideas alot and it was worth the wait. Next time tho' they will schedule us first thing or right after lunch so there won't be any waiting.
Over the years we've been so blessed to have special folks who worked with Sam. He had the best ever speech teacher that we all loved. I prayed that Selah would be surrounded by folks who just adored her like that and I have to say our 4 regular nurses do, especially the one who works most day shifts. She is so into Selah and wanting to meet her needs and help her to reach her full potential. It means so very much to us! You have no idea what a blessing this lady is! I thank God for her and for all of them!!
So a long day for all of us...
Then I came home and cooked a Mexican pot pie:) It was so good and easy!
a pound of meat ( I used low fat turkey- 1 gram of fat)
a can of Ro-tel tomatoes with chiles
package of Taco seasoning
brown the meat and add the seasoning and tomatoes, cook well
Line a casserole dish with the big pastry sheets (i used the pepperidge farms sheets or you can use a pie shell)
Put the cooked mixture on the sheet, sprinkle a handful of Mexican cheese on it and cover with the other pastry sheet ( or 2nd pie shell)
Cook on 400 degrees for 20-30 minutes or until light brown on top...
serve with Yellow rice and salsa and corn
You can put corn or black beans in the mix but some of my kids wouldn't eat that....
I served it with angel food cake ( from Publix lol) and fresh strawberries and felt like Martha Stewart!!!!
Very productive day! Even for Steve:)