I love to take care of her. It does bring me a sense of peace to meet her needs and love her in a tangible way. Through the past 7 months, I've had to share her care with so many others and even tho she needs alot of care, I'm happy to give that to her at night. I'm so glad we stopped having night nursing LOL Who'd ever thought I'd ask to lose night nursing after fighting so hard for it? But it is easy enough, even on the more challenging nights to take care of her and just be a family.
I love Selah so much, sometimes my heart just bursts inside of me. I HATE that the accident happened and changed our lives but I will always love and care for her. I think we are more committed to her than we were on the day we adopted her, if that makes any sense. We almost gave her the middle name of Jewel and now I really wished we had! She is like a jewel...before she was hidden away and no one knew about her. She wasn't one of the "poster kids" no one had her picture but God never forgot her. Now she is our daughter and we will always love and care for her. We promised to give her a family "no matter what" and now we have faced the "no matter what" and we are committed to loving her and taking care of her. We would have never ever chosen for this terrible accident to happen to her....but we will still give her a family and the best life possible. We will never stop praying for her nor will we ever stop trying to find ways to help her medically!!! I believe God gives doctors wisdom to treat people and just like with Sam there was ONE doctor who could help him....maybe there will be ONE doctor that can help Selah! I will never stop trying. We believe the fish oil has helped her and we are hopeful as we are right at the 4 month mark that after this month is done (with the casts) and we can back off the meds again that we will see some more cognitive and physical improvement.
I really want to look into HBOT therapy but it is expensive. We will see....right now I want to get her through this month. I need to do some paperwork and enroll her in some different programs and school (home bound) then I'm going to look in earnest at HBOT therapy. I'm pretty good at finding granst and things like that. I don't think either of our insurances would pay for it. I did fill out one grant already but haven't heard back from it....
Please continue to keep Selah in your prayers that she will heal quickly and tolerate the casts. Thank you!
http://kacirek.blogspot.com/2013/03/i-waited-long-time-going-deeper.html I want to leave you with this blog to read. It is a family who is adopting two children that both were in the same institution as our girls. The boy has major medical issues but is not as delayed as our girls are mentally. He spent a lot of time with us when he was out of bed. He would tell us "Good morning" in a very serious tone and you could tell by the look on his face that he wished he had a family there too! Well now he does and this blog is written so beautifully. Just makes me happy/sad...happy that he has a family...sad that he waited so many years but now he will never be alone again! This mom also is the director of Grace Haven Ministies that has a grant in place for the sweet "Sally" http://myreallifebyyvonne.blogspot.com/2013/02/day-106-fos-sally-has-family.html If you can give towards her adoption I would be happy happy happy! (yes I love Duck Dynasty) Sally has a family coming for her:) I LOVE to see children being plucked out of the darkness and loneliness of a orphanage to be loved and in a family!!!! And it is even more precious when I know the children myself!