Speaking of the new house, I think the foundation will be laid soon, maybe this week!! I know they are going to "stake" the house this week so we'll see what all will happen. We can't wait!
Just wondering if anyone has any contact with Duck Dynasty??? My boys love their show & so does the rest of the family. We'd LOVE to surprise the boys with a visit from one of them to our house's dedication. The boys have given up a room for almost 2 years without complaining and I think it would be great to surprise them with getting to meet one of the DD guys. I do not know how to get in touch with them but if anyone has a contact, please let me know!
Sarah's new thing is to have me or Jon help her stand up and then she pushes our hands away and stands by herself for a few seconds. She must have done it 100x last night. I should have videoed it long before she got tired. Maybe she will actually start to walk!
Tomorrow Selah has a doctor's appointment with neurology, more of a check up but we always seem to learn something from Dr F. He is interested in Selah and helpful to us in many ways.
Someone asked why I don't mention Selah as much as the other kids, particularly Sarah. It didn't make me mad but let me explain if that thought had ever crossed your mind. For the first nine months or so after the accident, I talked about Selah all the time. In fact I had a few remarks asking me why I didn't talk much about the other children. It was not that we didn't love all our kids, but our whole focus was on her at that time.
Now Selah is stable but unfortunately her days are pretty much the same. There are no new things to report. That hurts to even write it. She is healthy and content. She has 24 hour nursing care, any major decision we make from a vacation to cleaning the house (the fumes) we take her needs into consideration. I feel like our whole lives revolve around Selah and her care and well it should revolve around her!
I wish I had great things to report....you have no idea how much I wish that. I'm thrilled on the days she is more responsive.
Yes we did go to Ukraine to adopt Sarah. Selah was our little surprise that we learned of right before we left. While she had profound special needs, she was different in that she could see and that was different for us, since we were used to a child with special needs who was blind. With Sarah we understood her and her needs very easily because of Sam. BUT we loved Selah from the get go- and knew that God had orchestrated things to bring her into our family, even tho we had not originally planned on adopting her.
Now since the accident, it is a strange life. Selah is here, but she is not here.... We were just getting to know our funny little girl when the accident happened. Now we love the memories and often wonder "what if" and how would she be today had the accident not happened?
We are committed 100% to her care but it is hard to explain the emotional side of living with a child who is in a "persistent vegetative state " There is not a "give & take " emotionally. There is not a building of mutual memories and love. There is just us, loving her, being committed to her, making sure everything is perfect for her comfort..... And when you add the fact we only had 13 weeks with her at home and 5 weeks in the orphanage visiting her....we were just getting to know her. We relay on those memories now to help us make decisions about what she likes/dislikes, what is comforting to her and what might bother her.
So I don't know if that explains things to everyone's satisfaction. But sometimes not having something to share, other than medically about Selah, hurts me more than you would know. I can truly say of Selah that I have cried and prayed over her, much more than I have any of my other children.
Our lives were far from "normal" before the accident. But it was ok, cause we were in "OUR" normal. Now it's like no matter what there is a sadness that will never be erased until that day when God will make all things new. Even when I'm reporting all the happy news, I'm sad I don't have happy news to report on Selah. I'm NOT sad that we have Selah to take care of, I'm sad that she has suffered an injury that she can not recover or change from.....
So I hope you understand my heart about this matter.