Friday, January 23, 2015


Wesley Chapel Toyota is partnering with Habitat for Humanity to help build our home.  They made a video of one of their work days.  It shows the home, complete with a drone fly over :)   Our family was there also.  I can't load it on here but if you go to my Facebook page below you can view it. PLEASE like the FB page too:)  Thanks!

Yesterday we picked up the van that was given to us by Dr  Bonati  of the Bonati Spine Institute.   It's a 2008 Kia Sedona.  Now we are in the process of finding who can make it wheelchair accessible for Selah.  It's funny we have a Kia Sedona that is grey it's a bit newer but everything is about the same in both vans.  We were originally told that our van couldn't be made handicapped accessible but now they have told us a Kia possibly can be modified.  We will have to take out some seats so that's why we couldn't do it with our van as we need every seat!   So I'm researching how we can go about doing it.  Just to have a vehicle that we can fit for Selah is wonderful.  Transporting her is one of the hardest things we do.

So we ran around getting paperwork done all day (we- as in me and all the kids)  No one got a nap!  Then we went to a cookout with the RV volunteers of Habitat for Humanity.  That was fun, getting to spend time with some of the folks who have worked on our house.  The little ones did much better than I would have though they would have done with all the traveling they'd done. 


Sarah had a friend feeding her baked beans. 
So these are retired folks who come to Florida (or several southern states) in the winter with their RVs.   They camp out at the HH's RV park and work Monday - Friday.  They are all an amazing bunch of folks.  Some commit to a 2 week time period, some are there for  months.  It's easy to see the friendships that are made and grown as they all work together.  I'd encourage you to get involved in something like this if you like to RV and to help others.  There are lots of sites like this one you can work on and I believe they also do this in the northern states in the summer where RV'ers can live on a site and work for Habitat! 
Totally different subject....
I've been asked how we communicate with Sam, Sarah and Selah. 
Well Sam says NO- his only word besides Mama and Dada every now and then.  We LOVE when he says NO and we hear his voice.  Since Sam understands some receptive language- what he hears - we can continue asking basic questions like "does Sam want to eat ?"  until he makes his happy sounds - sounds like "wooda wooda" then we know what he wants.  He doesn't understand non concrete ideas like he wouldn't understand "are you in pain?" so that's hard.   It's like communicating with an 18 month old
Sarah also has more receptive language skills than what she can express.  If I ask her to come to me, she will scoot over.  If I ask if she wants to eat, she'll clap and/or open her mouth.  She has said Mama a few times but she doesn't say anything else but will parrot back vowel sounds and enjoys that.  She doesn't understand as much as Sam.  So with Sarah it's like communicating with a one year old
Selah is like a baby, we can tell by her face expressions and her body if she is upset.  We also have her on a machine that measures her heart rate and her oxygen level.  If her heart rate is high, she is upset. 
So basically think back if you have kids, just like you KNEW what your baby wanted, it's basically the same thing for us.  We know them and have learned how to meet their needs by the clues they give us. 
So since I've been asked that question a few times lately I thought some of you might be thinking it. 

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