Friday, August 4, 2017

Summer 2017 part 2 NYC

In June we headed up to Rochester for Sam's TEN year anniversary visit!  YES it's been 10 years since he had his corneal implant!  Sam was the 46th patient to have the implant at that time.  It's called the Boston Kpro.  He had it done because the corneal transplants had failed and usually if transplants fail once on a child they will just continue failing.  Our doctors in Miami could offer us nothing else but our favorite doctor said he'd heard of a "maverick" in NY....well we needed that maverick Dr Aquevella!  He has been a wonderful answer to prayer for our family.  In the Perter's Anomaly world there is so much silly confusion about Kpros and some eye doctors are against them and poison parent's minds-so sad.....  I don't know if it is professional envy or what that causes the prejudice against the Kpros.  I've never figured it out.  We have a FB group and I've just about given up even sharing about the Kpro anymore.  It's been mostly without problems for Sam, except for his left eye and we never had much hope for that eye to begin with. There is work to do and eye drops and a few rules we follow but that is nothing compared to Sam having some vision! We only wish we could have done that for Sarah!

On our way up we went off the beaten path.  We had a turkey cross the road in front of us in South Carolina and it was fussing at us the whole time!  If we'd been headed homeward, he might have wound up a Florida turkey LOL

Then we stopped for the night in Gettysburg.  We had enough time to walk through the cematary, something we didn't get to do the last time we were there.  We got a fabulous hotel outside of town with three beds!  It's always fun to get a really comfy big room.  The greatest thing was the woods behind the hotel.  There was a firefly presentation like none of us have ever seen.  It was just unbelieveable, hundred of thousands of fireflies all in the trees, there was just a hint of coolness in the air, and for a Florida family we felt like it was Christmas time!

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Sam had to have an EUA so this was him following the perfect exam!  I still get choked up when he is being taken back to be placed under anesthesia.   He does great and as usual there were no problems.

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Our beloved Dr Aquevella and his new assisting doctor that I think we will love also:)

God bless that place!

this picture hangs on the boardroom of the Ronald McDonald House. Not only is it meaningful to us that they have pictures of our family up, this picture was taken just about an hour before the accident at the canal.  But for the grace of God, this might have been the last picture we would have had of Sam. I'll be honest, it is very hard for me to go back to Rochester.  I'm not one to cry but I was very stressed about going this year.  I despise the Erie Canal and hate to see it.  It's very hard emotionally.

After Rochester we headed for NYC!  We left the city in 1997 so 20 years later it was our first time back!   We found a Country Inn & Suites in Queens (Long Island City) that was wonderful.  One block from Queen's Plaza (subway and bus stop) Blocks from the 59th street bridge!

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It was bizarre to see the police & anti terrorists force out!  NYCis a far different city than it was 20 years ago when we lived there.

So there is quite a joke in our family about the McDonald's on Times Square.....
in early 1995 I ate there and got sick on the subway before I could get home to Brooklyn.  In fact I was sick for several days so I called them to complain.....when I never could get better I went for an exam and found out I was pregnant with Steve LOL   I never did call them back and apologize.  We always laugh when we see that particular McDonalds on TV or a movie!!!

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Olive Garden on Times Square

Sarah and me in Central Park

Of course we had to go to the hospital where Steve was born, St Luke's Roosevelt (although it's another name now) Lots of memories for me- Steve was born here, we lost the twins here and I almost died.....

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I swear this was the same bassinet Steve was in LOL
There was a family leaving with their baby and I wanted to grabbed them and tell them how fast time passes by.....but they would have probably thought I was nuts.
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Of course you know I had to go to Trump Towers!

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Sarah loved the ice cream at Trump Towers!

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St Patrick's (now you have to go through a metal detector!)

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this was my fitbit for our first day in NYC!  I was so tired and it was soooooo HOT!

Yes Shad is asleep on a NYC bus!!

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Sarah got really upset with the traffic and sounds so Jon and I started taking turns taking the boys around....

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our nurse called and said she had the hand delivered paperwork of Shad's citizenship!!!!!
You just can't make that up!  It was amazing!!!!!!!!!   11 years it took!  His paperwork was all kinds of ways messed up but he is now a citizen!!!

Little Italy
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We had to keep up our strength!

Empire State Building

Brooklyn in the back ground

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You know I love libraries!

Steve and Sam walking towards our hotel from the parking lot

We also spent a day going to our old haunts!

Brooklyn Teen Challenge

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The Chapel

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the building with the blue door we lived in
first we lived in the top right apartment.
Later we moved to the bottom left
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The stairs to our old apartment right side

 front door
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our neighborhood

The Men's home where my husband worked

In 1986 I did an internship at Metro Church in the Bed-Sty section of Brooklyn

the store I got my 7-Up from every morning

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the apartment I lived in 3 rd floor walk up
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Brooklyn Bridge

What a LONG trip we were so very glad to get home.  On the way home, in North Carolina a truck lost its' ladder in front of us, it was a miracle we were not killed!   Our oldest son was driving and he handled it well but it was very scary!!!!

Tomorrow I'll blog the 3rd part of our summer:)


  1. Hi Mrs Yvonne: It is truly a blessing to meet you and the family at Metro World child. You all are an amazing family and I pray God continue to use you to be an inspiration to all that you meet or encounter. I bless your family with the joy, strength and peace of the Lord always keep smiling God is sooooooo GOOOOOOOOOOOOOOOOOOOOOOOOOOOOD AMEN

    1. Oh my gosh so glad to hear from you! I loved meeting you guys! Our hearts were right there together instantly ❤️ God bless you for all you do!