Tuesday, May 14, 2013

Big Announcement!!!!!!!

I feel very privileged to get to make an announcement on my blog.....

Brian and Shelly Burman will be bringing home...Patrica/Paige, Lauren and Nolan!  This family has an incredible testimony on their blog http://carringtonscourage.blogspot.com/  they are a large family that has opened their home and hearts to special needs adoption.   I read their blog when we were starting the process to adopt Sarah and was just amazed by their story of Carrington, who was adopted very near death and how God used this family to bring her to LIFE!  Go read their blog....you will be amazed by their love & story. 

Shelly reached out to me after Selah's accident and we quickly became friends.  We seem to "get each other"  that can be scary LOL!   When I saw that Patrica/Paige/Sally  (she is called Patrica on  Grace Haven Ministries, Paige on Reece's Rainbow and Sally in our hearts...) had a family committed to her, I was thrilled and announced it on my FB page as my friends knew how much we had hoped to adopt her before Selah's accident.  Then Shelly contacted me and told me THEY were the ones adopting her!!!  I was very happy because I know they have the skills to parent her as well as these other two children.  BTW if you are wondering why she had so many names, it is because we called her Sally...and each of the ministries listed her and could not use her real name. 

http://reecesrainbow.org/1377/nolan117  
 
 
 
 
 
 
 
 
 
 
These three children were all at the same institution that our girls were at.  I got to know the girls and were blessed to spend time with them.  I think I saw Nolan some, there was a group of boys more physically active, and I think he was in that group.  Sometimes it is hard to tell who a child is unless you really know their picture, before you get to the orphanage. 
 
The girls are now in a regular orphanage and the little boy is in another one.  It will be a long and expensive adoption but in the end, these three lives will be saved, they will get to know the love of a family...that makes it all worth it! 
 
My goal is to raise $1000 and it will go on Patrica/Paige/Sally's account with Grace Haven Ministries as I planned from the beginning.  I am so very thrilled that they all have grants from Reece's Rainbow, from folks raising money and giving sacrificially in order to bring these children home.  It's amazing to see how people give to change a child's life forever! 
 
If you'd like to help me reach my goal of $1000, please send a check or money order to Grace Church, 7060 Berry Road, Zephyrhills Fl 33540 attn: Orphan Ministry and I will send one check at the end of May to Grace Haven Ministries.  You can also give directly to GHM by going to their site
http://gracehavenhome.com/?page_id=4 and write in the box that it is for Patricia and please say you are from my blog...I really want to met the goal for this month:)  We are at $610 so far!
 
 
My heart is filled with gratitude to all who have already given to change these three children's lives....having had the honor to get to know the girls and to walk the hall of the mental institution these children lived in....makes me REALLY feel gratitude to all who have given and will give...  You really have no idea what these little ones faced.  Right now they have all been put back in orphanages BUT if they were not adopted, they would age out and go right back to a mental institution for the rest of their lives....
 
THANK YOU!!!!!!!
 
 
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Tonight Cephas (aka Maxium) and Lucia are HOME~ http://kacirek.blogspot.com/ read their story.  It took TEN LONG weeks but they are home!  Thank God and thank you all for your prayers and giving!  They were also in our girls' instiution and now to know they are home...it thrills my heart!  God places the lonely in families....
 
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So for a bit of a Clanton update.....
 
 
Selah continues to do awesome.  We are all still in amazement at this dramatic change in her.  So very thankful to see her so relaxed and all her numbers nice and low.  Today I gave her a bath and blow dried her hair.  She kept lifting her head up while I was drying it, totally on her own.  She didn't really care for the blow dryer but if I did that every day, it would give her plenty of neck exercise!
 
Her physical therapist got 90% range of motion in each leg and 100% everywhere else:)  We are really speechless except to say "Thank you God" for this change! 
 
Sam seems fine now, his eye doesn't seem to be bothering him at all.  It looks awful but he keeps it closed most of the time.  I don't think it will look like there is an eyeball anymore even after it heals, since the iris was taken out when he had the orginal operation.
 
 
Today I got to go out to lunch with my friend, she was making fun of me with my magnifying glass:)  but it was dark in there!  LOL  I got some thrift store time in and bought a set of Pyrex  I don't use anything with aluminium in it anymore so all my stuff is glass or ceramic including my pans.  I do have a few pots that are stainless steel that my aunt used so you know they are very old!   I also found a pair of SKORTS my fav type of outfit!
 
 
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I feel I have alot to be grateful for tonight....my kids are all well, Selah is better than ever, and two children are home from their institution and three more have a family.....my heart is filled with thanksgiving!
 
 
 
 
 

Monday, May 13, 2013

Good News!

This morning I just had to share this....
 
Selah is doing unbelievably good!
 
During therapy, the therapist said she had NEVER seen her do as good!  She got really good range of motion in every area of her body and her feet twitched, there was some movement, even if it was just response neurologically, it was something new!!!!
 
Also she has not had Clonidine, one of her Blood Pressure meds since Friday morning....WHY?  Because her BP has been in the low normal range!!!!   We have a parameters in giving it and she has not meet them since Friday!  This is amazing!!!!!!
 
She hasn't had Valium since Tuesday morning early!
 
She also has been continually swallowing, like we all do!  No drooling!!!
 
No one knows what is going on but it is GOOD!
 
This is the best overall she has been since the accident.!!!
 
Please keep praying...we have a long way to go!
 
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Got $10 from Pennsylvania today towards our Orphan Ministry!  Thank you my friend!  We need $390 to meet our goal of $1000 for this month!  I know we are going to meet the goal!
 
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I've thought about this for a long time, even since before the girls and I really think God is leading me to speak/share at churches, women's groups, civic groups etc...about our life experiences and our trust in God.  So if you are interested in having me come and share, email me and let me know  theclanton5@aol.com  
 
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Sunday, May 12, 2013

Mother's Day

Mother's Day.....

When I was growing up Mother's Day and Father's Day were very hard for me.  I was raised by my great aunts, two old sisters, Boot's and Ruby.  When they first took me, as a baby, my great uncle was alive, he was married to the aunt I called "Boot Mama"  Her real name was Bertha but her nickname was Boots.  So she became Boot Mama...only in the south....   He died when I was 3 years old and then their brother my Uncle Mack came to live with us.  I adored him, he passed away when I was 12 years old.  Even tho I was loved and pretty happy as a child, it was odd in my small town not to have a mom and dad.  I didn't know anyone else who lived with anyone other than their parents or whose parent's were divorced.  So those days were just stressful to me.  Not that I didn't love "Boot Mama" as much as any child could love their mom, but it was obvious I was different. 

Then once Mama died, when I was 17 years old, I was sad when Mother's Day rolled around.....then I got married and couldn't have kids, so it was still a sad time to me. 

I told Jon years ago, do NOT be like some pastors and make big deals out of Mother's & Father's Day...it is too stressful and sad for many folks.  I HATED it in some churches I've gone to over the years.

BUT in 1996 I celebrated my first Mother's Day as a Mother with my fat happy little 7 month old boy Steve!  Never dreaming that one day I'd have FIVE kids:)

If you wonder about my "birth" family...it's weird...I don't have hate I just want nothing to do with them.  I only saw my father one time that I could remember, and then about 15 years ago I got a call from a lady who identified herself as my "sister" and she said that our "father" had died....I was a bit impolite to her....she wanted me to sign something so his "family" could get his insurance money or whatever....  I told her to leave me alone, I wanted nothing of his.   My "mother" has been in and out of my life a few times.  She always has an excuse as to why she left me with her aunts.  Now I think she did a GOOD thing as I shudder to think what my life would have been like being raised by her BUT I believe in personal responsibility and she has no clue of that...  She is always the "Jerry Springer victim"  To be honest, I didn't have time for that type of thinking ever and certainly not now.  She wants to be close and have some manufactured emotions...it's so not there and I can't see it ever being there.  I needed a real mother when I was a child who put her children before herself and gave her kids a solid foundation....I didn't get that.  I don't need craziness now in my life.  Before I was a mom, I could listen to her excuses HOWEVER after I became a mom, there was nothing and no one who could ever tear me away from any of my children....

Being a Mom has been the best thing in my life!  I wasn't 100% sure I wanted kids, cause I sure didn't like other people's kids LOL  but I wonder how it would be to have my own kids....I KNEW my kids wouldn't be brats...and they are NOT:) 

This is what I posted on FB this morning.....

Happy Mother's Day, I've been given the best gift of all, the children, God has blessed us with. Being a mom has broken my heart at times but it has given me the greatest joy also. Having our children, with their unique stories, has been the most exciting thing to happen to me. I wouldn't trade one minute of it, if it meant not having one of them. I've learned to appreciate the good times even more, because of the heartaches....I love you Steve Clanton, Shad, Sam, Selah and Sarah and our twins..... I'm glad each of you are my kids:)

My kids & husband  are the most important things in my life.  I adore them and I enjoy them....our family is a place where we can relax and lean on each other.  Adversity has only drawn us all closer together.  We've learned to depend on each other and to be there for each other.  I thank God that He gave me a good husband who came from a stable family.  God also gave me glimpses of families so I could have an idea of how a family really functioned.  We're not perfect parents, but we have a happy home and our children are well behaved and respectful.  They have fun with us, but they also know we are the parents.  I think kids like to have boundaries, it makes them feel safe.  Jon & I have never really disagreed on parenting issues and that has made things really easy for us.  We pretty much had the same ideas. 

Jon and his family

 
Jon, his dad, mom and brother Jim with Molly the family dog
 
BTW I LOVE  my in laws!  I've had the best! 
 
 
 
me and my blessings!

 
 
my five blessings!

 
 

 
Steve and me!

 
cookout in our backyard
 
 
 
Steve built this simple fire pit and it works well
 

 


Steve & Shad cooked out for us today after church.  They grilled hot dogs, baked beans, chips, drinks, and smores:)  It was unexpected and sweet!  It really was neat to see them do it all, Shad was all about starting and maintaing the fire LOL  They've never done anything like that and it was neat to watch them do it all!

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Last year.....

 
 
Church Dedication 2012  the girls first Sunday in church Mother's Day

 
Me with my 5 kids last Mother's Day
 
the kids swinging outside....happy day....
 
 
Memories....
 
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Today I became aware of another little girl with vision problems who needs a home.  She is in Foster Care in Texas.
 
 
there is a link with info about her.  My heart is pulled towards her and her situation, knowing how our family knows how to work with a child with vision issues but I also know our situation....maybe someone reading might realize that God is leading them towards this sweet girl.  She sounds like our happy Sarah.  She needs a forever mom and dad too!!!
 
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DON'T FORGET OUR ORPHAN PROJECT FOR MAY!!!!!
We have $600 raised already this month, with a goal of $1000 to go towards two little girls.  One is listed on Grace Haven Ministries, Patricia.  She will be adopted with another little girl.  You can give directly to GHM or send a check to our church marked Orphan Fund Grace Church 7060 Berry Road, Zephyrhills Fl 33540.  You can make a difference in a life!!!
 
On this Mother's Day, I think of the children in need of a family.....
 
 
 
 
 
 
 





Saturday, May 11, 2013

Happy Saturday

Selah had a perfect night....her heart rate didn't go over 100!!!!!!!  Today was picture perfect for her as well.  she looked so good, I wish I'd taken some pictures when she was outside.  Her heart is staying in the 60's which means she FINALLY has recovered!  It took her a month and EIGHT different antibiotics to get over that mess!  Three hospital stays...it was crazy but we know with numbers like that, she has recovered!   Her nurses are all reporting on how well she is swallowing, she rarely has any drool unless she is sound asleep  (I've drooled a bit when I'm sound asleep too LOL)  This is a great thing and another proof that she should be able to come off the trach soon!  We STILL do not have speech therapy set up, we are waiting for everything to go through...so annoying!

Sam seems more comfy today.  He was able to open his good eye when he first woke up for the first time since the surgery.  He hasn't been as whinny either. 

We got a surprise today....some good friends stopped by.  We introduced them a few years ago and they got married:)  Steve attended our church and I was friends with Jennifer's mom...when I got to know Jennifer I told her, I knew a guy just perfect for her...at the same time, I was telling Steve I knew the perfect girl for him....well......6 months after meeting each other, Jon was honored to do their marriage:)  We had a great time hanging out today, eating pizza, just having a good time with them and their little girl!  Friends are so important in life:)


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Selah a year ago today...she was so tiny...She is wearing a size 2T...today she is wearing a size 7!

 
Sarah a year ago today wearing  a 2T shirt and 24 months old skirt, pinned with safety pens!!
Now she wears a size 4 or 5!!!!
 
 
A year ago today we all went out to eat for the first time....
 
 
 
 
We felt brave taking the whole gang out to eat!
 
One thing I failed to mention was the day after we got home, we were at our doctor's at 9am, he gave us his whole morning to check out the girls.  Sarah had bumps all over her.  I was sitting holding her and he told me she had scabies!!!!  I almost dropped her LOL!  We ended up going to a dermatologist at USF the next week because it ws so awful.  She had a form that was not contagious only because it had been in her system for so long.  It was awful, the bumps would come up in minutes and she'd just shriek!  If she ever cried, it was because of the scabies.  She kept having acute attacks until about October, now she will occasionally have a few bumps but not like before when her whole back would be covered in a matter of minutes.  It took a combo of medicine to get her through that!  The doctor said she must have had them since she was a baby.  Isn't that awful to think of????
 
Some days I get sad when I look back, today is not so bad, since Selah is doing so well physically and beginning to make progress once again.  It seems like every time she goes in the hospital, she has to start all over in areas.... But I could live with days like today, it gives me hope.  To see her relaxed (with NO Valium----today no Clondine either!!! Her BP was too low for the medicine and that is GOOD. ) Swallowing, and more attentive....it gives me HOPE that maybe she will still recover.   Days like today are as good as it gets for us now. 
 
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Thank you all for your prayers for our family!
 
 
 
 
 
 
 
 
 


 

Friday, May 10, 2013

Family Time

It's good to be home!

Sam is still in some pain, he didn't open his eyes for about 2 hours this morning.  He is so pathetic, just about kills us to see him as if he were really 100% blind.  He feels his way along and reaches for us.  When he does finally open his good eye, thankfully the bad eye stays closed, I've got a few glances and it looks bad.  Even before this surgery he usually kept that eye closed or almost closed.  We think it will stayed closed now for the most part.  This all makes us thankful for the sight he has, things could be harder for him. 
 
Daddy spent alot of time with Sam today.  It's Jon's day off and Sam needed lots of love and reassurance.  Jon is singing to him "The Meeting In The Air"  an old gospel hymn that Sam loves!






Selah is doing EXCELLENT!  I just found out she didn't do too good on Monday and there were some concerns but by Tuesday she was better and got better daily.  Honestly I told Jon not to tell me anything bad unless one of the kids ended up in the hospital!  I knew I couldn't do anything & I was dealing with enough by myself with Sam.  I'm glad I didn't know what was going on!!!! 

Her heart rate is so nice and low all day.  Last night we didn't have nursing (we knew before hand that our nurse had had some plans for months)  Selah slept all night long, low normal heart rates, didn't need any extra meds, she didn't wake up to be changed until 5 am!  We couldn't be anymore happier with things.  Her main day nurse and I talked today about how to keep her out of the hospital.  We know if her heart rate goes up, she is sick....without fail, that has been the case.  We are going to go in and meet with our pediatrician and come up with a plan.  He worked with us with Sam.  If you know us, you may remember how often Sam was in the hospital the first 5 years of his life.  It was just as often as Selah has been. After he was older & somewhat more "stable" our pediatrician worked with me to keep him out of the hospital as much as possible.  We had some plans in place and it worked!  Outside of the accident, Sam has not been an overnight patient for THREE full years this month!!!!!!!!!  Years ago, that would have seem impossible! 


So we feel like there are somethings we can have in place if we start seeing signs she is getting sick.  And it will be even more safer to work on keeping her home since she has home nursing, and Sam did not.  So that is our plan and I think it is a great idea and will help her alot!!!

Since Selah has been home form the hospital, all her nurses are reporting seeing more purposeful movements. She moves, but some of her movements are more neurological reactions, not something she is doing on her own. But lately, there has been a slight change, we have seen it too. Today I gave her a bath, then sat her in the wheelchair to dry her hair and she totally held her head up! It was in order to get away from the brush but nevertheless, she held her head up quite nicely! 


We are fully staffed with 24 hour nursing now!  We were when we first came home but there were some issues and we took over night nursing....then we learned it was hard to function after being up all night.  She is really stable, until she is not...and when she isn't, it's hard.  So we requested night nursing again.  We were sent a nice older lady, who is a true professional.  She works 4 nights a week.  Then the lady who had worked on Thursday for us was able to come back to work after being involved in a horrible car accident.  It worked out best for her to take night shifts for now so she is doing the other 3 nights.  She is amazing skilled also.  Then we have our main day nurse who really pulls everything together with all the many specialists and therapists.  She is perfect for us.  We totally see eye to eye on things and she helps me think through different avenues.  Then our weekend day nurse, is a Franciscan monk!  He has taken vows and nursing is his vocation.  He is not a priest but somewhat in the middle.  I asked him once if he could hear confessions and he told me I could confess anything I wanted to him but he couldnt' give me absolutes....LOLOLOL!  We love his sense of humor and enjoy him in our home.  We all enjoy hearing his stories and talking with him. 

I have to tell you I was not ready for anyone to see Selah when we first got home.  But our weekend nurse and Jon cooked up a scheme to get her to church the first Sunday.  Our nurse just got her ready and was adamant we were going!  He helped me break through that barrier...even tho I sobbed the whole time.  Now we laugh at how he "tricked " me!  He also used to play in a country band and he can play the tambourine like a Pentecostal from the hills LOL!  A lady brought one to church one day and somehow he started messing around with it and shocked everyone!   He is a trip!

One thing I LOVE about all the nurses, is they genuinely care about Selah and all four of them would be thrilled if she were healed!  They are all easy to have in our home and it's worked out really nicely for us and them.  I told our home health care agency that we have the best nurses they have on staff....

I've spent some extra time with Sarah today.  She did ok with me gone, but sure has been cuddly with me today.  I took her out to her little pool to play and she just loved it.  I would have taken pictures but she went skinny dipping LOL!

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 A year ago today.....I couldn't believe we were all waking up under one roof.... Sarah was a bit overwhelmed by SPACE, and really liked sitting in this baby swing...if you know her, can you think of her just sitting for more than a minute at a time now?


 
 
And Selah wouldn't leave their bedroom without one of us carrying her. 
 
We spent the day at home, just in awe that they were really with us!  What a happy day!

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Here are the pictures from last Saturday night when Shad got to take out the game ball at the Tampa Bay Storm vs New Orleans Voodoo Arena Football game.  He had a blast!

 
Jon and Shad waiting to go out

 
 

 
Shad waiting for his big moment

 
See Shad with his blue shirt on

 
Jon was a bit uncomfortable in the cheerleader's section LOL

 
Shad man

 
Drew & Steve....this picture is so funny to me!


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Please pray for Sam & Selah!!!!

Home again.....

http://www.whec.com/news/stories/s3027070.shtml

here is the link to the news interview I gave yesterday to NBC Ch 10 in Rochester.  I always enjoy talking with Ms Adams.  We appreciate the support and love of the Rochester NY community for our family!



Home is a beautiful place:)

After not being able to sleep last night because I was so afraid of NOT hearing the alarm at 4 am, I got up, got showered & dressed, got Sam up, said goodbye to the night manager, packed the car and made it to the airport by 5:15am.  Deb, the RMH's night manager's son, was there to meet us.  He is a nice young man who is a sky cap right out of high school but has dreams of being a pilot one day.  He helped me out more than words can say!  What a blessing to have his help!!  We sped through everything and in just a few minutes were boarded on the plane.  The captain and crew were so nice to us and let us look in the cockpit.....WOW!    That was probably the smoothest flight I have ever been on, had a great seatmate whose son was born with vision issues different than my son.  The irony was that his son was sent from Rochester Eye Institution  to Miami/Bascom Palmer Eye Institution and we were sent from Miami/BP to Rochester.... at one point our sons, near in age, were seeing the same doctor in Miami!!!!  It is a small world....six degrees of separation for sure! 

We had some help in Atlanta but that is a daunting airport and I only had an hour between flights, and of course had to go from one end to the other to get to our connecting flight but we did fine.

Flying home I saw the most amazing sight, I almost could not believe it.  As we were flying over north Florida, most planes bound for Tampa fly out over the Gulf.  I happened to look down as we were over the "Big Bend" of Florida leaving land and flying over the Gulf, it was unreal looking.  That is close to the area I grew up and just to see the land/swamp (no pretty tourist beaches there) give way to the Gulf was amazing.  I could see the "bend" of Florida.  The sky was so clear, and I guess we were flying lower than normal since it was such a short flight.  I could see the green of the ocean and the occasional boat.  Then when we banked back over land, I am almost positive we flew over Honey Moon Island, which is probably my favorite beach.  I could see the bridge and the wooded area with the arch of the beach.  It's a state park and we've gone there for years, one of the nicest beaches in Florida (IMHO)   Even flying into Tampa was pretty.  I think that was the prettiest flight I've ever been on.  I've flown over some crazy places ( like the North Pole and the Great Wall of China) but this was just awesome to see....  it almost got me over my fear of flying LOL

Sam did great thanks to prayers and MEDS!  He fell asleep on both flights and was totally quiet. 

Actually I have a dread of flying more than of the actual flight, but after making this quick trip today and being home by lunch time (compared to 2 days of driving) I maybe over the fear of flying or at least realize a few hours of terror is easier than two days of being cooped up in a car with all the kids LOL!  Taking off for me is the worst part, till we get to cruising altitude...then I'm fine and landing doesn't bother me (even tho last year our plane almost skidded off the runway in Germany!)  

Today was ONE year since we traveled home with the girls, so in one year I've taken TEN flights...LOL  why do I always have to deal with my fears?  Whatever I don't like, it never seens like I have the luxury as some do, of avoiding it! 

 
my flying buddy

 
One of my BFFs Kandi picked us up and we went out to eat.  Sam has barely eaten the whole time we were gone but he made up for it at Sonny's.  He was happy to be home, happy to play with his toys.  When he comes home from any trip, he immediately takes everything out of the toy boxes and does what we call his "inventory"  LOL it is cute. 
 
When I got home, I had to take the kids to Walmart for something for the computer and I was so tired.  BUT I did find Phil Robertson's ( Duck Dynasty)  new book  "Happy Happy Happy"  I only skimmed a few pages because I took a long nap but the first chapter is GREAT!   I didn't quite grow up as primitive, but not very far removed from how he grew up.   Go support him and buy a book!  You ask me WHY? does this now rich man need your support?  It shows the world how much we WANT to see role models of regular folks and not some of the crazy, heathen shows on tv today.   There is a reason their show is highly rated, it's not exactly the most amazing show on tv, but it shows REAL folks, dealing with each other and at the end of the day, no one fighting or divorced or running away...they are around the table, sharing a meal and a prayer....
 
 
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So a year ago today, we were headed home....from Kiev to Frankfurt Germany, to Dulles in Washington DC to Tampa....it was a long trip.  but the kids did great, no one had any meltdowns, we kept stuffing them with food LOL:)
 
A year ago
 
 
 


Selah was not happy with the seat belt

 
Jon holding Sarah
 
my little world traveler
 
 
Selah never did like the seat belt and would wiggle out of it if I wasn't watching her closely
 
 
 
At Dulles Airport in DC, the girls became US citizens when we came through immigration.  There was no swearing in, like Shad's entry into the USA but Jon & I had tears in our eyes when they stamped the paperwork!
 
When we stopped in DC, I rushed outside of the security gate and got to see my college room mate Jan!!!!!!!  We hadn't seen each other in years, although we have always stayed in touch and close.  What a blessing to see her:)
 

then a bumpy ride home....
 
HOME!
 
 
 
Selah dancing with her aunt Val
 
the cousins

 
Bob and Jennie
 
 
Kandi and Selah

Look out!

 
in the van

 
we have a van full even if you can't see Sam

 

 
 LOL
Look who fell asleep on the living room floor
 
 
 
FINALLY MY GIRLS IN THEIR OWN BEDS, SAFE AND SOUND!!!!
 
It was a long journey for us...and a longer journey for them to find a family...it took Selah 7.5 years and Sarah 5.5 years to have a family of their own....  My regret?  Only that we would have known about them sooner....
 
These two pictures represent so much more than a child sleeping in a bed.....it represents hope and love....

 
Selah

 
Sarah
(that's how she used to sleep)

 
even Sam
 
So a year later and we are all back under one roof again...
There is nothing in this world more valuable than your family...cherish each moment with them.  the big ones and the little ones.....
 
 
Please continue to pray for Selah....