Another Insurance Fight......say it is not so! I spent over an hour on the phone with our drug insurance......we are having issues with getting the "magic" medicine Tobymixion...that has kept Selah out of the hospital and kept our trach infections at bay.....I'm not going to even write out all the details yet but basically it was so bad today that I called the Governor and left a message with the person who he had designated for me to call if I had any other issues.... This drug is one we have to have and we need to be able to buy it in Florida NOT through the drug plan's company because the co pay will be so high. We already pay $100 a month for it. What a mess....can you imagine what it will be like when Obamacare happens????????????
Then to top it off, a friend of mine is going through a really hard time and many people will be hurt by decisions made by others....I am heartsick. Please pray for my friend, I will share when I can! IT is a VERY serious situation.
Selah seems just a little "off" which is always worrisome.....her heart rate went low last night and then today she got upset on the stander after about 45 minutes and her heart rate was up some. She has been so stable, we notice anything off now....
Sarah and Sam sure are enjoying their academics teacher. She is excited about working with the kids and you can tell it. They both respond very well to her. In fact they are jealous of her when she is with the other one! That is a very good sign! It's a little hard for us to work with though LOL, we are constantly moving kids around!
We still have wonderful weather here in the Sunshine State, I was walking outside today and it was warm, with a breeze and I thought how wonderful living in Florida is:) And I have so many paperwork projects done....I guess so now I can spend time on fighting the insurance company yet again.
Tonight I am disheartened.....at the fight I am always in.....at the world....at the lack of care for orphans....at what my children have endured as orphans..... at systems that leave children in orphanages ...... Surely some people forget they will stand before the God of this Universe one day and give an account of their lives and the deeds they have done......
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
Y - I understand only too well this "fight" feeling. My Mom often reminds me that it's b/c of our fighter mentality that we have the children we do. They need someone to go to bat for them and although exhausting, it can be done and it can be won. Persevere and stay strong!! You have an army of prayer friends backing you up :)
ReplyDeletep.s. changed my google name in case you're wondering it was "Mommy" before...
Yvonne, I know you are not trying to have a debate, but thanks to the changes in the law from the Affordable Care Act, I was able to cut down my hours at work just recently, and have still have access to health insurance outside of my job. My daughter is also disabled, and when I have looked into cutting back my hours in past years, I was told point blank by insurance agents that we (she) was uninsurable. I am so much happier to have more time with my family, and still have coverage- it is worth the pay cut. I am not a freeloader- I have been supporting my family for years, and still will. We won't qualify for a subsidy, but I am so happy just to have access to insurance. Because, as you know, if you have no health insurance in this country, you are just asking for trouble.
ReplyDeleteI am so glad it is working for you and maybe it will turn out to be a good thing. It is scary to not have insurance and my heart does go out to folks who have found themselves in that situation!
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