This has been a quiet day, Selah is doing fine, but she is still "off". her heart rate went up this afternoon but she didn't storm. Our nurse worked with her and he sat her up in bed and she calmed down. She got some extra PT today which was good for her. Tomorrow we see the Pulmologist and hopefully really get a good plan of action for her, in order to keep her out of the hospital for good!!!! I really hope this will be a good appointment and not a waste of time. If you have a special needs child, you know what I mean, MOST appointments with specialists are a waste of time and money. Honestly I've always felt our pediatrician could handle all of that for us so much better. I do know our peds office has been in contact with the pulmologist's office and I think that will help everyone to focus on what we need for Selah. And what we need is something, whether it is long term antibiotics or whatever to keep her out of the hospital and home where she belongs!
Steve had a dentist appointment to tighten his braces and it's right across the road from the mall.... And there is still a sale going on at Macy's...and I still had a coupon....and there were two more skorts that came home with me!!!!!!! Yes I have an addiction....the only time of year I can feed it is in the spring when the skorts come out. You see, there are only a few skorts made, and then they are all sold and by July, you won't be able to find one in a store...unless you get lucky and find one at a thrift store. So last year, I was too busy with buying things for the girls to buy myself any skorts....this year, I've made up for it! LOL but with the sale and coupons, they were only $13 each today!
This afternoon, I went through my closet yet again. I really believe when you buy something new, you need to get rid of something. So I tried on things, ironed things, folded & reorganized and put things in bags to give away. BTW, I like to iron....how werid is that?? Most of my clothes I buy at a thrift store, so it is not hard to part with something bought for $2 or so! I have "my style" the kind of clothes I feel comfy in and of course, SKORTS top the list! I love when I can find something at a thrift store that is "my style" and still looks nice. I'll only buy brand new or name brand things at a thrift store. I love having my closet really cleaned out. Everything is ironed and put together.....it just does my OCD self GOOD to have something in my life organized! I gave some things to our nurse who is working with his church and taking things to the tornado victims in Oklahoma.
Also today I got to go to the Nutrition S'Mart a health food/grocery store. They carry the BEST hummus in the world and it has NO oils in it. (we stay away from vegetable oils unless they are Expeller Pressed) I bought a few days supply LOL they also had a sale on chips..."healthy" chips....LOL we get this one type of chips made with Olive Oil and rosemary that we call "marijuana" chips because they are so addicting! Those chips with a Pepsi....HEAVEN HAHAHAHAHA! Forget the Pepsi....trying to be healthy is hard!
Shad has been finished with his 3rd grade work now for a week:) He finished up 3 weeks before our school lets out so I'm proud of him (and myself!) Steve will be working through the summer finishing up 11th grade and doing his Russian class. ( I told him to take Spanish but no....he had to go and pick a language that has its own alphabet! ) Actually I'm proud he is taking Russian. It's because he went to Ukraine and learned so much of the culture and of Russia too. Ukraine does have its own language but in our area, only Russian was spoken except in court, that was all in Ukraine. Our family feels a strong bond and love for Ukraine.
So a quiet day, everything is ok but I'm still worried about Selah. I'd like to be seeing her getting better quicker, I think in my gut I'm afraid we'll end up in the hospital still. Please continue praying for her and that our appointment tomorrow will give us some real solutions to this problem of getting sick every two weeks or so.
Please do not forget about our orphan of the month, we have raised $610 so far....I'd love to hit $1000 for her this month!!! That would go a long way in her adoption!!!
Thank you all for your prayers, giving and sweet comments to me. You really encourage me more than you know!!!
Hi, I am a long time reader, usually don't comment. Are you aware of the Leong family's story? (kateleong.com) Their son with special needs died suddenly in March and they are trying to sell his hyperbaric O2 chamber. She posted this on FB today:
ReplyDeleteHave you ever considered buying a Hyperbaric Oxygen Chamber for your home? We are actively trying to sell our Vitaeris 320 made by Oxyhealth that we had great luck with. Our asking price is $9,000 all included. We truly feel it helped Gavin a lot. If you are sincerely interested, message me privately for details - not in the comments. We are not looking to give it away, so serious inquiries only, please. This is a big investment. Thanks!
Just wanted to make sure you were aware :)