Night update on Selah, keep praying!

Selah's nurse and I took her to her pediatrician early this afternoon.  He was wonderful as always!  Dr W is just the best doctor to work with a family to help their child.  He sent us off to the lab for blood work and a chest x ray.  He tested her for the flu to rule that out. He had her secretions checked.   It seems she just has a bit of an infection, just starting in her trach.  He started her on an antibiotic, a steroid, and eye drop because her eyes are red and watery (not allergies) and a nebulizer.  After all of that, right when we got home with her she stormed....not a bad one and she quickly came down from the 160's with her medicine.  We think she had a bit of a delayed emotional reaction to everything. 

Tonight her heart rate is in the 70's and 80's and she already is looking better.  We really feel like all of this has been "nipped in the bud" hopefully and she will not get any worse.  It's right at the 2 week mark.....we are going to see ENT about putting her on a preventive medicine until we can get her worked off the trach.   It seems to be something she needs.  So thankful that we know evidently she will be off the trach ( we all think she will at least) and we won't be dealing with this anymore.....one day! 

It's hard to deal with this but I am so very thankful for medicines to help her when she needs it.  Thinking about how sick she could get, made me very thankful that there are meds that can help her.  Before Sam I didn't think much about medicines or doctors.....NOW I do and it's a real blessing to know your child can be helped.  I get irritated very quickly if we are in a situation where I do not think medical care is up to par.  I do my best to ensure those situations do not happen often with my kids.   But on the other hand I am surrounded by some wonderful nurses who work with Selah and some great doctors who work with all my kids.  We probably have one of the very best pediatricians in the state of Florida.  I've always been appreciative of Dr Whele and his staff at Watson Clinic but today I am overwhelmed with gratitude towards them.  He was leaving early yet took the time to see us as the last patient, although he had to be somewheres else.  Selah takes awhile to go through everything and get all the orders on the computer etc...  He took the time, was not impatient with us at all.  His staff, are just as wonderful and caring.  They never seem frustrated with me for calling them, they are always helpful and kind towards our family.  Today they all worked together to get everything done to hopefully avoid Selah having to go in the hospital this weekend!  It would have been easy enough to not put all that effort into her situation but they went the extra mile (or two) for her and for us and I appreciate it.  They have always been like that for our family.  I can't say enough how much easier they make our lives by being there to care for our children.  God bless all of them and especially Dr W!!!    Hopefully all the efforts will not be in vain!

So please keep Selah in your prayers, hopefully she will respond well to the medicines she is on and for once, not need to go to the hospital!  She regresses when she goes in, in so many different ways.  We can't be with her all the time and that is very hard for me and I think for her too, so it would be so much better if we can ride this out at home.  The good thing is we have 24 hour nursing, that is just focused on Selah.  So it's more than just me and Jon taking care of her, we have several others who can notice if anything changes.  That is a true blessing!  We are hoping for a good night for her with no issues!