With all our peeps (we weren't able to get Selah's wheelchair down there the ground was too soft)
But who would have imagined 30 years ago all that would have transpired between pictures? Certainly not me!!!
Is this picture of Sarah beautiful or what? I took it at the barn before horse back riding.
Sarah had an EEG just to rule out possible seizures. Both of her diagnosis Peter's Anomaly & SOX2 has seizures as a problem. She is was recently tested for Rhett's Syndrome & it too has seizures as a possibility. Sarah sometimes makes funny little movements but we didn't really think it was seizure related and thankfully it is not! The only issue the doctor saw was a slowing down of her brain waves in the back section of her brain probably related to her eyes. People think of the eyes and brain as two different organs and technically they are but are very closely interrelated.
Sarah did so good- we were afraid she'd freak out with the cap and electrodes on her head but she did wonderfully. I did have to hold her hand the whole hour! But it was ok! Then we stopped and got ice cream and she was very happy
The next morning we headed out for North Carolina. We stayed in a friend's condo on Sugar Mountain near Banner Elk North Carolina,
We stopped alot on the way up. This was on Brown Mountain
This is the condo we stayed in (8th floor) I took this picture from Grandfather Mountain)
2 bedroom- 2 bath full kitchen (everything you need to cook) laundry room and balcony. It was amazing!!!! It sleeps 6-8
Just for clarification these next two pictures were taken without parent's permission or knowledge! And these two grown boys of mine got yelled at! But they are great pictures!
Down the mountain is a small museum and zoo But Sam and Sarah enjoyed the rocking chairs and warmth
We woke the next morning to this on the ski slopes
And off they went for a class and a full 12 hours of skiing. I watched Netflex LOL
More our style, I had planned on taking the little kids out sledding but it was so cold and neither of them care to be cold that we didn't do it
The next day we went to Blowing Rock North Carolina
I got brave enough to climb a little but they had two cats there who climbed the rock with no problems. They were strays that had come up and been adopted.
I took these pictures- no filters or edits...unreal!!!!
Then it was back home
Sarah in her Christmas dress
Molly our dog and Gizmo our cat love each other
Shad took this picture one morning near our house
So if you'd like some info about staying in our friend's condo please go to their website. It was amazing and so very comfortable. We cooked all our meals except one so that saved tons of money. They have a washer and dryer in the condo that was convenient.
AND for every vacation booked mentioning our name we get a free nigt!!! So please go to
The family has several adopted children- grandchildren and nieces and nephews. It's a way to bless them and us! Make sure you mention our names if you book and let me know too so I can keep up with it1 We'd love to go back in the summer so we can explore more!!