NO CANCER!

NO CANCER!!!!

San had the tumor removed along with his tailbone last Monday!  He actually came home that day and did ok for a few days before he began having intense pain.  Now it seems we are through that phase thank God.  He still moves very gingerly & doesn't  really like to ride in the car at all  Today is the best he's felt and he rode in the car some-I did take him through McDonalds and that made him happy. 

We are beyond relieved as there was some very terrifying talk regarding the tumor.  i still don't have all the details but will next week when he goes for a follow up visit to the surgeon .  We know tht the tumor had began to grow on his tail bone and there was a vascular connection that is why they did the deeper surgery. 

What a scary experience.  Thank you for your prayers!  

Covid 19 Day 62

During this whole time we've been dealing with an issue with Sam.  He has a tumor on his lower back.  He's been through a lot of testing and no one knows exactly what it is.  Surgery is set for Monday in Tampa.  We've been hampered by the virus but mainly because we were trying to use a doctor and hospital that our pediatrician recommended to us.  Let's just say it was not a good fit.  Maybe I'll tell the whole story one day but right now I'm just focused on Sam. 

  Sam has a deletion in his chromosomes that includes a deletion for a tumor inhibitor called an ING2.  We've known about it for 10 years and it's always been a source of worry.  I"m not a "positive speaker or a Name it claim it person" but right now I can't even go into all the details of Sam's situation and what all has been speculated upon by medical folks and us.  Unfortunately I looked up one thing....I should not have. 

Just pray that this tumor will be benign.  Unfortunately it is a tumor not a cyst as we had originally hoped. 

MOTHER'S DAY

Sam being so good with a mask

So please pray for Sam!  Pray he won't get any sickness from being in the hospital and that the surgery will go perfect and the tumor is benign.