
I get a newsletter called "the MATCHMAKER" MUMS National Parent-to- Parent network Newsletter. I've been getting it since Sam was little and back then no one had ever heard of Peter's so I hoped to connect with another family. This newsletter is for any parent of a child with special needs. It has some liberal leanings and I'd actually called to have myself taken off of the list back during the election of '08 but nevertheless I still receive it. So last night I opened it and read the most
horrible essay I have ever read in my life. It is written by a mom of a child who is retarded. It doesn't give any more info about he child...but it gives plenty of info about the mom!!!!!!!!!
It's called
"The Dark Side" by Jennifer Hamilton. She begins by quoting her son Andy who says "I hate being retarded" and then she goes on to say "I hate being the mom of a retarded child" She goes on to say that many parents have allowed themselves to be pressured into saying and often even thinking things that they don't really feel. She goes on to say that she knows moms who are so conditioned to being brave that they have practically convinced themselves that their child's disability is a blessing. This author writes that a friend of hers recently stated she couldn't stand to be alone with her child (who I presume is handicapped too) for more than an hour and so it gave the author the great sense of relief that she could make a list of her negative reaction, and not dress them up with apologies or explanations but simply to put them down as a statement of where she stands! she then proceeded to list them...
DEATH She has frequent death wishes concerning her son. Fantasies about accidents. fatal but painless illnesses...
BOREDOM Her son bores her and on occasions, the boredom of his slowness approaches pure hatred!
ANGER She is angry at the doc who prescribed the wrong size diaphragm, herself and her husband for having conceived the child and FURIOUS at god for allowing this to happen (Oh now we get God in the picture only because she's mad at Him for not giving her a perfect son)
GUILT She is guilty over the frustrations and restrictions of his life
SHAME She says perhaps self-consciousness would be a better expression because it is not immediately apparent that he is retared, she wished he had some physical impairment that would promote instant sympathy & forestall misunderstanding by strangers. She says she deliberately talks down to him to make it obvious that he is different and thereby spare herself from public embarrassment.
She then goes on to say that "looking back over this list I sense that it's
only a beginning. There are deeper & more complicated feelings that I have yet to recognize....My common sense tells me that others in my situation must have had similar dark thoughts...For my own part I feel that since Andy had the courage to admit the feelings that his disability aroused, I owe it to him to develop with myself the same kind of honesty."
WHAT A SICKO!!!!OH MY GOD !!!!!!!!!!!!!!!!!!!!!! I know as a christian I'm not supposed to hate anyone but WOW I have no nice feelings towards this selfish witch!!!!!!!!!!!!!!!!!!! God help her son!!!!!!!!!!!!!!!!
I'll start by saying I'm
HONORED to be the mom of a retared boy! I don't believe all those silly ideas, that God and the angels were looking for the perfect parents and chose us to be Sam's parents....We live in a fallen world, and sometimes things happen while a child is being formed in his mom's belly. But God created Sam and brought us through a difficult pregnancy & birth and He gave Sam life. Sam is who he is and who God created him to be. I'm even passed the stage of wishing he was "normal" In the beginning, I wanted him healed so bad but I love & accept him as he is. I didn't care about whether he was healed for MY sake but for his sake, to make his life easier. But then I realized, Sam is who God created him to be. God knew that Sam had Peter's Plus Anomaly in his chromosome 17...God wasn't shocked by Sam's disability....Sometimes I don't like to even call it a disability because it is Sam, who he is, and I love him!!!!!!! And having the hope of heaven, I realize that any suffering we go through is not even to be compared to the glory we will have in heaven. For all of eternity, Sam will be completely healed, so what is a few years here on this earth????
So let me counter her writings with my own thoughts on each of these subjects she brought up
DEATH I worry that Sam will die on almost a daily basis, at least a few times a week. Although I know when he goes to heaven he'll be whole but I don't want him to leave me. I love holding him & taking care of him, feeling the warmth of his little body in my lap. I worry that he'll out live Jon & me and his care be overwhelming to his brothers. (although Steve & him have such an incredible bond!)
BOREDOMShe has to be kidding! I'm never bored with Sam! I have so much fun with him and enjoy him so much. He is the silver lining in the cloud of disability! He has enriched my life so much! I've gone so many places and met so many people that I would have never known if it wasn't for Sam!!!!
ANGER If you've read my blogs, I went through a time of being angry after we lost our twins and I NEVER want to be there again! God is sovereign and we are in His hands, come what may! I'm thankful that God gave us Sam. Thankful that all the fertility treatment worked, thankful that he survived prematurity! Thankful that he is my boy!!!!!!
GUILT I did in the beginning wonder if somehow Sam's disabilities were my fault. But then after all the doctor's assessments..DNA testing...etc...I realized it was just something that randomly happens...Before I knew I was pregnant we'd gone to Branson MO and on the way stopped to watch a crop dusting plane for Steve in Arkansas. For a while I wondered if I got some chemicals on me that could have caused Sam to have problems. One doctor was reassuring after explaining all the chromosomal stuff he added "If every woman who had a crop duster fly over her had a child like Sam, the whole Midwest would be full of kids with Peter's " that really helped and made sense!!!!
SHAME Or Self consciousness...Sure I feel self conscious when people look at Sam but not because HE embarrass me ! But rather those people PISS ME OFF!!!!!!!!!!!!!!! (I hope i don't offend you by my strong language) I don't feel a need to "talk down to my son" Actually sometimes I will say to him "some idiot is watching us...." And I say it as I'm glaring at the offending party!!!!!!!!!!!
So those are my thought on this article! I feel very strongly because I do count it as a privilege to be the mother of all 3 of my boys. I am so blessed by them. Just because Sam is different doesn't diminish him or my feelings for him. What if he'd been born perfectly healthy but got cancer , or was injured and became disabled by any number of things? Would that diminish my love for him? NO!!!
Honestly reading that idiot's article makes me fear for her son'! If not for his actually physical safety, at least for his emotional well being! Surely she can not treat him with love & respect if she if fantasizing about his death!!!!!!!!!!!!!!!!!!!! Poor little boy! Although Sam can not disguish that he is disabled he doesn't really speak or have the understanding to know he is different IF he did understand he would KNOW that we love & accept him AS HE IS!!!!
The author has the mindset of this world. It dominates her thoughts and she has given into them. We live in a world that wants perfection, that doesn't value life, unborn, the elderly, handicapped people...it is dangerous. One day that lady may find herself disabled, a casualty of old age, maybe some crippling disease, or dementia ...I wonder if she'd like someone fantasising over her death then???? No one is promised a perfect life, lots can happen along the way. If you don't show compassion, then will compassion be shown to you???
I try to live my life compassionately towards others. That is one thing that Sam brings out of me. A compassion for the weak, sickly, handicapped...not to say I dint' have any before, but NOW my feet are in their shoes, so compassion wells out of me!
I remember thinking years ago before we had kids, that I would never want to have a retarded child. It was just almost more than I could think of to have to deal with. However with time, age and caring a child inside your body, it didn't matter to me if my kid had 3 heads! It was MY child and I'd love it with every ounce of strength I had!!! After I lost my twins, one who was at the least extremely physically handicapped I just cried and cried and told God that I wanted that child NO MATTER what was wrong with it. And I meant it. It was flesh of my flesh, no matter what was wrong with it. Before I had children, I didn't have that crazy maternal feeling.....had NO idea...but after having Steve.......it hit and has never let me go. It's almost supernatural, that maternal feeling that washes over a mom! I had it some after I was pregnant with Steve, but the moment I delivered him and the doctor handed him to me, honest to God it was like "an anointing' I don't know how to describe it but it happened so fast & strong! I wan't a real maternal person before him but in that second, it was like "pixie dust" was sprinkled over me. I can't really use the term "pixie dust" cause it was so strong! More like a barrel of it was oured on my head!!!! Me who'd never really successfully changed a diaper in 30 years of my life suddenly became MAMA! I would have killed over that little baby if I'd had to with no qualms!
I feel that way about my kids so strongly still and especially Sam because of all he has gone through! Believe me, ask some nurses, doctors, teachers, therapists...anyone who did anything that I felt was not in his best interest. they get it from me. I don't even care anymore about what they think of me, actually I never cared what they thought of me but I din try to tone myself down for my poor husband's sake! I guess I should say I'll pray for this lady but I'd really like to "lay hands on her" fast & furiously!!!!!!! God be with that poor little boy!!!!!!