Meetings

Today we met with Dr Aquevella on Sarah's MRi and possible surgery. Sarah has a "kink" in her optic nerve as well as some problems with her retina. Her retina is very uneven, think in some places & thicker in others....so those two things do not make her a good candidate for corneal implant surgery. We had decided if the risk was more than 50/50 we were not going to do it. Well it's alot worse than 50/50 so we have decided not to do the corneal implant. There is some sadness, because we desired to give her more sight since the day we first saw her picture. It was our dream for her to be able to see as well as Sam does.... But on the other hand she will not have to go through with surgery and aftercare/pain and in one sense we are relieved. she has a little sight and she does enjoy and use it as much as she can. We think she sees light and colors. If we were to do the surgery & her eye couldn't handle it , she would probably go black/blind. So we will work with what she has. She is such a joyful little girl, she doesn't know the difference & isn't grieving this. We are sad but think it is the best decision.

We also had a serious meeting for Selah to map out the future....She still is having fevers but once they are under control, then she will have the trach and g-tube put in. She will also possibly have dental surgery here . We were planning on having that done back home as she needs extensive work. We have a very long road ahead. when she is released from this hospital, she will be moved back to Florida and will first go to a hospital or a re-hab as we get our home ready for her. We will probably have to add a room for her, so she is more secure and can have nursing in there. It's alot to take in....

So please pray that the fevers go away. Pray that she will be able to get her trach & feeding tube in with no complications. Pray that she will show enough response to be put into their 3 hr daily rehab program. I'm not sure that she will qualify. Thank you for your prayers!!!!

What a day this has been.....

Looking forward to another day, an eternal day. Remember the old song...

"What a day that will be, when my Jesus I shall see, When I look upon his face, the One who saved me by His grace. When He takes me by the hand & leads me to the Promised Land, what a Day glorious Day that will be....

There'll be no dying there, no more burdens to bear, no more sickness,no more pain, no parting ere again, &forever I will be with the One who died for me, what a day Glorious Day that will be!

Believe me I am looking forward with much hope to that day, tonight...