What a crazy couple of weeks...
Sam was in the hospital Last Monday- Wednesday. He had an ear infection but all his levels got really messed up. Since then he has had projectile POOPING~ not unlike projectile vomiting just with poop~lots of fun. I'm worried that he'll end up back in the hospital with dehydration but he is in good spirits, which is better than his mom! He has been in the hospital every month since May around the 20th, how weird is that? Next month he has to have surgery, I'm just dreading it.
I have a very sick kitty (of my 18 or so) and I'm worried about him but don't have the money to take him to the vet. I could take him but I know I can't afford all the tests that would need to be run. I just feel so bad for him. He's a nice cat. I wormed him yesterday to see if that would help, he seemed to drink a little more broth today but he is bad off. I'm worried that some of the others will get what ever he has...
One of our church members an older man has gotten progressively worse, his organs are shutting down , he had a heart attack, cancer...it just makes me feel so sad for him and his family. My father in law has been in the hospital again and he is in a downward progression also. It's just so sad... Life can be a bit too real sometimes.
I'm just feeling overwhelmed by life today!
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
Sunday, July 26, 2009
Tuesday, July 7, 2009
Too Busy....
What a busy month! I've not been blogging like I should!
Summer has been filled with so much activity that I find it hard to take the time to blog but I'm still here and plan on getting back to blogging on a regular basis soon. And yes I'm still walking!
Summer has been filled with so much activity that I find it hard to take the time to blog but I'm still here and plan on getting back to blogging on a regular basis soon. And yes I'm still walking!
Tuesday, June 16, 2009
Still walking...
Yes I'm still getting up at an ungodly hour to go and walk around the lake four times. This should be 3.6 miles, according to city workers. It seems some mornings like it's 36 miles!!
Then I come home and help Steve mow the church yard. Since we have only 2 push mowers this is a daily job in order to get it all done in one week. If anyone would like to give us a riding mower we'd be so happy!
And you wonder why I've not been posting,,,
By the way I've been killing myself yet gained 1 pound! Oh the joys of being over 40! And I hate when I hear people say " Muscle weighs more than fat" Ok that is just stupid. A pound is a pound! Usually very fat people use that argument!!
Then I come home and help Steve mow the church yard. Since we have only 2 push mowers this is a daily job in order to get it all done in one week. If anyone would like to give us a riding mower we'd be so happy!
And you wonder why I've not been posting,,,
By the way I've been killing myself yet gained 1 pound! Oh the joys of being over 40! And I hate when I hear people say " Muscle weighs more than fat" Ok that is just stupid. A pound is a pound! Usually very fat people use that argument!!
Peter's Anomaly and Peter's Plus Anomaly
My son Sam was born with Peter's Anomaly. It is a very rare eye condition. Currently the medical info suggests there are only 50-100 cases worldwide. It's so rare that the NORD National Organization of Rare Diseases lists it but has no info on it...
The most common symptom is a cloudy corneas which makes it impossible for the child to see out of the eyes. The cornea is basically the wind shield of the eye. If you can imagine a dirty windshield, that is basically what a child sees. There are other problems related to the eye- size, pressure etc.
Our son had corneal transplants which he rejected and now has corneal implants which has given him alot more sight. It is hard currently he has to have 32 eye drops a day!
Peter's Plus is the eye condition plus learning delays, short statue and a host of medical problems. We feel Sam has that also. There is not a chromosomal marker yet so it is not confirmed but he has about 75% of the symptoms.
It's very hard to find info about this condition. I plan on setting up a website to try and help other parents. It was a shock when we found out and no one was there for us so I'd like to be there for some other families.
Saturday, June 6, 2009
Ok I'm in the exercise mode...3 days walking 3.6 miles each morning and eating low fat. Boy I feel good about it! We usually eat low fat because Jon's family history is filled with folks who have had heart attacks, by-passes etc...so he'd like to stay off the operating table! But in my 40's diet alone is not enough. I stay very busy with the children but that alone is not enough to lose weight. I believe walking daily will do it for me. I have to admit it does make me feel good to be out early and sweating:)Plus I know the benefits to my heart and my body. I want to live a long healthy life so I need to continue on this track!
I worry about getting old, having health problems and dying.I guess we all do to some degree but having Sam makes me worry about his future. He will always need someone to take care of him and I want to be that person! Life is different when you have a child with handicaps. Other people don't understand the terror that can grip your heart when you think about that child not having someone who loves him to watch over him. That is my only real worry about the future. I recently was talking to a friend about this matter and he just didn't get it. (of course this guy doesn't even have kids...) The guy was saying things like "Sam would be fine..." I've had other people tell me things like that but not parents of children with disabilities!!!! We all share that particular burden and concern!
So in looking towards the future, that is my biggest concern...I really hope the rapture takes place before I get old!!!
Thursday, June 4, 2009
Exercise and diet
I recently (last night ) decided I HAVE to diet and exercise...so today I walked 3.6 miles and ate a turkey sandwich for lunch and a salad for supper...I have a goal to lose 20 pounds by August 4! We have our church's General Council in Orlando and we'll see lots of old friends and I want to look good! So wish me luck!!!!
Saturday, May 30, 2009
Get to know me list
I was sent this on Facebook. so I thought you all might want to read my answers...
Are you a vegetarian? NO
Do you believe in Heaven?
YES! IT IS MY HOPE!
Have you ever come close to dying?
Yes. iN 97 WHEN I LOST THE TWINS I HAD DIC- UNCONTROLLABLE BLEEDING AND WENT INTO SHOCK. FROM WHAT I'VE HEARD FROM DOCTORS/NURSES 99.9% DON'T SURVIVAL DIC!!!
What jewelry do you wear 24/7? WEDDING RING
Are you eating? NO
Do you eat the stems of broccoli? NO
Do you wear makeup? YES!!!!!!!
Would you ever have plastic surgery? I DON'T THINK SO
.
Have you ever done anything illegal? YES...ONLY A FEW TIMES...
Can you roll your tongue? YES
Do You have a boyfriend or girlfriend? I BETTER NOT SINCE I'M MARRIED!!
Do you believe in Abortions? NO- ESPECIALLY NOT AFTER HAVING SAM- I SEE THAT EACH LIFE HAS A VALUE TO GOD!!!!
What is your Hair color? BLOND NO GRAY THANK GOD!
Do you smoke?
NO WAY!
If you could go anywhere in the world where would it be? TO A BEAUTIFUL REMOTE ISLAND WITH A WONDERFUL SPA!!
Do you sleep with stuffed animals? NO I SLEEP WITH A CORGI, A BIG 23 POUND CAT AND A BABY KITTEN THE SIZE OF A HAMSTER..OH YEAH A HUSBAND TOO AND SOMETIMES SOME KIDS...NO ROOM FOR A STUFFED ANIMAL!
If you won the lottery, what would you do first? GET A GOOD STORY TOGETHER FOR MY CHURCH AND DISTRICT!!!! LOL i WOULD PAY OFF ALL OUR MEDICAL AND OTHER BILLS!!!! tHEN BUY FOR MY FRIEND'S HER ORPHANAGE IN CHINA FOR ALL HER SPECIAL NEEDS BABIES
Gold or silver? GOLD
Hamburger or hot dog? HOTDOG
If you could only eat one food for the rest of your life, what would it be? pizza!
City, beach or country? WOW HARD. I LIKE ALL THREE FOR DIFFERENT REASONS BUT I GUESS IT WOULD BE COUNTRY, BEACH THEN CITY
What was the last thing you touched? MY MAGNIFYING GLASS I NEED BIFOCALS!
Where did you eat last? IN MY KITCHEN
Do you read blogs? READ THEM AND WRITE THEM!!!
Would you ever go out dressed like the opposite sex? NO
Ever been involved with the police? I WAS A PROBATION OFFICER /SUPERVISOR FOR ALL TOGETHER 11 YEARS!
Do you talk in your sleep? NO
Ocean or pool? SWIMMING IN A POOL IS EASIER BUT THE OCEAN FEELS SO GOOD...CAN'T DECIDE
Whats your favorite song at the moment ? THE "NEW" AMAZING GRACE "My chains are gone, I've been set free, my God my Savior has ransomed me and like a flood, His mercy reigns, unending love amazing Grace"
Window seat or aisle seats?
aisle seat
Do you feel you've had a successful life? YES God has been so good to me. My life could have turned out so different but for His grace...I have a loving husband who is faithful and strong, three wonderful boys and all the animals my heart could want. God has been so faithful to me. I got my BA from SEC and lived and worked in ministry in NYC, traveled alot, adopted a little guy from China and am now my husband is pastoring a nice country church near alot of our friends. I had a good career with the state as a PO before Sam ...All in all it's been a good life. Jon recently found an old journal of mine (how embarrassing ) but I had my "life goals" written down. It was SPOOKY!!!! I wrote down I wanted to have 3 kids one adopted...travel. marry a pastor...complete school...so many goals I had met!! Life has had some heartache but it's been GOOD so far!!
Do you twirl your spaghetti or cut it? CUT IT
What is your favorite sport to play? N/A
Basketball or football?
football
Do you drive a stick? NO
Cake or ice cream?
Cake
Are you self-conscious? SOMETIMES, DEPENDING ON THE SITUATION. IF I'M IN "MY" ELEMENT , NO I'M NOT BUT IF I'M IN A NEW SITUATION..I AM
Do you like any of your close friends?
LOVE THEM
Have you ever given money to a bum?
YES
Have you been in love?
Wow, yes!
Where do you wish you were?
I'M SATISFIED MOST OF THE TIME. SOMETIMES I WISH WE WERE MISSIONARIES AND MAKING MORE OF A DIFFERENCE IN THE WORLD, TOUCHING MORE LIVES DAILY BUT WE'RE IN A GOOD PLACE FOR US AND OUR KIDS NOW!
Who's your best friend and why?
My husband, we have gotten so close over the years in a way I never dreamed possible in the beginning of our marriage. Now we even know what the other one is thinking, we may not agree but we know:) Besides him, It would be Angela Harris comstock Sabaria...BFF since we were kids. We don't see each other enough but the deep friendship NEVER goes away! We know each other's deepest secrets!!And we knew each other when we were kids, so many memories...
Have you ever ridden in an ambulance? YES thanks to Sam several times...one just recently when he had the seizure!!
Last gift you received?
a funky flower arrangement with acountry church in it...
Last thing you spent lots of money on?
I try not to spend lots of money on anything...I guess our 2 week vacation in the Keys last summer
Where do you live?
Zephryhills Fl
Last wedding attended...
a real "hillbilly" wedding for this couple who never have attended our church, they just saw us in the phone book and called and asked us to get married here. It was wild. They were 1 hour late, the maid of honor didn't wear shoes...it took alot of self control not to burst out laughing!!!
Favorite restaurant?
Red Lobster
What is your favorite kind of car?
I actually like minivans...they are great
Most hated food(s) ?
Brussel Sprouts; liver
Most loved food(s)?
Pizza, Fried chicken, lemon cake...
Can you sing?
Not too good...
Person on your mind?
Sam- still worried about his health issues..
What's your least favorite chore?
I'm weird, I like to clean I guess I'd have to say the 32 eye drops I have to give Sam every day , that gets hard on hm and me
Favorite drink?
Pepsi and sweet tea (not together)
Currently have a Crush?
no
How long was your longest drive in a car? Zephryhills Fl to Rochester NY for Sam's eye surgery in 07. Or it may have been from New York City to Springfield Mo for a convention in '94
Why do you do Facebook notes?
to connect with old friends
Do you know the Muffin Man?
Not personally
Are you a vegetarian? NO
Do you believe in Heaven?
YES! IT IS MY HOPE!
Have you ever come close to dying?
Yes. iN 97 WHEN I LOST THE TWINS I HAD DIC- UNCONTROLLABLE BLEEDING AND WENT INTO SHOCK. FROM WHAT I'VE HEARD FROM DOCTORS/NURSES 99.9% DON'T SURVIVAL DIC!!!
What jewelry do you wear 24/7? WEDDING RING
Are you eating? NO
Do you eat the stems of broccoli? NO
Do you wear makeup? YES!!!!!!!
Would you ever have plastic surgery? I DON'T THINK SO
.
Have you ever done anything illegal? YES...ONLY A FEW TIMES...
Can you roll your tongue? YES
Do You have a boyfriend or girlfriend? I BETTER NOT SINCE I'M MARRIED!!
Do you believe in Abortions? NO- ESPECIALLY NOT AFTER HAVING SAM- I SEE THAT EACH LIFE HAS A VALUE TO GOD!!!!
What is your Hair color? BLOND NO GRAY THANK GOD!
Do you smoke?
NO WAY!
If you could go anywhere in the world where would it be? TO A BEAUTIFUL REMOTE ISLAND WITH A WONDERFUL SPA!!
Do you sleep with stuffed animals? NO I SLEEP WITH A CORGI, A BIG 23 POUND CAT AND A BABY KITTEN THE SIZE OF A HAMSTER..OH YEAH A HUSBAND TOO AND SOMETIMES SOME KIDS...NO ROOM FOR A STUFFED ANIMAL!
If you won the lottery, what would you do first? GET A GOOD STORY TOGETHER FOR MY CHURCH AND DISTRICT!!!! LOL i WOULD PAY OFF ALL OUR MEDICAL AND OTHER BILLS!!!! tHEN BUY FOR MY FRIEND'S HER ORPHANAGE IN CHINA FOR ALL HER SPECIAL NEEDS BABIES
Gold or silver? GOLD
Hamburger or hot dog? HOTDOG
If you could only eat one food for the rest of your life, what would it be? pizza!
City, beach or country? WOW HARD. I LIKE ALL THREE FOR DIFFERENT REASONS BUT I GUESS IT WOULD BE COUNTRY, BEACH THEN CITY
What was the last thing you touched? MY MAGNIFYING GLASS I NEED BIFOCALS!
Where did you eat last? IN MY KITCHEN
Do you read blogs? READ THEM AND WRITE THEM!!!
Would you ever go out dressed like the opposite sex? NO
Ever been involved with the police? I WAS A PROBATION OFFICER /SUPERVISOR FOR ALL TOGETHER 11 YEARS!
Do you talk in your sleep? NO
Ocean or pool? SWIMMING IN A POOL IS EASIER BUT THE OCEAN FEELS SO GOOD...CAN'T DECIDE
Whats your favorite song at the moment ? THE "NEW" AMAZING GRACE "My chains are gone, I've been set free, my God my Savior has ransomed me and like a flood, His mercy reigns, unending love amazing Grace"
Window seat or aisle seats?
aisle seat
Do you feel you've had a successful life? YES God has been so good to me. My life could have turned out so different but for His grace...I have a loving husband who is faithful and strong, three wonderful boys and all the animals my heart could want. God has been so faithful to me. I got my BA from SEC and lived and worked in ministry in NYC, traveled alot, adopted a little guy from China and am now my husband is pastoring a nice country church near alot of our friends. I had a good career with the state as a PO before Sam ...All in all it's been a good life. Jon recently found an old journal of mine (how embarrassing ) but I had my "life goals" written down. It was SPOOKY!!!! I wrote down I wanted to have 3 kids one adopted...travel. marry a pastor...complete school...so many goals I had met!! Life has had some heartache but it's been GOOD so far!!
Do you twirl your spaghetti or cut it? CUT IT
What is your favorite sport to play? N/A
Basketball or football?
football
Do you drive a stick? NO
Cake or ice cream?
Cake
Are you self-conscious? SOMETIMES, DEPENDING ON THE SITUATION. IF I'M IN "MY" ELEMENT , NO I'M NOT BUT IF I'M IN A NEW SITUATION..I AM
Do you like any of your close friends?
LOVE THEM
Have you ever given money to a bum?
YES
Have you been in love?
Wow, yes!
Where do you wish you were?
I'M SATISFIED MOST OF THE TIME. SOMETIMES I WISH WE WERE MISSIONARIES AND MAKING MORE OF A DIFFERENCE IN THE WORLD, TOUCHING MORE LIVES DAILY BUT WE'RE IN A GOOD PLACE FOR US AND OUR KIDS NOW!
Who's your best friend and why?
My husband, we have gotten so close over the years in a way I never dreamed possible in the beginning of our marriage. Now we even know what the other one is thinking, we may not agree but we know:) Besides him, It would be Angela Harris comstock Sabaria...BFF since we were kids. We don't see each other enough but the deep friendship NEVER goes away! We know each other's deepest secrets!!And we knew each other when we were kids, so many memories...
Have you ever ridden in an ambulance? YES thanks to Sam several times...one just recently when he had the seizure!!
Last gift you received?
a funky flower arrangement with acountry church in it...
Last thing you spent lots of money on?
I try not to spend lots of money on anything...I guess our 2 week vacation in the Keys last summer
Where do you live?
Zephryhills Fl
Last wedding attended...
a real "hillbilly" wedding for this couple who never have attended our church, they just saw us in the phone book and called and asked us to get married here. It was wild. They were 1 hour late, the maid of honor didn't wear shoes...it took alot of self control not to burst out laughing!!!
Favorite restaurant?
Red Lobster
What is your favorite kind of car?
I actually like minivans...they are great
Most hated food(s) ?
Brussel Sprouts; liver
Most loved food(s)?
Pizza, Fried chicken, lemon cake...
Can you sing?
Not too good...
Person on your mind?
Sam- still worried about his health issues..
What's your least favorite chore?
I'm weird, I like to clean I guess I'd have to say the 32 eye drops I have to give Sam every day , that gets hard on hm and me
Favorite drink?
Pepsi and sweet tea (not together)
Currently have a Crush?
no
How long was your longest drive in a car? Zephryhills Fl to Rochester NY for Sam's eye surgery in 07. Or it may have been from New York City to Springfield Mo for a convention in '94
Why do you do Facebook notes?
to connect with old friends
Do you know the Muffin Man?
Not personally
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