Selah's heart rate continues to be high and her blood pressure won't stay in the normal range, it goes a bit too high at times. Please pray that this will stabilize quickly! Pray that she will begin to respond on a consistent basis to the neurological tests. We are crying out to God from the depth of our beings for our precious little girl. She has been such a blessing and joy to our lives these past few months, she fit into our family like she had always been with us. We didn't have one major issue with her adjustment and we love our little LaLa. Please ask God to be merciful to our family and to heal our child. Although she has only been with us a few months, she is our child and I can't imagine life without her!
I want to thank Rochester NY for the outpouring of love. We have always loved this city and Strong's hospital since we started coming here five years ago for Sam's corneal implant and follow up visits. We were impressed with the friendliness of the city and everyone we dealt with. We have such a hig regard for Strong's hospital and for all it (and Dr Aquevella ) has done for our son in giving him sight. Now we are being cared for by the awesome staff here and just are amazed at the level of care and concern our children are getting!!! Thank you Strongs!!! And thank you Rochester for opening your hearts to our family!!!!
I have to thank the Ronald McDonald House here in Rochester that has always been a blessing to our family. They happily accommodated our two new girls this year and gave us a wonderful room. Now they have been there even in a greater way for us. We have a room in the hospital itself where we can take a shower and sleep for awhile. I can NOT say enough about the wonderful sweet spirit of the RMH, we've always felt we were so blessed by their kindness and even more so now!!
Thank you all for your prayers, we go through many emotions throughout the day. This is so hard. When we are in Sam's room and he is playing happily, our heasrts are so glad and so thankful, then we go to Selah and our hearts just long to see her back to normal! I have gone through some heartaches in life, but this morning I felt like my heart was actually breaking ...we love our sweet girl so much, it's so hard to see her like this.....
Sam is doing wonderful and is back to normal with no side affects from this. Our heart rejoices for that and we thank God but we need another miracle!!!!
Today we got to meet the main people who rescued the children, what a blessing that was to sit down with them and thank them!
I want to address some things, I guess many folks wonder why two eight year olds would be in a stroller. Both of them are very small for their age as a result of their different special needs/handicaps. Sam has Peter's Anomaly and short stature is one of the characterises of PA. Selah is very small and we do not know yet if that is because of a certain syndrome or was it malnourishment? We do not know but think it must be part of Selah's diagnosis. We have an appointment for Oct for some testing for her. Tehy both walk, but slowly and don't enjoy walking long distances. So they were enjoying a wonderful walk with their daddy when this happened.
Also my husband glanced at his phone to check the time as we were taking another family to the airport from RMH to catch thier flight home and he didn't want to be late getting back to the RMH. He was not texting as some have suggested. He really doesn't text, just really learned how a couple of weeks ago and hasn't texted since. He just simply looked at the times and in that split second, the heavy stroller began to roll. It was an accident and my husband is devastated...please pray for him as he deals with this.
We are an overly cautious family. We have kept the children in car seats although they are past the age in our state, we never have live din a house with a pool and refused to even look at them when we were in the market, we even empty the baby pool as soon as we are done with it so it doesn't sit on our patio we don't let our kids ride with teenagers, We wear seat belts and check our fire alarms and keep a fire exighuisher right by our bedroom door at night...we do everything we possibly can to keep our family safe. What I am saying if something can happen to us, it can happen to anyone...so be as careful as you can with your children!!!
And cherish the moment, every moment with your family!!! I am so sorry we didn't spend much time with Selah on her birthday. but we were at the hospital from 5:30 am to 4 pm and just had to go to bed early along with the kids who were so tired!!! We had planned on doing something special on Wednesday night but didn't get the chance.. So cherish each moment with your children. Take time for each one every day.... Love them, we are not promised tomorrow! There is NOTHING in this world more important to me than my children, and there are no other folks Id rather be with than them and my husband. Dont let any petty thing come between you and a loved one, Life is too fragile. I'm thankful that Selah knows we love her and I know she loved us and we had won her love and trust...
So again please pray for our Selah!!! So many people are praying...one friend wrote me that she knows God is hearing Selah's name continuously coming up to His throne....thank you so much for the prayers...
