Persistent Vegatative State/ Pondering in my heart

Selah has been diagnosed in a persistent vegatative state (PVS) by the doctors here and was diagnosed in a minimally conscious state (MCS) by the doctors in NY.  There is some difference in the two terms with MCS being better. It is still a coma state but not quite a coma.  From what I read the patiets are still judged on the coma scale for the various testing models.  Some would say  a person in either state is not in a coma per se some would say the person still is to some degree....

If you read about either state, you will know that Selah is not expected to "come out" of this state.  Basically a person has about a 6 month window to recover and if not, then it is highly unlikely....  Selah is almost at 5 months.....

There are times my heart breaks in a way I didn't know it could break.  We went from no hope of her surviving to no hope of Selah coming back to us.  She has progressed some, but I'm not stupid and I'm not a person who doesn't believe doctors either.  Doctors make diagnoses based on what they and others have seen and usually they are right or close to right in their diagnoses.  I'm not one of those foolish people who are always going around saying "Whose report will you believe?  I will believe the report of the Lord"  I do believe the report of the Lord BUT only if God has given me a report to believe.....   the prophet Isaiah in Is 53 is telling the people a prophecy/God's words to them...The scripture actually reads:  

Isaiah 53

New International Version (NIV)

53 Who has believed our message (or report)
and to whom has the arm of the Lord been revealed?
² He grew up before him like a tender shoot,
and like a root out of dry ground.
He had no beauty or majesty to attract us to him,
nothing in his appearance that we should desire him.
³ He was despised and rejected by mankind,
a man of suffering, and familiar with pain.
Like one from whom people hide their faces
he was despised, and we held him in low esteem.

⁴ Surely he took up our pain
and bore our suffering,
yet we considered him punished by God,
stricken by him, and afflicted.

 

In the gospel of John that verse is fulfilled by Jesus' coming....  

John 12:38

New King James Version (NKJV)

³⁸ that the word of Isaiah the prophet might be fulfilled, which he spoke:

“Lord, who has believed our report?
And to whom has the arm of the Lord been revealed

 

somehow the Pentecostals/Charismatics have made that Messianic prophecy into some type of "magical saying"  and as long as they say they believe "the report of the Lord" then things will be reversed in their lives....Um...so sorry, that is not even a little good theology!  It's not even quoting scripture correctly!  

 

So that was our little correct theology lesson for today....

 

So in saying all of that, I'm talking about acceptance of Life....I accept Life...

 

On the other hand, I had a vivid dream right after the accident.  I dreamed that Selah and I were home together alone.  It seemed that it was really bad weather outside.  It seemed that everyone was over at the church, maybe it was a Sunday morning.  Anyhow in my dream, Selah "woke up" "became herself again"  We were sitting in the living room area.  She was still a small girl and it did not seem like a lot of time had passed.  She was back cognitively in a way I understood her being Selah.  However she could not walk but of course that didn't bother me in the dream!  I don't know what that meant, if it meant anything more than an extensive of my hopes....I'm not claiming it was a dream that came from God, but we will know it was if that happens.  It does seem interesting that even if Selah recovered cognitively, she will need surgery on her knees/ankles in order to walk again.  At the time of the dream I had no idea of how her body would respond to the accident.  I've held onto that hope now for almost 5 months.

 

So I don't know what the days ahead hold, as you can tell I'm in a reflective mood.  Please pray for Selah and for our situation....I know so many of you are and we thank you for holding us all up to God!

 

Day 66 Fish Oil Study

Have you ever eaten crow?  I may have to...got Selah's blood work back on the inflammation and she is at .6  that means she went down from 1.1 .  Not at all what we were expecting.  It does not line up with where she is at.  She should not have regressed with the level going down.  It is actually too low at this point and we are cutting back on her fish oil by 5 ml a dose! 

She has had a great calm day although her tone seems high.  We do not know what to think about this new info.  We also did find out something else interesting, not only did the MRI show less damage in the white matter.  Also the front of her brain looks better.  How is that for me giving you the unscientific news?  I don't have the report with me so it is hard to remember but it is a good thing.

With all this good news, I feel she should be doing better overall.  We can't explain it.  The hospital certainly ran every test to check on anything that could possibly be causing this regression.  There is nothing....

Today we were told our primary insurance Blue Cross will not allow her to stay here past Friday...for some reason I am completely calm about this.  No there is no nursing set up for her.  There are lots of folks working on it.  We have put in an appeal to BC so we are waiting on many people to get back to us.  I don't know if this is supernatural or if I am past worrying ..... but it is very odd!  Now I can not imagine taking her home on our own on Friday.....but.....

Today I finished the book "Reckless Faith" by Beth Guckenberger.  I would recommend it....
In chapter 10 she writes
" Faith is the gas that makes your spiritual car go.  How reckless can your faith actually get?  It's measured by the extent to which you really believe God's plan for you is the best.  It requires the kind of faith that believes that God's words are not empty promises, meant for someone else.  It's the kind of faith that says "Everything will work out in the end"`even if "the end" is eternity.

Over and Over again God teaches me that for those with reckless faith, the story is never over.  It's childish to throw in the towel, pout, get frustrated,or walk away.  Life's isn't a puzzle that too hard or a toy you can't figure out.  But so often, I'm tempted to lose faith when I'm confronted with a setback.

When I relax my control on the plot line of my life & give in to the journey God has prepared for me.  I lose myself in all the great stories swirling around me.  When I stomp my feet and say "that's not fair!" or "it wasn't supposed to happen this way" then I run out of gas and my spiritual journey stalls.

But God is teaching me, one child at a time, that He is the Author of life and can redeem and write any story He wants"  (boldness added by me)

This particular passage really spoke to me.  So much so I just typed it all out for you to read.  It mirrors my heart right now.

You know my life wasn't supposed to be like this....this accident, these last 5 months away from home~ tomorrow is 5 months since we left home....now this, going home with a very sick little girl....   I serve God, I try to be faithful, I'm a good person... I've embraced the difficulties that God has allowed in my life believing it will work a bigger purpose....  Somewhere along the line, God could have stepped in....He could have changed things, but He didn't completely do what I wanted Him to do.  I should be home right now getting supper but instead I'm in a hospital room with my husband sitting Selah up in her bed as her heart rate rises, my kids are at the hotel waiting for us....no this is not what I would have wanted...but I'm learning to let go... God is in control, He can write this story,  I am not in control of how things work out. 

When we were adopting the children, I knew that my life would change.  There were a few times that I would have the feeling that "my life as I know it is over"  but then I discovered, it really wasn't much different than the life we already had!  Now I think it will be much much different....  I had decided that if God gave us the children, He would give me the grace to serve them the rest of my life.  I thought serving would mean one thing...it's going to mean something quite different once we get home....It's scary...you have NO idea how afraid I am.  I already have more responsibilities than most folks have and I've gladly embraced it.  These new responsibilities....it is a scary thing.  But the same God who prepared us for the two new little girls will prepare us for this next step.  I have no doubt of that.   Does that mean I am doing cartwheels down the hall?  Not really!  It is a heavy load on my shoulders and on my mind.  In the natural, I have NO idea how things will all work out.  Not just the few things we have to get clarification on but life, day to day....Life.  I didn't ask for the life that lies ahead but I know one thing...I'm going to trust God and I'm going to serve Selah and my other children. 

I'm learning to let God write the story of my life...as a young woman, I had a PLAN for my life, really a plan with 5 yr and 10 yr goals....and I met those goals....  Now I don't have a plan for tomorrow....we had a meeting today and I was asked "what's the plan?"  I wanted to start laughing hysterically...I haven't had a plan for the last 5 months and not much of one before that!  I've been "winging it" for the pat year, not knowing where I'd be the next week.  

I'm not saying NOT to have a plan for your life don't get me wrong!  But I'm just sharing what I'm learning in my life. 

So the "story is not over " for us or for Selah!  I don't know what the story will read but it's not over yet....

Please pray for us and Selah!

Day 65 Fish Oil Study

Selah had a good day today.  She  got very angry when we put her arms splint on.  She did something we had never seen her do.  She raised her arm, with elbow bent and brought it down several times. like a judge would!  She evidently got so mad that her heart rate went up to the 160s but since it was because she was upset, she calmed down after the splints were taken off.    We are using these splints because at times her hands/arms are drawing in.  Last week we had that odd episode where her arm was out to the side.  That was very unusual and hasn't happened again.   If anything she tends to draws her elbow in towards her sides.  We first noticed it right before we left NY but it has gotten worse on some days.  She did prior to the accident, have a strange way she held her arms.  It caused her to be diagnosed with Cerebral Palsy in Ukraine.  Our pediatrician and the therapists who evaluated her when we got home did not feel she had CP, she had full range of motion she just had an unusual way of moving.  At first we thought she was just putting her arms/hands into the old positions but it seems she has gone beyond those positions. 

Last night I bought several of the heat up thingys....Selah had some cute ones that I had bought up in NY.  But she had an accident on them and they had to be thrown away.  I found her 2 that are like long scarfs that can be wrapped around her legs.  I also got a heat up neck pillow.  Today I warmed them up and used them on her legs.  She sat up in her chair for about 45 minutes working with the heat up pillows.  I was able to get some good range of motion on her legs.  When she sits up in the car seat, gravity helps bring her legs down into a more normal position.  Then the heat and weight of the pillows help her legs relax some. 

We are still waiting for the MRI results, we were in and out today so we missed getting the copy.  We are also waiting on the blood test results. 

We have been waiting on get Selah's nursing set up.  Since we live in a rural area, it has been difficult to say the least!  We've had a social worker here working hard on it for weeks and she has just been given the run around by different agencies.  So today I called the Governor's office....I was listened to and then sent to the head of the Medicaid dept there in Tallahassee.  The person I spoke to said our case was serious and they would work on it.  Within the hour I got a call from an administrative person in our county who assured me that would work on our case tomorrow (it was very close to 5 pm)  Every agency has said because of where we live, they can't service her.  Since they all have contracts with the State to care for patients within our county, there is some obligation to do that!  I understand contracts with the state ....at one point I worked for a contracted agency and then later when I worked for the state, I worked with contracted agencies and did reviews on them.  I also know what happened when we'd get a call from the Governor's office regarding a case.....we JUMPED!   I know I worked within the criminal justice system but it is the same overall rules.  So I'm not as worried as some might be over this...I feel like it will be resolved.

I'd been thinking about the flu vaccinations and read today how bad the flu season is this year so I found where we could get flu shots.  We went to the Health Dept and we all got our shots.  The nurses and the staff there were amazing and so kind.  They got us in and out as fast as they could.  We have been getting flu shots for years, all of us and never have had any issues.  It's late in the season to get flu shots but we have been a bit busy.  I would encourage you all to get your flu shot.  I grew up not getting vaccinated for anything.  I almost died from the whooping cough, I was sick for months and months.  I had every childhood disease....it was AWFUL!  I am the absolute opposite of my family, my kids get every vaccine out there! None of my kids have ever had any problems from any shot, not even a fever....  And even if they did have a slight reaction, it is still worth it to be protected!!!  And my poor adopted kids....they come home and go to the doctor and their first visit included 6-7 shots!!  Today we were even able to get Sarah's Hep A and B boosters! She wasn't too thrilled with it!

We had some friends come over tonight and then we finished the night watching  "Domesday Preppers" ~ my favorite show:)  And then Diggers, makes me want to go buy a metal detector!  Looks like fun!

Several folks have asked about my back/shoulders.  I am still having problems with it!  A friend of a friend sent me a gift for me to go and get a massage and I did last week at http://www.southerncomforttherapeuticmassage.com/#  thank you friend!  And thank you Southern Comfort, I had some relief for awhile!  Jon wants me to go to the doctor but honestly I don't even know where to start....maybe if we ever get home.....  I hope to go back to Southern Comfort thanks to my friend's generous gift!!!

Please pray for Selah...she is still not at the point she was at before we moved her.  We are wondering more and more if the regression is not tied to her whole institutional autism.  Could she be so upset from the move that she has regressed?  That certainly doesn't seem to explain everything....I just want to get her home but I want to be safe about it.  I know my limitations....I'm only one person, Jon works two jobs and can be called in to the prison for an emergency ( and has been called in numerous times)  and of course as a pastor, he has to be ready to go to member's if they need him!  We need reliable nursing care!

Just pray for her, we want her to interact with us more, we want her back to "SELAH"  We need God's mercy!!!

Day 64 FOS~ 7 years Gotch Day for Shad!

GREAT news today....sit down:)  Not only is Selah doing much better~no storming~ sat in car seat for almost 2 hours while I did range of motion and stayed calm...  BUT her regular doctor was back and gave us more info on her MRI.  There is IMPROVEMENT in her brain since the last MRI done back in early November before the start of the fish oil study!!!!!!!!!!!  I've asked for a copy of the MRI report so I can explain it better and figure out what it means but I got the impression that this was not a usual occurrence:)  I believe the improvement is in the white matter area/PVL which is great!  I'll have more details tomorrow.

Her blood work got to the lab too late to be ran today but we should have the results of it tomorrow also, regarding the inflammation level.  Right now we know things are being done correctly and we can tell from how well she is doing.  When we started the fish oil in NY, there was overnight improvement as far as no storming and a calmness/alertness.  It seems to be like that again.

I am so thankful that last week is over.  Last Thursday night I could not have felt any lower and hopeless....thank you for your prayers!  They gave us the strength to get back up and keep going.  I am so thankful for God's presence.  Living like we are, it's not like I have much "alone time" so I've learned just to reach out to God in my heart, even when I'm busy doing something else.  I just kept calling on God, just like on the day of the accident...."Oh God Help"....  and He did!  Sure we opened a new bottle of fish oil BUT He had helped me already!  If I didn't have Him with me last Friday when Selah was storming & vibrating all day I could not have stayed at the hospital but we made it through and then on Friday night opened the new bottles and now things are so much better again.   So we think somehow the fish oil or the mixing agent get contaminated during the two weeks or so it is used, that's why we see these big improvements when a new bottle is open.  We never had this problem before, and don't feel it is the fish oil but the way it is handled.  We think it all has been resolved now. 

Tonight I realized that today is Shad's "GOTCHA DAY"  Today marks 7 years, right about this time that I met my little guy!  (it was 9 am China time which is 12 hours ahead of EST- so actually I met him on the 8th in China but it was the 7 th here!) 

This is Shad & me seconds after we met:)  He looks a little concerned....."are you my mother?"  YES!!!!!  I am!!!!!

I went to China alone.  Sam was not yet 2 yrs old and got so sick so easily we were afraid for him to go and we were afraid to leave him and go by ourselves.  Right at the end I almost took Steve but the swine flu was really bad that year and we just felt like it was the safest thing for me to go by myself.  It made a woman out of me LOL!  There was another couple there, the wife had her husband, her mom and her teenage son and she cried everyday...I thought I was going to have to slap her...for real!!!

It was a lonely time for me but an amazing one... walking into that cold Chinese orphanage and walking out with this funny little boy who'd stolen our hearts.....what an amazing day!  I will never forget that day!  I realized in just about 3 seconds that...
A.  Shad wasn't completely blind
B. He probably wasn't mentally delayed either !!!  (as he tried to take the lamp apart)
C.  He liked to EAT!!!!

Shad's first American word was MORE  as in "more food"  he ate grown men under the table.  He was the hit of the adoption group (as he always is the hit of any group)  and the men liked to see how much he'd eat....Me....well I was changing the diapers (with WORMS in them) after all the eating...I QUIT eating LOLOL  (for real~ saltines were it for me for about 2 weeks!)

Shad has been a blessing to our family.  It's hard for me to remember he was actually adopted, it doesn't seem possible this kid,, that is so like his dad, came from the literal other side of the world!  Chengdu China is almost exactly on the other side of the world from Florida!   He is the life of any party and he has never met a stranger.  Shad (short for Shadrach) has an incredible self confidence, he just walks up to people and starts conversations.  He finds himself interesting and is sure that others do too!  He has an unique ability to be himself and not feel under pressure to be any other way...I adore that about him!   Shad has a way of dealing with life, that goes far beyond his 9 yrs.  He is an "old soul"  We've had some deep conversations about how he came to be adopted into our family.  The first conversation came at just 4 yrs old...I wasn't ready.... but he has dealt with questions.  I think of his birth parents and who they missed out on knowing...just because he was not "perfect"   But we have been blessed to know and love him for these past 7 years.  We're so glad he came into our lives.....we are the family that we are, because he is a part of it!

Shad had some gift cards to spend so we went Toys R Us and he bought himself some more Nerf Guns.  He has quite the arsenal going!!  Steve gave him a gift card of his and he was also able to get a Xbox Lego Game Batman 2 DC (has all the comic heroes in it)  He is a happy boy tonight:)  I also told him today was Christmas Day for Ukraine so he said he was helping them to celebrate:)

Today is also our 7th year anniversary of Jon pastoring GRACE CHURCH!  Yes his first Sunday was actually the day ( Monday in China) I picked up Shad from the orphanage...Big day for the Clanton family!!!!!!

So tonight I am a thankful woman!  Selah is doing much better and this is a great day to celebrate 7 yrs of Shad being our son!!! 

What is Ministry?

This is one of those posts that I've been rolling around in my head for awhile.....these are the kind that usually get me in trouble LOL....

What is ministry?  Ask that to people and you'd get all kinds of answers.... 

Jon & I have always been "different" in our approach to ministry.  We've just lived our life and it has happened.  When we were younger we were taught the steps of "how to be in the ministry" but the steps didn't ever work for us because that wasn't who we were.  Jon never "pushed" himself forward in ministry circles.  When we were young, I used to encourage him to do "the things" all the young ministers did, go to meeting, "network" etc...  I soon learned that wasn't going to happen with Jon.  Not that he was disrespectful of others, he just had no time for it.  He was too busy doing ministry to try and meet someones expectation of "ministry"  He was doing the ministry no one else wanted to do.  He didn't have to worry about competition LOL  there were no lines of ministers waiting to go preach at the homeless shelters or the jails or at the  little country churches!  And that was where his heart was and is now! 

I can't help but laugh sometimes at some of the various mailings and emails we get..."how to build your ministry"....is that too funny or what?  Maybe I'm the only one who gets the irony of it. 

We are not interested in being the CEO's of a ministry:)  God didn't call anyone to "market" ministry, just to do it.....Sure you can work it and build numbers but is that truly ministry?   When I see "ministers" who have body guards or "armor bearers"  I have to roll my eyes and laugh, it's sick to me.  If you are so important you can't spend time with folks in your congregation or who come to your meetings, I think it's time for an evaluation..... past time!  God didn't call anyone to build empires!

God called us to faithfulness.  He didn't call us to be "successful" by the world's standards.  There is nothing wrong with growth!  Don't get me wrong but our striving should be after what God wants than what brings us "validation" as a minister.  I know plenty of pastors who will do just about anything to bring in people, "the ends justify the means"  They will preach a sermon that doesn't challenge the congregation in order to keep folks...  it's tempting as a pastor to skirt around various issues so you don't offend but just remember you aren't preaching your bible you are preaching God's bible and let the chips fall....

For example I have some dear friends who have chosen to live "inmoral lifestyles, I love them, I do not preach to them but I believe the bible teaches that is a sin.  I didn't write the bible...God inspired "holy men of old" to write the inspired word of God.  (  Read 1Timothy )    My thought is I chose to believe Gods word whether I like it or not.  I live according to the bible, I don't try and make the bible say what I want it to say.  Too many people today are afraid to have any standards.  They say "who are you to say what is right or what is wrong?"  I'm no one to say in myself to say what is right or what is wrong but I stand by the Word of God.

I hear the argument all the time that the bible was just written by men....usually that argument comes when you talk about something that someone doesn't like in the bible.  But then that same person will quote the bible when it benefits him!  Tha's not right....either take the WHOLE bible or don't take it at all.  Don't pick and chose scripture....  I know folks who regularly sin ( according to the bible) but they ask for God's blessings in their lives.  It's like they want only what they want from God without having to have any responsibility on their part!  So many parts of scriptures have promises to us but they also come with requirements to get those promises...such as this verse

16 Wash yourselves and be clean!
Get your sins out of my sight.
Give up your evil ways.
17 Learn to do good.
Seek justice.
Help the oppressed.
Defend the cause of orphans.
Fight for the rights of widows.
18 “Come now, let’s settle this,”
says the Lord.
 “Though your sins are like scarlet,
I will make them as white as snow.
Though they are red like crimson,
I will make them as white as wool.
19 If you will only obey me,
you will have plenty to eat.
20 But if you turn away and refuse to listen,
you will be devoured by the sword of your enemies.
I, the Lord, have spoken!” Isaiah 1:16-20

 

 

So I went from what is ministry to this ....but the point is to give a pure message, not a watered down one. 

 

There used to be quite the controversy in our christian circles about whether every believer is a minister (of course they are) or if there was a special calling to the ministry (of course there is)  So if you are a full time minister, if you have have that calling, you have that responsibility to do the work of ministry NOT building yourself or your name up.

 

 

We were asked when we were gone so long from our church Grace Church how would it get along without us?  Well our church was not built on Jon's personality!  It was started years ago before either of us were born and hopefully it will be going on after we pass away!  Our church is not a large church but the folks were faithful without anyone telling them to be.  Why?  Because they were there to serve God and God wasn't stuck up in a NY hospital!

 

But if you are a believer you also have a ministry, by living your life to glorify God.  By reaching out to others, by being kind and loving.  One thing I've learned over the years is to just care for others.  People may chose to live their lives different from what the bible teaches BUT that doesn't mean you can't love them and be their friend!  I have friends of various backgrounds and religions, I love them and they know it.   I'm not trying to "get a notch on my belt" to get them "saved"  I'm friends with a Wicca priest:)  We are really friends, Jon & I enjoy him as a person.  He knows where we stand and we know where he stands and because we like each other we have great conversations:)  I have a friend who is a Jehovah Witness.  We worked together for years and enjoyed each other's friendship.  She wasn't allowed to eat in public with a non Jehovah Witness so we'd pick up lunch and eat at our desk.  I have friends who are Muslim, Mormans and even an Agnostic or two:)  Don't shy away from someone just because they believe different than you and don't try to shove your beliefs down their throats.  No one like that!  Just be a friend.  I'm not saying not to share what you believe, but enjoy the person don't beat them down!!   

 

So what is ministry?  It's reaching out to others, daily, showing love, showing God's love and compassion to others.  It's not living within a "Christian bubble"  Alot of ministers I know, don't really know how to live outside the bubble.  They don't know anyone but Christians....  there time is filled with "christian things"  Jesus didn't live in the temple...he was a friend to sinners....remember we are all sinners....  I almost believe that all ministers should have to work a secular job because in this day and age too many insulate themselves from others and from the real world.  (see I told you too much thnking gets me in trouble LOL)  It's not about wearing a suit and a tie and calling each other Pastor.  It's about reaching folks and loving them! 

 

So I know this is a bit different post than my ones about Selah but I started this blog in order to write what was on my mind.....

 

 

 

Day 63 fish Oil Study

Another good day for Selah.  No storming at all, she's been relaxed and alert according to the nurse.  Her tone has been better also.  We'd hope to get back in time to go see her but we drove up in a rainstorm and we have to get all of Sam's meds done tonight. 

We were able to be at our church this morning.  Jon also did a service at the prison.  Our house is completely ready for Selah now.  Everything is in place except for the bed and other stuff that will come when she does.  What a load of my shoulders to have everything done.  It was a big job!  Thank goodness for Val getting the house so clean!  It made it easy to put everything up!

Tomorrow we hope to get the results of her blood test for inflammation.  That should answer many questions for us.  If it is higher than 1.1, we will know that the fish oil has not been handled correctly at some point.  We feel that it is being handled correctly now.  Of course we are using a new bottle now also.  When Selah was tested prior to start the fish oil, her inflammation level was 15.0  In two weeks time it went to 1.1.  Now we will see where it is. 

A friend gave me a good idea....if you live in our area and are a nurse or know some home health nurses and you'd like to work for us.  can you contact me at  theclanton5@aol.com  ?  I can put you in touch with the agency we are working with.  They are finding it difficult to find 24/7 nursing for us due to where we live.  I don't know how everything is arranged but the agency can work out all the details.   We'd like it all set up before we leave!  And we want to leave soon!!!  So rack your brains my Florida friends we need help. 

Thank you for all the messages I've gotten about churches praying for Selah and us this weekend.  Thank you all so much!  I can't explain how prayer helps but I believe it does!  I feel strengthen and ready for this coming week!  Last week was very hard.....

Day 62 Fish Oil study~ much better day!

Thank God, Selah had a much better day today!  We went in this morning with all the kids and she was turning towards them. She was much more aware and much more relaxed!!!!  Her tone was good and she was looser.

We left for home and called several times.  The only issue she had was around 8 pm, her heart rate went up to 140 and the nurse decided to give her Valium.  It was a new nurse, we probably wouldn't have asked for it and just watched her.  I think she was being changed and just got upset.  All in all a much better day. 

Obviously we feel this is all related to her fish oil.  The last bottle was not consistently kept in the freezer.  That is the 'best practice".  This one will be.  Perhaps the other one got contaminated...who knows but we saw a difference last night as soon as she got the dose! 

Hopefully we will find out Monday her blood test results!  Then we will know if this regression is linked to a problem with the fish oil. 

We came home to the cleanest house ever!  My sister in law had done our carpets and everything else!!!!!!!  Thank you Val!!!!!   I don't think this house has been that clean since we moved in LOLOL!  What a weight off me:)  My friends had cleaned up for us, but in all the working and pulling things out....we had really messed it up!  She even cleaned the windows:)  What a great sis in law!!!!!

So please pray for our little girl as you go to worship tomorrow and if possible ask your church to pray for her.  Pray that she will be touched by God and healed.  We still  pray for God to deliver her....   I keep holding on to the dream I had right after the accident....  It was so real.  I dreamed that she and I were in our house and suddenly she was "back" mentally  The only thing that was wrong was she couldn't walk....  That would make sense now to me.  Her legs/ankles are so affected that she will have to have surgery.  They are pulled into a ballerina pose, very uncomfortable.  At the time of the dream, the whole feet/leg thing didn't make sense to me.  Her legs were just getting tone and we did not understand the ramifications of it.  But now I understand.  I pray that dream comes true, we can work on the feet/ankles!!   Pray that our nursing situation will work out quickly so we can go home!  Her room is ready and waiting for her! 

Thankyou for your prayers!  They have given us renewed strength!