Tuesday, April 30, 2013

Home from the hospital 3rd time this month.......Pictures from Torez Ukraine WWII Battle ground

Selah is home...I'm sure I'm not well liked at St Joe's....  She has been storming every 12 or so hours there.  That is something NEW for her.  Yes she stormed back in NY until November when she started the fish oil.  then she had some storming in Jacksonville at the "rehab" in January but we traced that back to the fish oil being kept out and her have a some bacteria growth in her trach, much like now.  Then this month during her 3 hospitalizations, she stormed in the ER when she was being admitted on all three as she was sick.  Last time she stormed a few times in her room but when it was time to go home, she was fine.  This time she has stormed so much. 

What ticks me off , is instead of listening to my concerns that something is going on PHYSICALLY with her, the doctor puts everything back on Selah, saying 'well this happens with kids like her" BULL CRAP!  It's not a neurological problem---it is ---but it is not....she didn't have this going on till Friday and all of a sudden it comes out of the blue?  Conveniently while she has pre pneumonia, pneumonia or bronchitis....depending on which doctor you talked to...

I certainly spoke my mind today about how I felt about her going home.  This is something new for her and not good.  It seems tied up with a physical problem that no one can agree on what she has.  Storming can be dangerous, if her heart rate went up and stayed up, she could have a stroke, seizure or a heart attack.   Living out in the country so far from a hospital that would know how to deal with her, is scary.  We have a hospital in town but I'm not sure they'd even know what to do, not all doctors are used to dealing with this.  I really hope I'm wrong and she will be ok once she is home....we shall see.

Really worried about having to leave her and go to NY with Sam on Sunday.  It seems like we will have full nursing which is good for Jon.  What a stressful time.....  Please keep us in prayer!

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Well a year ago, was a holiday in Ukraine, we were allowed to see the girls but it was a quiet place.




 
Look how Sarah is on me:)

 
 

 
 


 
Selah

 
Look at who is in the background...it's Lucien, the little girl that many of you donated to.  I believe this is her.  She was hunched over in the crib, but would look at us and smile.  She is now out of the orphanage and waiting for her Visa to get in to the US.  It takes a few days to get all that paperwork done.

 
 


After our time at the orphanage our driver took us to a WWII battle ground near Torez.  It was an important battle ground for the Russians/Ukraines against Nazi Germany.  It was an amazing eerie place.  So glad we got the chance to go there.  The Ukraines are very proud of their fight in WWII.  Unfortunately their freedom did not come for many years after...

 
 

 
 

 
 

 
 

 
doesn't this look like a battle ground?

 
Here the guys are with our driver

 
 

 
 

 
 

 
Can you see us at the feet?  We were high up

 
 

 
 

 
 

 
 

 
I love this picture of me and Jon...

 
 

 
 

 
 

 
 

 
 

 
 

 
1941-1945
 
 
 

 
Gives me chills to think of how many lost their lives here

 
 

 
 

 
the names of the fallen, there were also names on the other side and the ends....that is just the Russians/Ukraines

 
 

 
 

 
 

 
 

 
 

 
 

 
 

 
 
Ok WHAT is this?  We stopped here on our way back, we were far out in the county.  It looks like a stork in a small village.  there was a well
 
 
the well
 

 
Jon by the well with water, he drank some but i was afraid to




 
these are man made mountains from the coal mining
 
 
 





 

 
Look there is Lenin with his flowers....at a run down store in the middle of no wheres

 
Back at the apartment

 
Pepsi, grill cheese and chips!  i was happy

 
 
What an interesting day although no one at all spoke English to us all day.  I did get to sign the guestbook at the Battle ground and thanked Ukraine for its sacrifice during WWII that surely helped the war effort. 
 

Monday, April 29, 2013

Pray for Selah and Sam Church in Ukraine

 
We are not sure what is going on with Selah.  The doctor told me now she is not positive for anything, no cultures are growing and they are very doubtful that the spot on her lung is anything...No fever, no throwing up...   We should be glad right?  We are NOT!  Something is off with Selah.  She is storming every 12 hours, her heart rate is up and down but not stable, today her Oxygen level was from 92-96 which is low for her.  The doctor wanted to send her home today and I said NO!  They've brought in neurology and infectious disease...but no one thinks anything is going on but me and her regular nurses.  The plan is for her to come home tomorrow.  I don't know. 

Today they took her for another lung xray and she came back in the room, starting to storm.  Thankfully I'd thought to bring her wheelchair and she actually calmed down enough that she didn't need drugs just by siting in it.  She was thrusting her head and shoulders forward alot and raising her arms, very unusual behavior for her.  She seemed agaited.  I don't think it's because she is in the hospital.  I really think she is sick, maybe it's viral and that's why nothing is coming up but I'm not at all sure about her coming home.

Please pray for her, my heart just aches tonight.

Sam still seems out of sorts and not himself.  I will be so glad to get him to Dr A next week!

Just alot going on and my heart aches for my children....


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Wish I could go back a year.....

This was our LAST Sunday in Torez.  We went and saw the girls then we walked to the Pentecostal Full Gospel Church in town.  What a sweet service....
 


 
 
Loved how this family did their yard

 

 
Worship team

 
 
 
 
 
 
LOVED their worship pastor.  He had such a heart for God.



 
 

 
 

 
the Pastor and his wife

 
All of us

 
Alexy  Jon and the music pastor.
 
We just loved all these folks.  It's seems hard to think we may never see them again this side of heaven.  Our hearts knit together despite the challenge of language!  God Bless them!
 
I tried to load a video of them singing....but it wouldn't...
 
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Don't forget about our April/May orphan project!  Two little girls needing to be rescued!  You can give on the right hand side of my blog, send a check or give to Grace Haven Ministry....just please say you are one of my friends.  I hope to met a goal of $1000 for them!!!
 
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PLEASE PRAY FOR SELAH AND SAM!!!!