Tuesday, April 1, 2014

Let's help Sonya!!!!!!!

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/  today's answer....
BOTH A & B!

I have something exciting to share with you guys.  A friend of mine shared about a little girl in Ukraine who needs a surgery.  This friend Carissa, knows the family of the little girl personally.  The family also goes to the church  of a well known (in the adoption world) pastor.  The story is true and we can help.

I'm still getting donations for the two children Timothy  (China) and Angela (Ukraine) and that money is set aside for them.  However we have had issues with Timothy's paperwork.  He may age out before things can be straightened out.  Angela, is posted on a few adoption groups, and if anyone steps forward a grant will be given to them.  It will be divided between them equally unless one is unable to be adopted (due to age or other issues)  There is more than $1000 set aside for them at this point. 

BUT for the month of April, I'd like to focus on this little girl.   Her name is Sonya and she is NOT an orphan.  Her Christian parents chose to keep her and raise her even tho that is not very acceptable in their country. 

My friend Carissa wrote "This beautiful young lady, Sonya, is the daughter of a sweet friend of mine in Ukraine. She has CP and needs a surgery to fix her dislocated hip. ( She needs the same surgery I had when I was 16!! ) The cost is $50,00...0. If they can raise 50% the hospital will consider helping them with the cost. They are at $10,800. They need $14,200 to be at their halfway mark.

This incredible family took a leap of FAITH and did what most parents in Ukraine do not do when they have a child with special needs, they kept their beloved daughter. Let's help them with the cost to help her be rid of the agonizing pain. We all know how hard it is to watch your own child suffer. Please donate!
 


 
 
Read and donate at the link above.
You can let them know you found out about their story on this blog in the remarks.  I like to keep up with how much we give yearly!
Or you can give through our church by sending a check ( I have a few people who give monthly by checks and I will post it to their site at the end of the month.)
Grace Church
7060 Berry Road
Zephyrhills Fl 33540
 
 
On the site in is in Euros so go here to convert Euros to dollars.  I did that and paypal also did it at the end for me.
 
I'm going to challenge you to give!  When I read their story, my heart was moved for this family.  I know how we have had to fight for the various things our little ones have needed.  And I know how it is to have to travel to get medical help for a child.  PLEASE let's just bless this family and help them reach their goal! 
 
Here is the story from her parents
Message from Sonya’s parents:

When Sonya was to be born, doctors gave us little chance – my placenta detached on my way to maternity house, in 5 minutes after my examination the surgery room was filled with medical personnel – I barely had time to say ‘God be with us!’ before anesthesia kicked in and these words echoed through the room as the doctors passed them along. Sonya and I have survived, despite all the odds.

When Sonya at the age of 3 months got sick with meningitis, the doctors, our friends and acquaintances gave us little chance (except, maybe, for the Head of ICU where Sonya was stationed) and when 30 days later Sonya had rallied from coma, her neurologist told us, “You have no choice but to fight along with her, because your daughter has such a strong will to live.”

Now Sonya is 10 years old – she has a very painful hip dislocation, and.. yes, they give us little chance. “Let it be, don’t subject her to extra sufferings, she will never walk anyway, with her spastic quadriplegia, the pain will return, think of yourselves – you’re not getting younger..”  But how can we think of ourselves and come to terms with her constant pain, how can we ignore Sonya’s desire to move? How can we ignore God’s plan in her life – and we do believe that God has a plan for every soul, no matter how badly the soul’s outer shell may be damaged. How can we explain that side by side with dry facts and medical statistical data there exists another plane, or dimension, which operates with quite different units of measurement, and Sonya has been the living proof of this throughout her life?

About Sonya’s present condition: before her hip had dislocated, she was able to roll over, sit for some time unassisted, stood on her knees with support, and made attempts at crawling.  Now she prefers to stay still since every single movement causes her pain.  The only option proposed to us in Poland and Ukraine was femoral head resection (amputation).  For us, it was too extreme, and we kept searching – on 14 February we had an examination in Heidelberg Orthopedic Clinic, Germany, and we were strongly recommended an angulation osteotomy – according to the surgeons, this procedure will enable Sonya to sit, crawl (if she learns how to do it), and stand in a special device.  The femoral head resection would just leave her leg floppy and her pain would return in a matter of weeks.  While our savings were enough to cover the cost of surgery in Ukraine, in present situation they’ll be only sufficient to cover the cost of transportation, lodging, and daily living expenses.  Cost of the surgery (angulation osteotomy and surgical treatment of knee flexion contractures), including 5-6 weeks of in-patient treatment, is 48.5K Euros. 

Due to the urgency of the situation (because of her high hip dislocation, Sonya has severe pelvic obliquity and pronounced lumbar scoliosis which progresses quickly (Cobb angle of 42.6°- at spine deformation of 50°and higher scoliosis can be corrected only with surgery)), we have set up the fund-raising page on this site and, in parallel, are applying to charity foundations.  If we’re able to find a charity foundation which would agree to cover the surgery cost in part or in full, we will use the funds collected here for 3-4 weeks of intensive physical rehabilitation highly
recommended by the clinic after Sonya’s discharge from the hospital and for the brace manufacture and wheelchair adjustments (due to the severity of her scoliosis, she needs to have ChĂȘneau brace made, preferably before the surgery, followed by regular check-ups).  We will stop the meter the moment we have the required amount.  Every single penny (eurocent) will go to Sonya’s medical needs, not for our daily expenses, and will be accounted for.  Foreign currency will be converted to euros automatically. Help Sonya move!
The surgery is scheduled for 22 May - if we’re able to collect the required amount prior to this date, it will happen, otherwise, we’ll have to postpone it and we’ll be put back on the waiting list. Since cost of ChĂȘneau brace manufacture in Heidelberg clinic would be ~3-3.5k Euros, we went back to Poland and are now trying to locate a good orthopedic surgeon in Poznan who would prescribe the brace for Sonya and have it made here (there is a certified plant in Poznan that manufactures ChĂȘneau braces).  We’ll have brace fittings/adjustments/check-ups in Poland while waiting for the surgery.

Please join with me to help this precious family and this little girl.  Every penny counts!

THANK YOU!!!

Monday, March 31, 2014

Monday

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
Answer for extra vote is the top one
Contact a NMEDA dealer.....


Mondays are the time to hit the ground running for me!  Got Steve signed up for the ACT ( OMG_is all I can say!  I think if you can get signed up, you should be able to pass the stupid test with a perfect score-what a pain!)  Did the computer work for Shad's reoccurring scholarship from Step Up for Students, did the yearly Sunbiz report for the church on line, touched base with the admission's department of the university that Steve is going to next year....made a dozen or so calls regarding various things AND cooked chicken parm, garlic bread and tortellini ....I've been productive today!  Let me hold on to it for a few more minutes.....

Well I got a call saying my biopsy has been moved from Tuesday to Wednesday....fun times, at least I know my time with one of my BFF's (Traditional Tuesday) won't be touched!!!  I had already imagined me telling the doctor to hurry up cuz it was time for me to meet my friend for lunch!  Have to have those priorities  straight!

I have about 5 blogs inside of me but I'm too wasted by the time I get a chance to sit down to do them  Right now its 6 pm, supper is done (I actually already ate some since I hadn't eaten all day) it's time for Jon to come home ......my mind is running but I'm tired and Sarah wants mommy to "hold me!"  Lord if she ever starts talking, that will probably be what she says all the time.  She'd love for me to do one of those baby carriers, strap on thingys.....but she got an old mama with a sore neck and back so my holding is sitting in "our" chair with her!    (Btw, my neck has been terrible but I started using cold wraps on my neck and that has helped again.  I think the heat bothers it even tho it seems like I want the hot packs or heating pad.  And my foot still hurts from the "little procedure" Whine Whine whine......)

Here's some adorable Sam pictures from Sunday  He was "talking" to me, I had walked him up on stage, on the steep handicapped ramp and he didn't like it.  He was mumbling and making his cute little sounds to tell me that:)

 
 
 



Sam's so cute:)

Well hope you all have a good night, VOTE if you can!!!!  THANKS!

Sunday, March 30, 2014

Voting


http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
the answer is Threshold sensor mats

Hey I've had some questions about the voting.  Seems if you try and vote through your email address, and ask for a password, quite a few aren't getting the password.  That happened to me also!  I never got a password for my email account although I asked several times.   Others are having no issues with it.  I sign in through FB and haven't had an issue with that at all.  Thanks for all your trying and voting!  I really appreciate you taking the time to do it!

Hope you all had a great weekend.  It's now Sunday night, I'm at the church, the Spanish church is going strong, it's been a good weekend. My favorite part is after church on Sundays, going out to eat with my friends and then hanging out for awhile.  Sometimes you just need each other to prepare for the start of the new week!  This is going to be another crazy week for us as always!

Just heard a young man who grew up in the same church I did, died last night.  He was younger than me, I can remember when he was born.  His parents taught my Sunday School class.  I can remember when his mom was pregnant with him and when he was a little guy.  Of course I can't imagine him as a grown up, in my mind he is just a little boy still.  Surely, his parents are remembering him as their little boy, my heart just goes out to them.   Please say a prayer for this family, their grief must be overwhelming!

Hope you all have a good week!

Saturday, March 29, 2014

5 inches of rain!

http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/ the answer is true!  Thank for your vote!


Rainy weekend here.  We got 1.75 inches of rain last night and 3.5 inches today, over 5 inches in an 18 hour period.  I love it and so does my garden!  We are going to start harvesting some thing today:)  I'm cutting some lettuce for the nurse and some collards for us.    I love rain, it just refreshes me.  I think rainy days are cozy not depressing at all.  We seem to get a lot of rain which is fine with me
When we first moved here, we were in a drought and our old well was bringing out dirt when we turned on the facets.  We had a new well put in, a much deeper one and the rains came:)  It's interesting to live with well water, we had to have a system put in to purify the water.  The water was fine just too much iron. 

The boys and I saw The new Muppets movie last night, it was cute.  Muppet movies are some of my favorite movies, Kermit & Miss Piggy are my favs  We were the ONLY ones in the late showing for the Muppets, guess it was not the cool movie to see.  I want to see the movie "God's not Dead" but it is not showing in our small town.  We may go and see it next week.    Honestly I like very lite movies, that are funny.  I have more than enough drama in my own life to go and pay money to see make believe drama! 

Hope everyone has a great weekend! 

Friday, March 28, 2014

Merry go Round


http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/
the extra vote answer is DEEP DISH - as in steering NOT pizza. 
And YES you can vote DAILY
YES you can vote from any country!
Thank you so much!!!!!

Jon had a bunch of doctor appointments this week.  He had several heart tests done on him, nothing invasive, just a stress test, nuclear stress test, EKG and a sonogram of his heart.  All were great, no issues.  Jon's family history with heart disease is just awful so he has always been careful and is an avid exerciser.  He also has watched his fat intake since before we were married.  I remember him eating a Lean Cuisine when we were dating.  (we'd never eat something like that now LOL!)

Now we still watch our fat intake but we are a bit more concerned about eating organically   When we were younger, I ignored his healthy food habits but as I got older, I realized I'd better follow his lead!  I always say if I wasn't married to Jon, I'd be about 600 pounds.  He is such a healthy eater, he has won me over BUT I still have to have my fried chicken every now and then! 

He went to the dermatologist this morning and had to have a precancerous growth burned off his ear.  Jon is also such the careful one with wearing hats, long sleeves, sunscreen while I am NOT!  I still like to get sun still thinking I might ONE day have a tan LOL!~   But somehow he had a little place on him.  I was surprised. 

Anyhow I'm making sure he sees the doctors too, it's been two years since we had gone to a doctor for anything so we're making up for it. 

Tuesday morning is my "big" day, to have the biopsy done of my thyroid.  The doctor tried to reassure me that most are non cancer.  For me, everyone I know who has had a biopsy, it has been cancer.....  maybe I'll be lucky and not have to deal with that, I sure hope so. 

After Jon's little procedure, we took our van in for a oil change and to have the back up camera replaced.  Where we go is right near a mall, so we took the kids too.  We all had a great time.  Sam loved the merry-go-round, I think he needs his own one. I did some more clothes shopping, which is really not me at all but I just have to blame it on the fact it is spring, almost Easter and everyone has grown!  Yesterday I had gotten Sarah's, Sam's, Shad's, Steve's and my Easter outfit.  Today I found Selah's and it is perfect and comfy, can't have a dress with a big bow to bother her.  I also found me a few things too LOL! 



                                                                         

      

Sam and daddy....



 
 
 

 
 
 
this picture is the calm before the storm....
 
 

 
 
 
the storm!

 
they were going so fast, I couldn't watch them!  Sarah loved it
 



 
Look at Sarah's pretty hair and she had on the cutest outfit, a little Sailor long shirt with leggings to match.  I should have taken a better picture of her!
 
 

 
fun times!
 
 

 

 


Here is a sweet picture of Sam from the other night.  He loves listening to his Ipod! 
 
 
And here are the little sisters!
they both got "fixed" last week- neutered/spayed whatever you call it
they did great.  For the first time I was given take home meds and it really seemed to help them just bounce back, we love that they are usually up and running, sweet babies!

 
they love each other AND my bed!

 
I have to say we have enjoyed these little girls! What good kittens they've been, hardly any trouble and so sweet.
 
 
 
A really close friend of mine has started a blog.  This friend is really smart and I love his/her ideas.  The writer is remaining anonymous at this time.  So I won't let the 'cat out of the bag" but I think it will be an interesting, thought provoking blog!  Go visit it!
 
 
I want to write an anonymous blog so bad.  You have NO idea!  Cause if I wrote exactly what I WANT to write about, I'd probably have no friends left.  I'd probably have 5 million hits but no friends - I think I'd better stick with having friends!   I don't want to write anything mean, don't get me wrong, just very honest and what I really think about a lot of things....
 
Tonight I have a date with TWO men, Steve & Shad, we are going to the movies and Jon is going to watch the little ones.  He's not too keen on watching The Muppets ( that I love!) We also want to go see "God's Not Dead!"  Maybe we'll see that tomorrow.  I LOVE going to a movie, something about a theater and the popcorn.....I just love it!
 
Have a great weekend!  Thanks for your prayers, thoughts and votes:)
 

Thursday, March 27, 2014

We need 30,000 votes!


http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/  the answer is true uptil midnight tonight

Thank you for voting.....it overwhelms me so I appreciate anyone who takes the time to vote! 

This week has been so busy for me, I've gotten so much done but have so much left undone.  I am just feeling soooo overwhelmed again.  I've ran all week and yet need another week to catch up from this week.

As far as the contest goes....thank you all!  I think we need to be around 30,000 to have hopes of winning.  You all have done so much, but we have a long way to go.  Thank you for all your efforts.  We were on two tv stations in this area and I think we are in the local paper today, I've not had a chance to get one.  Voting goes on till May 9th or so so we have plenty of time to  build up. 


Today was another crazy long day for me.  One thing I had to do was go to the foot doctor.  The day before we left for NY (when the accident happened) I had major foot surgery both cutting surgery and laser surgery.  Things had been fine until just recently.  So today I thought I'd have to have the laser again and let me tell you that HURT the first time I had so I was NOT looking forward to it.  However he scrapped my foot and put something on it, which was much better.  I have some type of werid planter's wart (I know I spelled it wrong, it's too late to look up)   It looks like a little piece of a pencil head or something like that.  The first time I went to this guy, it was my THRID surgery in just a few weeks time as I had something resting on a nerve, and there is nothing like nerve pain!  He extracted something that looked just like a big molar.  I never got the pathology report back since we were in NY and things were so crazy.  So I asked him today and he remembered it since he'd never seen anything like that, he told me it was also classified as a planter's wart.  But it looked just like a molar!  He said he hadn't forgotten that LOL

I'm too tired to get really deep but this was the first time I was back in his examining  room  since the accident.  The last time I was in there, was the day before we left for NY and I brought Selah with me.  She was so cute, I even remember the outfit she was wearing......  She sat and watched me scream.  She even laughed some.  When I walked in, everything was in the same spot, including the chair she set in.  The surgery was just 6 days before the accident.....  the last time I went somewhere with just me and Selah.  Everything brings back memories to me!

How do some parents stand it?  We only had Selah for 13 weeks before the accident happened and it feels like EVERYTHING I do, reminds me of "BEFORE"   What if we'd had her the whole 7 years and then the accident happened?  How do they stand it?  Just the little time we had before is so poignant for me. Every little thing, every place.....

Thank you all for your prayers, thoughts and votes....one day I'll actually write a real blog post.  I have some really funny stories to share, just some off the wall things that have happened to us lately.  Maybe this weekend I can catch my breath. 

Wednesday, March 26, 2014

News Interviews



Crazy busy day again......
http://www.mobilityawarenessmonth.com/entrant/selah-clanton-zephyrhills-fl/  real quick...the answer is 79-how many medals.....


here is the interview from last night
http://www.wtsp.com/story/news/local/zephyrhills/2014/03/26/zephyrhills-family-wheelchair-van-vegetative-state-disability/6897529/
After the long day I had, I can't believe I was even coherent!

Today I had a call from Bay News 9 and they also came and interviewed us:)   I was a bit more coherent today, than last night but I don't see that link up yet.


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Today was spent in arranging all the appointments/tests that the GI specialist wants the kids to have done!. My "to do" list continues to grow, as soon as I get one thing marked off two more have taken its' place.  There truly seems to be no end in sight.  My goal is to have everything done/scheduled/filled out/sent in etc...by May 1st.....Please don't hold your breath cause I sure ain't:)    Between the church and our family, from setting up appointments to doing college scholarship paperwork....I don't know f i'm coming or going!    Having 5 kids at so many different stages of life is not the easiest thing in the world!!!

So just when we think things are perfect with Selah she does something different.  There was some info our new neuro wanted me to get from NY so I had called the doctor that handled most of her care there.  I went outside to talk and was telling her all the good things Selah has been doing, walk back inside and Selah's heart rate is 160!  YIKES!  BUT the funny/good thing is that she is not storming at all.  She's not upset, not red or sweaty.  So we really do not know what to think.  She calmed down to the 120's and I asked the nurse to put her in her stander and her heart rate returned to near normal.  We are going to have the company that supplies her machine that measures her heart rate and oxygen level to come out and look at the machine to ensure it is measuring correctly.  The nurse did count and her heart rate was high today and her blood pressure low for a short time.  But she seems absolutely fine now.

The info I got from our sweet doctor in NY was about Selah's PH level when she arrived in the ER.  The PH level that they want to see is 7.0, Selah's was 6.98......it makes a huge difference.    For a long time I had wondered WHY the ER doctors worked so hard and gave her FOUR shots to her heart. (at the time we wanted them to fight!!)   Of course I didn't understand at the time of the accident what kind of damage could happen but I do now.  So once I understood everything, I had to wonder why the doctors knowing how bad brain damage could be would keep working on her.  NOW I truly understand why, she was so close....  There are other factors that can foretell the outcome of a near drowning but the PH is a big one.  So my heart just broke all over again at what "might have been"  Maybe if she'd gotten there 2 minutes sooner....she was so close to having a good number.   I don't read alot on the internet about near drownings.  The only things I look into are CURES, things we can try, studies, therapies etc.....I dont' get into the groups, I don't really want to hear alot of stories, I"m living my own story and that is hard enough.  But I researched things a little and it just broke my heart all over again.

Every now and then for a minute or two I dream of how our life would be 'if only"   Would I appreciate it like I think I would?  Of course I think I'd appreciate the heck out of it.  Oh God, I can just imagine, Selah right up in the middle of everything....making a mess with her toys, wanting to stay outside and play, looking at herself in the mirror with her new dress on...grabbing a piece of pizza....laughing ...

Hearing the numbers, reading the various reports, it just hurt me all over again.  Didn't expect that, it came out of nowhere, I was just curious and getting the info for the doctor.

I am thankful for so much with  Selah, so thankful that she is very stable overall and coming off of meds.  I'm thankful that she seems very content.  I'm thankful for all the people in her life that are helping us to give her the very best life possible.....I am thankful that we still have her with us...I just can't help wanting her back to us 100%.  Thank you for all the prayers you have prayed for her, please keep praying.......