Waves.....

I'm a Florida girl.  I love the ocean and being at the beach.  I love it when the sun is shining and I love watching  a thunderstorm sweep over it.  I love the smell and sound of a beach.  I love the waves.  Nothing is better than riding the waves when a hurricane is out in the Gulf.  Yeah I know you're not supposed to do that but it is great fun.  The last time we did it was years ago but it was a blast in spite of all the bruising I got on my legs from the waves literally knocking me down. 

Well today one of those "waves" hit me.  It washed over me right during Jon's sermon.  We humans are funny.  We can act like nothing is the matter even when our heart is breaking.  I have no idea what triggered the "wave"  But as Jon was speaking and I was sitting on the front row with my kids...a longing for Selah- the Selah before the accident- washed over me so hard that it seemed to take my breath away.  I could remember her little babbling noises and how she loved going to sit at the table to eat.  I could remember the funny little way she tried to drink out of a cup.  SHE came back to me in my mind.  OMG....all these memories just flooded my mind, so clearly.  Sometimes I try and remember Selah and can't....but today I could remember her and oh did it make me miss her so much. 

I had to ride that wave of memories in my head till it was gone.  It left me wishing for all that was lost....Oh Selah.....

So I managed, grateful for being able to remember various nuances of Selah......I gathered myself together.

Then as my husband was finishing up his sermon, he sang a song with the congregation.  Well he didn't have the words of the song....got it a bit messed up.  Then as the crowning touch managed to sing about God as being created rather than the Creator!  -the song is taken from Revelation 4:11 "Thou art worthy, O Lord, to receive glory and honor and power: for thou hast created all things, and for thy pleasure they are  created.  Thou art worthy O Lord."  He sang it as   "and for thy pleasure thou art created." Anyhow for me, that just took me over the edge.  I was pushing down my laughter and just looking straight ahead.  BUT my husband had to mention his mistake and the fact I was trying not to create a scene and that just did me in!  I started laughing a bit hysterically!!   You HAVE to be a pastor's wife to get it I'm sure but there are just some things that totally crack me up and singing a song really wrong does that ! 

So I went from a deep despair to laughing in a matter of minutes.  Humans are strange like that, sometimes we can't handle our feelings very well.  Or maybe God helps us to be able to be distracted when sorrow rolls over us.  Or maybe I'm just crazy myself.....

We did take pictures today

 

 

 

 

 

 

 

 

 

 

My satilitte or computer is messing up once again and I can't see the pictures!
They are from playtime yesterday and church today.  Hope you enjoy!

 

Saturday Working on the Play

We've had such a busy week, can't believe it is the weekend again.  This week has sped by......

This morning I worked with our music minister on the Christmas play.  Yeah I know it's a little a lot late but at least we are doing it.  It's going to be a very simple play with the children acting out the nativity scene while my husband reads the Christmas story.  We are also throwing in some Christmas hymns throughout so the whole congregation can join in.  Shad and Sam will be Wise Men (Shad holding Sam's hand and trying to keep him in place) Sarah and Selah will be angels.  Sam's favorite doll will be Baby Jesus.  One of my blog readers sent the doll to us.  It is a boy Cabbage Patch doll and Sam loves to take the doll's clothes off.  It is quite funny.  So we do not know what to expect during the play:)   We have about 15 - 18 kids that regularly attend our church now so we've tried to make roles for everyone.  There are a couple of kids who LOVE the spotlight (one of mine is one of those LOL)  Most of the other kids, have to be bribed a bit!!

After we worked on the music for tomorrow and the music for the play we took our music minister out to see the house.  For the FIRST time we figured out the lock on the fence.  If we've come when the workers were gone, we've had to climb fences or squeeze in gates.  It was great to go in the right way and not worry about someone calling the police!  Walking through the house and seeing it come together as it is being framed is just plain exciting.  The only room left to frame is part of Steve's and Sarah's where their closets will be back to back.  Also the kids' bathroom and the kitchen need work  and then it will be framed.    Our friend was so taken back by the property with all the mature trees on it.  It is such a beautiful peaceful piece of land.  I can not wait to be able to sit on the porch and relax out there!!!!  

Another GREAT thing about the house....there is a convenience store, only a mile or so away!  IF you have not lived in the country you have NO idea of how wonderful it is to be able to jump in the car or walk down the road and be at a store in just a minute!  It has been about 14 years since we lived within walking distance of a store, even here the walk would be probably a mile and a half but hey that is close for us!  For us it is quite the trip to go to a store and we BETTER make sure we don't come home with the car on empty!  There is one store about 5 miles from our house towards town.  In the other directions, there is nothing for 10-15 miles - no lie!  We have relatives that live in a subdivision within walking distance of probably 15 restaurants, a Wal-Mart, a nice shopping center and there was a movie theater there until recently.  If I lived there, I'd be FLAT OUT BROKE all the time!  Shopping or even picking up food is something that is planned around here.  Nothing is convenient which is GREAT in some ways but a pain in other ways! 


Well I bought a BIG turkey!  BIG!  24 pounder!  I confess I usually get the Turkey that either pops the little thingy out when it is done or the precooked one from Publix.  This year I got the REAL one with the guts and everything in it!  I've only done this once before and it did turn out good so hopefully this one will too.  If you live near a Publix, they are having an incredible sale going on right now.  I only spent about $12 for that turkey!  If I had more room, I'd probably buy another one and keep it frozen for such a deal.  I was SOOOOOO tempted to buy the more expensive one that was easier but I figure a woman with FIVE kids ought to be able to do this!  It is already defrosting in the church's fridge.  We have two fridges in the fellowship hall and they are a blessing to me in times like these!  In fact that is where I will cook and serve the dinner on Thursday as it is easier for our family and everyone who is coming.  We were laughing and saying "Next year ...the NEW house!"

Steve is finishing all his assignments for college for this semester.  Yesterday I went with him to the public library and checked over everything before he submitted it.  Our computer access is so bad here, that he can't log into the college's system.  Anyhow this gave me a chance to get some new books!  YEAH two of my favorite authors had new mysteries out.  I finished one yesterday:)  I'm trying to make myself wait to start the other one till next week but it maybe a futile attempt.

We've had nice cool weather here in Florida and I've been living in Pajama pants!  It started last Sunday night when I had to go with Steve to find internet at a local restaurant.  It was cold and rainy and I was so snuggled in my fleeced  Grumpy PJs.  So I just went to town in them!  I'm so tired of NOT having good internet.  In fact I'm trying to post that picture now and it doesn't seem to work although it may go through for the blog.  In the new house, we will have REAL internet!  Woohoo!  No more satellite internet that is spotty at best.

Well hope you all have a good weekend! 

All about Shad!

 

 

Last night we were watching the new season of Duck Dynasty

Thought Shad looked cute with Vermont and Gladys. 

 

 



After school today Shad and I went by the new house.  All the workers were gone so I will confess that I climbed the fence to get in with some help from my son:)

 





 

Shad is sitting in the living room window eating his after school snack

 

 

 Here he is standing in his closet:)  Still eating!

 

 

 

Do you notice his hand hadn't left the bag????

 

 

More inside walls are up!!!!! 

Watching the progress is fun!

 

 

Well "our" dogs got picked up by animal control.  I was able to track them down today.  The black lab has already been adopted.  The male boxer/pit was on observation till next week since he nipped someone in the neighborhood.  The person I spoke to seem to think he still has a good chance of being adopted, he was not aggressive when he nipped, he was playing with the man but since the dog doesn't have shots, they were afraid of rabies. 

 

Last weekend there was a puppy that was out at the house but she disappeared before we left.  Some of the guys said they thought she was the other dogs' puppy.  We had really thought of taking her home.  She wasn't out there today either.  We do not need another animal but......

 

 

Today I got a ton of paperwork done, that always makes me happy.  It used to be paperwork was so easy for me to get done but nowadays, it just boggles me down  So if I can get things done....it's good!

 

 

 

 



What Irks Me

Irk -verb means to irritate; annoy.

You know something has been irking me for awhile now.... All these serious blogs about adoption.  Maybe I'm just simplistic but to me adoption vs. natural birth is the same thing when it happens.   Not sure that I can articulate this blog like I want to, maybe I don't have the words....But our "adopted" kids are just as much our kids as our "biological" kids.  I don't mean that in a sloppy sentimental way-it's just they are my kids!

And these blogs that want to tell the 'truth" about adoption and how "hard" it is.....get over it.  Biological parents go through problems with their biological kids all the time.  As an adoptive parent, you chose to adopt, now be the parent!  I don't want to hear your whining! 

All I can speak about it our adoptions.  The only issue we had was with Shad who is an extremely smart boy.  He was two and right in the middle of the "terrible twos".  He was a trip those first few months but no more so than other "biological" two year old boys.   Sometimes I think people go looking for issues because the child is adopted.  Granted, there can be more things to overcome and I do feel we've had to work harder with Shad but he is also a very smart boy and very confident.  Just those two things together can make a child a bit headstrong.  But it's not necessarily a bad thing. 

The girls' adoption and transition into our home was so sweet and easy.  Because Shad had had some issues, we certainly expected problems with two older girls but there was nothing but two sweet girls who trusted us more ever day and responded quickly to love.  Just like that euphoric feeling after giving birth, I had it to the extreme with Sarah and Selah.  I can remember hating it when they'd take a nap, I wanted to get them up to play with them LOL!  Everything was like a dream, until the accident happened. 

For me adoption has been nothing but a blessing.  Sure my heart grieves over the accident and will for the rest of my life but Selah is still our daughter, still loved and cherished.  Selah and her needs  come first in our family.   So now she is the number one priority  in our family. No decision is made without considering her needs/care first.   Every now and then someone will send me something nasty that some nameless ballless troll has written about us.  There is always some implied idea that adopting the two girls together was what caused the accident.....  the little comment or section will try to imply that we were overwhelmed....one thing I read took something I wrote and twisted it around to show how overwhelmed I was.  What caused the accident was that my husband stopped the stroller and took his cell phone out of his pocket, turned away from the stroller and the sun so he could see the time on it.  I wrote on this blog that I WISHED I had gotten him a new watch the week before but was too tired/busy and forgot.  I GUESS I should have gone into detail.  THE TRUTH is I was at the store and forgot till I got in the parking lot BUT since I'd just had foot surgery a few days before and my foot was bleeding through the bandage I was just too TIRED to get back on the little cart I was using and go back into Walmart.  It had NOT one thing to do with the adoption!!!!!!!!!!!    I wasn't tired from the adoption, I wasn't tired or stressed by the girls but rather from the two foot surgeries I'd had that summer.   I actually had to have one more foot surgery just the day before we left for NY.....

In fact the accident would have never happened IF I had not had the foot surgeries I am sure.  If I could have walked for a distance I would have gone with Jon OR the whole family would have gone to a nearby mountain park that we love to go to in the Rochester area.  In fact we even discussed going earlier that morning but I did not feel like I could go.   So the root cause of the accident in my opinion was my foot surgery.  The pain kept me from going back in the store and buying another watch and it kept me from enjoying a walk with my family on that fateful morning.  I'm sure some idiotic would say we shouldn't adopted since I had a foot problem...well the problem started about a month after the adoption....sorry I was not forewarned about it. 


Then I read this long discourse on how we should have researched and not used the particular jogging strollers as primary means of transportation of the kids.   Well the jogging stroller was being used for its intended purpose when the accident happened.  The kids were well within the size specified for that store, quite UNDER the height and weight recommendations.   Some idiot said something like we should have had wheelchairs for the kids....  first we wanted to encourage Sam and Selah to walk short distances on their own.  Selah hated to walk-but we certainly would not have been eligible through our insurance for Sam or Selah a wheelchair at that point.  Back then, we mostly carried Sarah unless it was a long distance LIKE a walk in the park.  People are just beyond idiots and beyond jerks!   The thing is if I ever say anything negative or positive anywhere on the internet, I can sign my real name!  Nameless faceless comments are from tiny weird minds....

Again accidents are horrible, but to link an accident with an adoption....just is not right.  If we had no longer wanted Selah- just to be blunt- when the doctor encouraged us to not put in the trach or gtube and just let her go....we could have done that.  She would have quietly died and that would have been the end but we fought and still fight for her life.  We chose to bring her home rather than put her in a nursing home.  I had to spend the summer of 2013 fighting for her to stay home.  We have lived in a tiny house for two years with nurses, therapists and teachers in every nook.  We don't get any compensation from her accident-nor should we.  the accident made our lives so much harder.  It was a wonderful happy easy life before....oh we had doctor appointments, therapy appointments and yes the three little ones needed a lot of care but we knew what we were doing BEFORE we brought the girls home and we knew their needs were manageable at that point. 

Anyhow those are a few things that IRK me that I've been rolling around in my head lately. 

WHEW.....there may be some PMSing going on around here!!!!!!!

Busy Few Days ~Lots of pictures

What a busy few days we've had!  Everything is good, I've just not had time to sit down and write:)

Saturday we had a work day at the new house! The outer walls are all up and most of the rooms have their walls up too.  Even some of the wood that will attach to the siding is up also!

Here is Jon and Shad in the corner of Selah's room Saturday morning

 

they were working on building a wall



they made and installed the wall between her bathroom and closet

 

 

 

Shad screwed the wall in

He learned how to use a lever



 

yes this is me nailing.  It took me about an hour to really get it right

 

The REAL contractors and builders check everything before it is put up.

 

So we don't have to worry about mistakes

I borrowed the next two pictures from Habitat's FB page
The first is the morning crew

The next is the afternoon crew

 

 

We really enjoyed getting to work with the crews and meet so many people.  Shad excelled at working on the house.  He was hoping he could go out there on Monday or Tuesday (since he had off from school) to work but it's been rainy and cold)  Shad's friends came in the afternoon to work and at that point he was building his closet wall.  He did a small area of it by himself with his friends.  One became uninterested and walked away and Shad ordered him "Come back here and work"  and his friend came back and they finished it.  I was off to the side cracking up at Shad!  He has learned from me LOL!!!

Here are some pictures from Sunday, after church.  Both Selah and her nurse Rose were looking so pretty

 

 

 

 

 

Yesterday was a stormy day and I think we were all sleepy.  Sarah sat with me and took two naps!  I almost got worried since she rarely naps!  But boy do I love to snuggle her!!!!

 



then this was from last night after supper.  I guess I filled them up!  Both of them asleep!!!

Well it may hit the freezing mark tonight, here in Florida!  I've got Taco Chili and regular chili in the crock pot cooking.  It's cold, windy and cloudy outside.  Hope you all had a good weekend, we did, just BUSY and hope your week is going good!

It's Thursday!

 

 

I took this picture yesterday, isn't it funny?  Kinda looks like they were all checking their phones or one friend suggested...praying:)   Nope Steve had swung them to sleep as I cooked supper.  They woke up once I said the food was ready!  It's easy to tell how much they like to swing as the grass is worn away :)  Sam and Sarah love swinging in their toddler swings, with them being small for their age they still fit but barely.  Both of them could swing for hours every day but can't sit on a normal swing very well.  Neither of them can hold themselves that long and I just don't trust that they wouldn't fall and really hurt themselves.  We've had therapists in the past that really wanted to push Sam and I resisted as I felt IF he felt secure, he'd WANT to do it.  We are planning on buying them each a handicapped swing once we get moved, Selah also.  Selah can't use these because it gives her no head support and she is the biggest of the three.  She usually sits with one of us in the big swing.  However she doesn't care for too much movement.

 

One thing I've discovered with my kids, once they have the ability to master something, they do it.  A therapist or a parent can waste years trying to force a special needs child to do a certain thing BUT if the ability is not there....it's just not there.  Of course we always try everything with them but there are limits.  If a child can do something, believe me you can not stop them from doing it.  The opposite is true that if they can not do something, you can't make them learn it.  The ability just may not be there. 

 

It took me a few years before I learned that with Sam.  When he was a baby, he was enrolled in every type of therapy you can think of-at one point he had NINE hours of therapy a week.  That is a lot!  When he was about two, I quit trying to "fix" him.  We stepped away from the massive amounts of therapy and concentrated on ONE major thing at a time.  Around three he began to really walk, not just from one couch to another but all over the house.  During that time we really concentrated on his gross motor skills.  It seemed like he could not focus if we tried to do too much at once.  We still did all the basic therapies but maybe once a week instead of three times a week. 

 

With the girls, I'm really pushing Sarah right now.  She  gets most of the services I'd like for her to get, Vision, General Education, Physical Therapy, Occupational Therapy, Speech, just not as many hours in some as I would like for her to get. 

 

Selah gets Vision, General Education, Physical Therapy and Brain Trauma Therapy.  We can not get OT or Speech through the school system for her. 

 

Sam gets Vision and General Education only.  He does not qualify for PT or OT through the school system or through our private insurance anymore.  He meets the basic standards for his age.  He has just had a "leap" in his understanding.  He's learned to give kisses (in his way) and to pick up his toys (with a little help)  Once we get moved and settled, my goal is to work with him to get potty trained.  Sam has always had windows where there would be this 'great leap forward" in his understanding.  He still can not speak except for Mama and NO but we can tell him to do things and he totally gets it.  It's cute to see him earnestly picking up his toys and putting them in the toy box or turning on his water machine.  With Sam we go through rituals for bed time and everything is done in the same order, every night and it gives him a feeling of control and knowing what the next step will be.  So his last step before he walks over to his crib is to turn on the "water machine" that gives them a background sound to sleep to.  It's adorable to see him find the turn on button and then walk right to bed!

 

Sarah doesn't require rituals, she is so easy going but she does know as soon as her teeth are brushed, she is going to bed and doesn't like that being changed.  If her teeth get brushed and we get busy doing something else, she seems a little perturbed.   Sarah's one thing she craves is being held on my lap.  Usually Jon and I watch our pre-recorded news shows at night and she wants to be right up in my lap the whole time.  If our schedule changes or supper runs late or I get busy doing something else, it seems to throw her off a little.  She craves love and gentle touch.  Her favorite thing right now is to touch me- my face, my nose and at times my glasses.  Or she likes me to rub the inside of her palm with my nails.....for hours....and hours....LOL  

 

Selah LOVES rituals and is quite irritated if her schedule gets mixed up.  Of course the time change has her falling asleep at 5pm instead of 6pm.  Selah likes to know what to expect also.  Before the accident, she did not care about leaving the house except to go outside.  She loved the security of being home.  She is still the same way but I have noticed her last few doctor appointments have not seemed to stress her out as much as before.  When I look at her at night, sleeping peacefully & comfortably, I am so thankful that God spared her life both in the orphanage and in the accident.  It's a blessing to know she is peaceful.  Her feeding runs all night long, so she falls asleep to her supper.  I'm so thankful she is not in pain but that she can show us IF she is in pain.

 

 

 

Well today is "our Friday"  Steve doesn't have any classes on Fridays and Jon's days off are Friday & Saturday.  The kids do not have any teachers or therapists on Friday either.  But poor Shad has to go to school:)  So I feel like the weekend is almost upon us. 



Christmas on the road

Well I just found out today that Sam and Sarah will be seeing their doctor in NY the week of Christmas.  To be honest, we should have scheduled Sam before now but everytime I went to plan it, something would come up.  It's been over a year since he has seen Dr A. 

Going back to NY is very hard for me emotionally.  We've been going to Rochester NY for Sam, at least yearly since he was three years old in 2007 when he had the corneal implants.  At that time we stayed for three weeks, as the surgeries had to be spaced out.  Of course we always stay at the World's Best Ronald McDonald House:)  I've always associated Rochester with the very best of memories.  How many people can say they've seen their almost completely blind son regain sight?   (here is a story- used to have a video there but it seems to be gone  http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=17159)
 We became friends over the years with the Eye hospital staff and the dear staff at the RMH. Also we have two sets of college friends who live in the Rochester area so we felt very close to the folks up there.  But then in August 2012, when the accident happened.....my memories of Rochester are now forever linked with tragedy.  I still love all the folks and during the five months Selah was in the hospital, we became even closer to everyone but there are now so many emotions connected with Rochester for me. 

So some of the dearest memories  mixed with some of the saddest memories make up Rochester NY now to me.  It's such an odd place to be in emotionally.

So the kids have appointments on Monday, December 22 in the office.  Sam has an EUA (exam under anesthesia) on the 23rd and usually a follow up appointment the next day on the 24th.   I want Sarah to be seen by Dr A just to check her eye.  Unfortunately we know we can't do anything medically for her but I just want to make sure things are stable.  Sarah at times, pokes her eye and it gets so red.  Blind kids do that to stimulate the eye to give them the funny little squiggly things we see when our eyes are closed. 

Blindness is in degrees. None of my kids are what is called "black blind" where they only see darkness. Shad is black blind in his bad eye but 20/20 in his good eye.  (his blindness is due to some sort of accident after he was born non repairable)  Sam is black blind in his left eye but sees in his right eye to some degree.  Since he is non verbal, it's really hard to tell what he sees, we just have to observe his behavior to figure out how far away he can see.  Sarah was only born with one poorly developed eye, she sees light for sure and seems to always be able to find me!   But her vision is very limited and probably as she ages, she will go black blind.  Selah had some sort of issue before the accident.  We were told by Ukraine that she was blind.  Well she wasn't blind, but there were some problems with her eyes maybe something called "cortical blindness" where the eye is formed normally but it is unable to  transmit the images to the brain, due to brain damage.  We think now she certainly has some cortical blindness after the accident, so it maybe worse than it was before. 

Steve is the strange on in our family he has 20/15 vision in both eyes, our doctor was quite amazed when he tested Steve. 

Sorry about the blindness lecture.....LOL  People know Sam and Sarah are blind and they are often shocked when one of the kids grab something and then I have to explain to them the degrees of blindness.....


So....we plan to be on the road home on Christmas Eve.  I can truly say we have never done anything like this but it's ok.  We'll all be together and Selah with be with her nurses who love & care for her.  I'm a bit freaked by the timing but just last night I woke up around 3 am to go to the bathroom (TMI) and I laid there worrying about their doctor's appointment.  I thought it would be scheduled earlier in the month and was stressing about leaving Shad and Steve here to go to school.  It's not that I don't trust Steve, I do 110% but I hated the thought of them having the older van to drive (our newer one has all the safety gadgets) and I knew it would be a bit hard for Steve to get Shad to school and himself to college on time every day.  Then I thought about flying but A.  I HATE to fly B it would be hard for me to take both kids by myself and if Jon came to, that would be so expensive.   So I really just prayed and asked God to work it out along with my extra anxiety about going, not to mention the finances.  Then I got the email this morning and realized it solves our problem about leaving the boys, we can take them now.  Of course there are some other problems it creates but I think all of them are workable. 

Well that's our big news for today!  Just taking it all in.  I try my best to think of life as an adventure and a journey, so that's how I'm looking at this.  At least I don't have to do a Christmas Tree!!!   Holidays seem to overwhelm me now.