Today was a POOP day ....first Selah in church, that necessitated a wardrobe change...then Sarah not to be out done, gave the Chinese Restaurant a "poo poo platter" in her high chair! At that point, all I could do was apologize and leave!!!! We may never be allowed back!
As you can see Sarah's dress had layers...let's just say each layer had a layer of poop....LOL Then Sam got angry when he need his diaper changed and tried to help get his clothes off.... some days you just have to laugh! (Sam is really working on potty training!)
Last night Selah's alarm went off continuously...she kept having high heart rates. I have no idea what is going on but it is disheartening after 2 great normal nights! She is completely chilled out today, let's hope it lasts!
I wanted to answer a question about Sarah's eye on here as someone asked the question in the comments and I thought others might be wondering too....
Sarah has Peter's Anomaly, just like Sam. PA is characterized by a thick cornea, that is the whiteness you see. It seems that the eyeball itself moves more that a normal person and I think that is because the eye is trying to find a "clear spot" to look through. Before Sam had his surgery, he'd roll his eyeballs up in his head (we'd say "Sam has on his scary eyes" LOL) Now his eyeballs are stable and don't move so much. We can see Sarah's eye ball through the haze and it looks blue. the other eye did not develop at all. Dr A is really the top doctor in the world (IMHO) for PA. There is nothing that can be done for Sarah because her retina is uneven, which could cause a detactment if it was stressed by the surgery. Then she'd only have darkness. Also her optic nerve is twisted and there is nothing that can be done for that. So in his opinion, the tiny bit she sees, is not received by her brain very well.
But does she see? She does a little. We know how to "test" a blind kid, by not giving any noise clues and just moving things towards her quietly. she will reach for her big blue peanut therapy ball, or for us. She seems to try and peer into our faces when we hold her. She has a light up toy that she does like and she will reach for it if it is about 6 inches from her eye. Dr A thinks that one day her retina will detach anyhow since it is so fragile and she may lose the sight she has. I pray that doesn't happen, she really uses the little sight she has to the fullest advantage
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2012
On the weekends we didn't get to visit the girls at first but once we had court we were allowed to see them daily, even during all the holidays (there are many in May) but that first weekend, we weren't allowed to. So we walked around our area and took pictures... the break was good for us, as we were a little overwhelmed with everything. I had been at the internet cafe searching for an answer to Selah's "quirks" trying to diagnosis her and really worrying about it. I needed to take a breath, that first weekend, gave me that break, but then after that, I was so glad we didn't have to miss anytime with them.
Moon over Torez.....I LOVE this picture.
we saw needles all over the place. We were told lots of drugs.
this is the hotel in Torez. I have heard some awful stories about this place, very glad we had a beautiful apartment to stay in!
Little girl
the morning view out our kitchen window
a neighborhood cat we saw and fed several times
the path we took to the Internet cafe
I've been trying to load pictures for hours....so I guess tomorrow I will hopefully load the rest of that weekend's pictures.
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I really appreciate all the sweet comments on my blog, the love and interest in my little family:)
Please continue to pray for Selah, it's 9pm and her stats are perfect with no alarms sounding. Pray that we all get a good night's sleep. I have a headache and really want to sleep tonight! And I don't want her to be sick!
A poop day, indeed!
ReplyDeleteAt least it was a Chinese restaurant! My niece had a similar incident at a Chinese restaurant a couple weeks ago and the staff were very kind and understanding -- oddly unphased. Then one of the staff explained that kids in China don't wear diapers. They wear split pants through the toddler years and apparently, anywhere and everywhere is fair game when it comes to pooing! So most Chinese don't have the extreme poop aversion that Americans do!
So there's your fun bit of trivia for the day! LOL
That was my question on Sarah's eye. Thanks for your explanation!
That's sad to think that someday, she may be totally blind. I hope that never happens (or if it does, then by that time they'll have a way to fix it!)
I hope little Selah simmers down! Poor sweetie.
Is it possible she's having nightmares? I imagine your heartrate would rise during a bad dream. Especially if she's okay otherwise and during the day too.
Mia C.
A poop day, indeed!
ReplyDeleteAt least it was a Chinese restaurant! My niece had a similar incident at a Chinese restaurant a couple weeks ago and the staff were very kind and understanding -- oddly unphased. Then one of the staff explained that kids in China don't wear diapers. They wear split pants through the toddler years and apparently, anywhere and everywhere is fair game when it comes to pooing! So most Chinese don't have the extreme poop aversion that Americans do!
So there's your fun bit of trivia for the day! LOL
That was my question on Sarah's eye. Thanks for your explanation!
That's sad to think that someday, she may be totally blind. I hope that never happens (or if it does, then by that time they'll have a way to fix it!)
I hope little Selah simmers down! Poor sweetie.
Is it possible she's having nightmares? I imagine your heartrate would rise during a bad dream. Especially if she's okay otherwise and during the day too.
Mia C.
LOL I remember the split pants....hope these chinese folks are forgiving LOL
Deletewe don't think it is nightmares, we had had that thought also but who knows, right now I think the doctors would say she probably doesn't dream....it seems more related to her brain not regulating her heartbeat/BP
Dear Yvonne,
ReplyDeleteI am a Presbyterian Pastor in Springfield IL. I heard about the accident in August when one of my parishioners put it on our prayer list. You all have been on the list since then and I've been reading your entries each week while praying all the while. I am also an adoptive parent of a now 10 year old daughter from China. My husband is also a pastor. You have inspired and challenged me to continue to minister to the "orphans" of our world. Thank you for sharing. I'll keep reading and praying for Selah, your family and also you as your spirit and self are the glue that holds it all together.
Peace, Lonna
thank you! Very encouraging words:)
DeleteOh poop stories, kids never give you a dull moment. Praying Selah remains stable and you guys get some rest.
ReplyDelete:)
DeleteHi! I've been following your blog for quite some time, but have never commented. I just want you to know that I pray for Selah, and your family, every night. I cannot imagine how hard it is for you, even though I know you have great faith. I have 8 children and I have lived through an accident with my first child, I can't even put myself back at that time, 35 years ago. I live about 2 hours from Rochester, two of our children go to Golisano's for their needs, I will be there next month for surgery for our little guy that needs a bone graft. Please know that I will keep you in my prayers. Hugs to you. Sherrie
ReplyDeleteDo you stay at the Ronald McDonald House when you go up??? If you do tell all the staff HI for us:) we love them so much!!!
DeleteD you have adopted kids?
Strong's is the BEST hospital ever!
Yvonne, I'm sorry, I didn't realize that you replied here to people's comments! I don't normally read blog comments, and after reading a few that you received (what in the world are these people thinking!!!), I can see why! I don't understand meanness. We have not stayed at Strong overnight yet, this will be a first. Any surgeries for Tyler have been closer to home. I will certainly tell them you said hello, and tell them I "know" you, lol. Yes, we do have four children adopted from China, and four biological, ages 35 to 9. I am not nervous about Tyler's care at all, just a teeny bit about going by myself. I'm not complaining, I'm just a worry wart :-). Praying all goes well for you when you heard north.
DeleteStrong's is such an amazing place:) He will be in great hands but I so understand worry LOL!
DeleteRMH is amazing too!
We actually will be there May 6 for Sam's eyes LOL maybe we will meet in real life:)
Sometimes I think people are just a bit crazy and they need an outlet so "yelling" at an on line person makes them feel good about themselves....
I was at Strong for an when you were there, I watched for you as we were in different areas of the hospital, I wanted to give you a hug :-), but I did not want to intrude and come looking for you like a stalker, lol.
DeleteYou have a great attitude about the rude comments!
I'm praying for Selah to return home from the hospital.
Sherrie
Awww...I'd loved to have met you! I would have not thought of you as a stalker:) thank you for your prayers
Delete