Good Stuff!

Selah had a great appointment today with Dr Schnapf.  He and his associates like Dr C that we saw last time are out of Tampa General and work at USF Department of Pediatrics.  These Pulmonologists have changed our life!   Our wonderful pediatrician sent us to them (and annoyed me by doing it-I was a bit soured on specialists then) back in April when we could not keep Selah out of the hospital and St Joe's was NO help to us whatsoever....  Dr C put Selah on Tobimixion, an inhaled antibodic and it has just made our lives so much easier and kept Selah out of the hospital.  I'm really grateful to this group of doctors and how they LISTEN and treat the patient!  It's reassuring when you find a good doctor(s) like this. 

More good news we have a new weekend nurse coming to orientation today!   That means the nurse on duty will go over Selah's care with her.  The new nurse is experienced, loved by her patients and a friend of one of Selah's nurses.  She recently moved to our county and was wanting to find a patient to work for in this area so she didn't have to travel.  She is an older nurse, which I prefer and an adoptive mom:)  So after this weekend, we will have Friday & Saturday night covered.  There is a possibility that we may be able to have Sundays covered too.  I'm so happy!   I have discovered how much I appreciate a full night's sleep:)  And we were given permission for our regular night nurse to work tonight:)  So that makes the weekend easier for us. 

I'm still so grateful to all the people who helped us with our insurance/nursing problem.  From all the prayers, to Mike Fasino, Will Wetherford (who was on Fox news this am) to Gov Rick Scott...... we are really grateful for the help all of these folks gave us!   What a blessing to not have to worry about losing our nurses!!!!!!

More good news....
Our kids' Physical Therapist had told me about some type of grant for families to help buy a home.  I called and spoke to one of the staff at the office and was just treated so nice.  She was excited about working with our family and is sending us out a packet, then we will schedule and appointment and they will look at all the programs and contacts to see what would best fit us.  She had lots of ideas and many contacts.  I'm excited.

We know we have to move into a bigger home soon.  We actually live in a parsonage (owned by the church)  We could squeeze in before the accident but with Selah having to have her own room, it makes it hard.  Currently Shad & Steve gave up their room and sleep on air mattresses on the floor of the little ones' room.  I appreciate my boys, they have never once complained about not having a room.  All of their stuff is Jon's office at the church. 

We knew we couldn't live like this forever but we didn't have the 'wherewithall" to even think about moving before.  So many people offered to help right after the accident, emails, phone calls and texts.  We told everyone we could not even think about things being over a thousand miles away with a very sick child.  I've always been told not to make hasty decisions after a traumatic event.  We had to focus on Selah and getting her back to Florida.  It was too much to take in at once.  We knew we'd need to move as we didn't want to make accommodations to the parsonage since we don't own it.   Selah needs lifts and her own bathroom etc...lots of expense that once done. couldn't all be taken with us if we moved.  We've been able to "make do" since being home the past 8 months. 

Once home, none of the help we were offered....ever showed up.  I've had to just deal with it and remember that God is our Help.  And He really is....  He provides when there is a need.

So I've just sat back, really haven't "tried" to make things happen.  I didn't feel like I needed to "work" on things.  As you know I can make some things happen but I 've felt like God would work things out for us, when the time was right.

Also quite honestly a part of me has thought that maybe Selah would just be healed and we could go back to our "normal" which would be so much better to me than anything else!!!!!

I have a good feeling about this....it maybe the way God works things out for us.  We'd love a house big enough for the kids to have their own rooms and a therapy room!!!  We have therapy equipment in all the corners of our house now LOL!   There is even some things I can't use (like a ball pit) because we just don't' have room. 

Our son Steve will graduate this year and his plan is to start work as a correctional officer as soon as he turns 19 years old.  He hope to be in the Academy by his birthday next year.  In all probability he will work nights once he gets hired so he needs a good place to sleep during the day!  Not on the floor of the little kids' room!  Steve has wanted to be an officer since he was 10 years old.   He has never wavered on it:)  He has been in the prison and around it all his life.  We actually lived on the campus of the Polk City Prison when Jon was the chaplain there.  He has seen a lot and is fascinated by it.  Plus "back in the day" I used to take him with me to juvenile facilities when I did my monthly check of the clients.  He loved going with me.  I look back and can't believe I took him with me but he enjoyed it.  He's been to my office, seen me in court...it's all been a part of his life.  I'm just thankful he doesn't want to be a cop!  The only thing he wavers on is COLLEGE!  Sometimes he thinks he wants a BA in criminal justice but he has been told he can move up the ranks just as fast without it and of course have NO debt.  So he thinks he wants to go straight to work.  His goal is to be a warden one day:)    I don't know what would be best. college or just go to work.  Jon & I both graduated from college and assumed that our kids would too but it's a different world in 2013 than it was in the 80's......  Thankfully Steve has no plans of moving out anytime soon!  We really appreciate all the help he is to our family.

So a lot of good stuff going on....

Please keep Selah in your prayers as always.......







: