This is from yesterday
I don’t even know how to begin but we found out today something major about Sarah that has been missed all her life & specifically since this problem started in September. Following her Upper & lower G.I. today we were informed that she has malrotation of the small intestine. Her small intestines is all on the right side of her body instead of it running across her abdomen (see the link in the comments) She will have to have surgery within the next few days. Unfortunately her team is not sure that’s all that is wrong. Because of her intestines condition it can not be done laparoscopically.
There is so much going on right now. Personally I’m angry that it took so long to find an answer and that we had to keep coming back and pushing and pushing. I do feel like they were investigating everything but ONLY Because we would not back down. She has had x-rays and CAT scan and no one saw that until today which really upsets me. Right now I’m only concentrating on Sarah but when she is better It will be addressed with the different hospitals. We are relieved that this has been found & there is a partial answer. PLEASE PRAY! We are hoping we can have Dr Grant Giessler do the surgery (he did Sam’s spine tumor/tailbone surgery & he is the best. We did consult with the surgeon from his office but he is out of town until Monday. I really really want him to do the surgery. Please pray for my sweet girl if you really know me you know I have a special bond with Sarah. She was meant to be our daughter. When we were in the process of adopting her there was a situation where we thought we had lost her to another family. Since then I have dreams of losing her. This situation is very hard for me. I’ve vaguely heard of this condition before so the link in comments will answer your questions. Unfortunately they think there is something else going on too - no one knows exactly what but her large intestine is swollen with gas & looks stretched out. It looks like that’s gone on for some time. This condition does not affect the large intestines except sometimes where they meet. It’s a complicated situation.
Once we get through this with Sarah -Sam’s whole gastric system will be rechecked! He’s been so constipated lately & has had issues all his life with various Gastro issues.
We have so many other things going on I think Jon & I are in shock & just survival mode at this point. .
Just pray- God’s always been faithful throughout all our trials but I’m just beyond overwhelmed at this point"
We are now on day 8 of a hospital stay for Sarah with no end in sight. She will have this complicated surgery sometime next week. Daily she is in some pain. It is killing me. There has been mistakes, slowness and issues. Some meds should have been given to her days ago but are just being started. And the fact this is her second hospitalization with the same problem and this is just being found really upsets us Seeing Sarah in such pain is just heartbreaking. And it turns me into a BEAR! So you might want to pray for all the staff LOL (sorta)
We also have a very dear friend going through the trial of his life with a very aggressive cancer. Please pray that God will use this next treatment scheduled to help relieve pain and give him more time! We pray that he is healed completely.
My life has seen such highs and such lows. Right now I am in a very low spot. On top of everything I also found out that a friend I had worked with for many years died on January 1 from a bowel blockage. She did not survive the surgery. Unfortunately I could not even pay my respects to the family since Sarah is in the hospital.
We do not know what tomorrow holds or this coming week. We are very concerned and I'm literally sick on my stomach every minute. Today was the first day I really ate a real meal since this all started. Please pray for us! Pray for Sarah that this surgery will go smoothly and that the recovery will be easier than expected. Pray for my dear friend and for the family of my friend who passed away.
Although we are focused on these dire situations, I just can't help but remember today was 16 years since I was handed a little boy in Chengdu China....now he's a young man ready to embark on a career in law enforcement starting in just a few days! And I have to brag on Shad and Steve they have both been so sweet and helpful as our family has faced this new problem together I love my big boys!
Yvonne!! I am so so sorry!! Prayers and Love from Oklahoma!!! I haven't read your posts for a couple of months, so I started reading your oldest posts first - about the boys car wrecks - and now ended reading Sarah's surgery coming up! I am floored at all this... The medical world is just .. i can't even put it into words. The medical world is full of delays and what feel like major fails. Praying for your entire family and friends, and for God's protective healing bubble to surround Sarah (and Sam's) intestines.
ReplyDeleteSarah is very blessed that you are an unrelenting advocate. This household and our church will pray!
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