We are proud of Shad He was hired as an officer with the Florida Department of Corrections. He is still in training but this is something he has always been interested in. He plans to finish his college degree in Criminal Forensics.
I had the picture below come up on FB memories on the same day 9 years ago...
We were at St Augustine and he was pretending to be sad and stuck in the Old Jail. Who could think just 9 years later he would be working in a prison. Wasn't he cute?
Sarah is doing great! I have been so careful with her diet to ensure she gets nothing with lactose and gets gas meds before each meal. It's so wonderful to see her happy and relaxed again. Her incisions are almost healed up. She had a telehealth appointment today with the GI and he was pleased with her. next week she sees the surgeon.
Last Sunday Steve & Nichole shared about the mission trip they are taking to Puerto Rico
She and I also made crafts to sell. If you would like a wall hanging ($20) or a wooden plaque ($10) just let me know.
Aren't they cute?
Here are the links if you'd like to give to their missions trip!
These guys are pretty cute too
Sam was ready to go and eat!
Just lots of good things going on last week Sam had an appointment with his new pediatrician/complex care doctor. It was Sam’s first 3 hour appointment at the Arnold Palmer Complex Care Clinic in Orlando. I hate to drive interstate so I went the back way which took two hours. I still had plenty of time when we got there about 40 minutes early. However we could not find the clinic because it is a huge huge complex. So I finally found parking and I got Sam out in his wheelchair and we walked all over to find the right building . An intern even helped us out and I was absolutely dying to go to the bathroom because I had drank a whole Diet Coke so I did not pay attention to where we parked. Can I assure you that came back to bite me in the butt. I finally get to the right building into the office get Sam out of his wheelchair then they want to change rooms. I politely said no. One of the problems we were going to address t was Sam‘s constipation. However he decided to show the doctor he was not constipated. So we had to do a whole change as fast as I could because the doctor was wanting to start the appointment… that appointment sure was amazing and we definitely have a plan. She can follow Sam into his 30s/40’s. After we left the office I had absolutely no idea which of the dozen or so parking garage was the one I parked in…. After al that, going through Sam’s entire health history from conception on for 3 hours, walking about 2 miles pushing a 119 pound kid in a wheelchair I was absolutely done. I called security & they helped me find the van. By that point I just got on I-4 … I hate the interstate but it was easier than anything else. For real I had to fight a panic attack - I was able to push through but I literally almost just got a hotel room I NEVER get lost but I did today! Never again am I doing that by myself!
Sam & Sarah are going to a Complex Care Pediatrician/internist who is qualified to deal with all the parts of their lives including specialists & all the paperwork that comes with them! Despite the craziness- I think our new pediatrician is a GEM!
**Back story our wonderful Pediatrician retired & we’ve tried to find a new pediatrician but with all their needs & at their age it’s been beyond difficult. We did find a wonderful one and we talked to her but her office staff and the other doctors did not want to deal with my children and she had to call and tell me that. Can you believe something like that happened? Evidently the office staff got upset with Selah’s nursing agency who required some monthly paperwork. Then the office manager talked to the other doctors and the doctors said they didn’t want to have to care for Our kids if our doctor was out!. I had no idea this happened until the pediatrician called to talk to me. She was very kind and felt terrible but the decision was out of her hands. So basically the non-medical office staff did not like the amount of paperwork my kids generate as every month they get different types of supplies and then Selah with her nursing etc…..
I was beyond beat after that day but I'm also excited because this new doctor was just amazing. I feel that she will be able to guide us in the future with the kids. I've got all his new specialists set up
They will all be with the Arnold Palmer hospital so it'll make things easier. Sarah has her big appointment in March. Then we will set her up with new specialists.
So lots of stuff going on over here!
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