This morning at HBOT I had a great discussion with another parent. I like talking to people who are interesting and can discuss various points without being a pain LOL. Anyhow we were discussing different aspects of Christianity. His background is similar to mine, in some ways. We discussed healing and our thoughts on it.....just had an interesting talk. Then we somehow started talking about God's peace....that true deep peace....the peace that holds you when your world falls apart....it was really uplifting to talk to another traveler on a road similar to our road who knew about THAT peace, the kind that truly passes all understanding......
That conversation just reminded me of what a treasure we have in the wonderful peace....nothing can take it away from us. When life is hard, when you get bad news, when you wonder if your child will live and what kind of life that child will have, when you are in a hospital, ....there is still a peace that circumstances can not take away from you if you know the Giver of peace.....
While I would never ever chose to go through many things I've gone through....especially the last year of my life, what a amazing thing to realize that the peace of God that you've talked about, and sang about is REAL!!! You can't manufacture it, you can't pull on emotions, you can't fake it....but if you have that peace, there is nothing, nothing that can truly touch you.
It's is so real, it transcends the circumstances of life.....
Oh I cried, shook and even threw up...but in the core of my being was a peace that I could tangibly feel. It's hard to understand but if you would have asked me the night before if I could have handled what was to come, I would have said NO! But God and his wonderful peace was there for me in the worst hours of my life. I am so grateful to God for the peace He gives....
There is nothing in this world, no sin, no riches, no gains, that can ever replace that incredible peace of God. If you don't have it, repent and ask God to give you that peace and He is faithful to do that.....
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Keep praying for Selah as we start her last week of HBOT. We are hoping to see some big results. She has been quiet since Thursday but the hope is the new brain cells are growing.......with all the oxygen she gets.
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
Sunday, September 8, 2013
Saturday, September 7, 2013
Day 13 HBOT "Training up a Child"
Happy Saturday! Selah is still have a quieter time than I want her to have but that is usually how things go, a step forward and then a stop. I have hope this is just a resting period for her. One BIG thing I noticed today is she is not so stiff when I carry her. Generally our day nurse or Steve carries Selah for me but with Jon and the boys gone today, I had to carry her. usually she feels like a piece of wood, not today!!! She felt soft and sank into me, it was precious!!! Our weekend nurse said the same thing, that Selah "felt different". I know that sounds funny but hey, we are happy with every little change! Please keep praying for Selah!!!!
Jon is taking the boys to Night of Joy at Disney. It's a Christian concert with several groups playing. This is the first time Shad has gone to Night of Joy and he is so excited. It runs late, so I'm hoping he can stay up for it! But I'm sure the excitement will keep him up. He loves Disney.
Today I was just thinking of things.... (yes I'm about to get meddling) The bible talks about "raising your child up in the way they should go so when they are older they won't depart from it." Jon and I took that command very serious, since the day we became parents. I'm not saying we are perfect, not at all but I am saying we have tried our best to raise the kids right and to live right in front of them. You can take your kids to church, send them to a private school, take them to Christian concerts but if you don't walk the Christian walk daily in front of your kids, then you are not raising your child right.
I was raised very strict in a Pentecostal family. Jon was raised a lot less strict as far as spiritual things went. I saw a lot of craziness, Jon's family was very Ozzie & Harriet type (which I love!) He was allowed to go to movies, dances, whatever where I was not allowed to do any of that. It was all "worldly" So in raising our kids, we've allowed them a lot more freedom than I ever had while still not as loose as Jon was raised. If we tell them "no" to something, we give them a real reason. We never want to be legalistic but we also want to honor God in our lives.
Stephen is such a rock, he doesn't even want to do things that we feel are questionable. Maybe because he has some freedom and we talk about stuff, he isn't even interested in doing some things. He has always been such an adult.
When I was a teen, we all wanted to know "how far could we go and still be a Christian" That was the topic of many discussions.... What I learned over the years is it's not how far you can go and still be a Christian, it's "how close can you get to God"
There are things that don't tempt me, or call to me... I don't want it in my life. I don't want to be dirtied with it. And more than anything I want to be a good example to my kids.
I've seen plenty of Christians and even ministers who didn't live it out day to day. I have friends who have scars from their upbringing.....
One thing Jon and I have always said "what you see in public is what you'd see in private" We have nothing to hide.... The way we act together in front of folks is exactly how we act together when no one is around.... I've seen way too many minsters' family where it all was just one big act...I hate that! That is so not us, we are really honest and open.
Parents, have standards, hold those standards up during hard times and in every day life. Don' waver.... Believe the bible, every word of it and teach it to your kids. Live it out in front of them.
My kids have seen me get angry, but they've also seen me apologize. I'm not saying you have to be perfect, but you have to walk it out.
Don't bring filth into your home! We have cable but we have about 20 channels completely blocked on all our TVs. Then we also have anything over PG blocked on the other channels. We've lived like this for years. I don't even know the code anymore to unblock them LOL cause there is NOTHING for me to watch that my kids couldn't watch! If something is on that I don't want my kids to watch, I'm not going to watch it either!
I'll tell you the funniest story. When we were at the Ronald McDonald House in Rochester last year, one night my husband went to go get Steve & Shad for something. As he walked in to the basement TV room, he saw that MTV was on and the lights were off. There was someone sitting on the couch with his back to my husband. Jon said loudly "we do NOT watch MTV" the person ignored him for a moment then as Jon said "we do not watch MTV" a second time, as the person fumbled to change the channel. Jon flipped on the light, ready to give a lecture....and it was NOT his son sitting there LOL Unfortunately it was a teenage father of a newborn...... Jon did laugh and apologized, he explained he thought the boys were in the basement. The funny thing is the guy was scrambling to turn the channel LOL (BTW I think RMH deleted some channels too) That was a huge joke to us, even know we laugh about it. Steve was somewhat offended and said he wouldn't have had MTV on anyhow!
We don't buy DVD's that have any sexual content, or nudity or filthy language....it's just not something we crave to see. And don't tell me that "that's just life" funny thing, I've never sat and watched a couple have sex in real life, why should I watch a tv version of it???? Think about it....
We don't buy any filthy cd's. The worst we have is some Johnny Cash, some 70's music....we aren't going to have our kids' minds filled up with ungodly things.
Our boys have video games and we keep an eye on those too. I don't like ANY video games, but we all reach a compromise on them. That is the ONE thing I wish had never come into our home. Not that my kids have anything bad....it just sucks their minds right out of their skulls!
Am I telling you this to tell you how holy we are? No I am sharing with you our convictions based on the word of God. You have one chance to raise your kids....raise them in the fear and admonition of the Lord ~ I promise you will not regret it.
With Steve turning 18 years old next month, I've done some looking back...I don't have too many regrets, but I do wish video games had never come to our house. I wish I'd spent more time praying with and for him, I wish I would have encouraged him to read the Bible more....those are my only regrets. I find it very hard to pray out loud even in front of my kids but when he was little I used to read Psalms 1 to him all the time....
Blessed is the man that walketh not in the counsel of the ungodly, nor standeth in the way of sinners, nor sitteth in the seat of the scornful.
2 But his delight is in the law of the Lord; and in his law doth he meditate day and night.
3 And he shall be like a tree planted by the rivers of water, that bringeth forth his fruit in his season; his leaf also shall not wither; and whatsoever he doeth shall prosper.
4 The ungodly are not so: but are like the chaff which the wind driveth away.
5 Therefore the ungodly shall not stand in the judgment, nor sinners in the congregation of the righteous.
6 For the Lord knoweth the way of the righteous: but the way of the ungodly shall perish.
I prayed this over him that he be a godly man....we didn't want him to be in the counsel of the ungodly or stand around with the sinners or sit with the scornful..... Can you see the progression of sin...First you are walking with the ungodly, then you are standing around hanging out with them then you sit down with them.....
Some people would say that in keeping our kids in private school or homeschooling them we were "protecting them from the world" You are right, we have and will continue to do so. If you ever plant a tree, you don't just plant it and leave it, you usually put up a stand around it or you put poles beside and tie it to the poles to give it some strength in the winds and storms.... That is how we see our job as a parent, to protect our children till they are old and strong enough to stand on their own spiritually.
My kids have seen PLENTY Of the real world...we are pretty open with them. They've seen the outcome of sin in people's lives. They've seen men in prison (yes we have taken our kids into the prison) they have seen broken people in our church or people we have gone to their homes. They have seen broken families.... They've visited nursing homes, they've been in orphanages, been to funerals and to visit the sick in the hospital, they've done outreaches in the inner city, they've seen people ravaged by drugs and alcohol. ..... They've dealt with all of our LIFE that we've walked out in front of them. I'm pretty sure they have a good idea of what real LIFE is..... Real life isn't singing some stupid rap song with a million cuss words in it.
Don't be afraid to tell kids what sin is and warn them to stay away from it. Some folks say "well I'll just let them decide things on their own" WHAT? You are going to let kids decide their spiritual fate on their own? That is crazy talk! That's like saying I'll just let them eat cake every day and I'll let them decide when they want something else.... or I'll let them decide IF they want to go to school.......Of course you wouldn't' do something so stupid. If you believe the bible, you need to be sharing it with your kids. If you see something on the news, don't just shake your head and say the world is just going to hell in a hand basket....explain to your children WHY that is mentioned in the Word of God and how we should respond as Christians.
Don't worry about being your kids' best friend...be their parent....
And let me tell you all with older teens and young adult kids, don't wink at sin and accept it in your child's life. If your child is involved with someone, why in the world would you let them move back into your house with their live in boy/girlfriend..... I see people do that and I just shake my head..... Love your kid, no matter what, but don't make it easy for your child to be involved in sinful activities.
I say all the time, that I know we can not control what our kids do when they are older BUT we can control how hard we make it for them to do wrong things. My kids might end up in a mess BUT they will have to go through me to do it! I would stand in their way and oppose it all the way....so would Jon. I'd love them every second, but I would never just shrug my shoulders and accept something. I see too much acceptance in the church world today, no one wants to offend anyone.... the bible teaches us to encourage each other to do good works and to avoid sin.
I've often thought what I'd do if one of the boys got into drugs or alcohol, we've told them from when they first heard of such things that if we ever even suspected it, we'd have them in a program so quick they wouldn't know what hit them. Having worked with individuals with those issues for so many years (both Jon and I ) we have our eyes wide open.
I'm not one of those parents who thinks that their sweet children could never do wrong....I think everyone has the potential to do wrong, I believe in original sin....LOL Shoot I know myself and what I'm capable of so why would I think differently about anyone else??? I have been quite amazed at myself at various times so ......
Tonight I feel like I should share this. Maybe it will help one family......
---------------------------------------------------------------------------------------------------------------------------
Jon is taking the boys to Night of Joy at Disney. It's a Christian concert with several groups playing. This is the first time Shad has gone to Night of Joy and he is so excited. It runs late, so I'm hoping he can stay up for it! But I'm sure the excitement will keep him up. He loves Disney.
Today I was just thinking of things.... (yes I'm about to get meddling) The bible talks about "raising your child up in the way they should go so when they are older they won't depart from it." Jon and I took that command very serious, since the day we became parents. I'm not saying we are perfect, not at all but I am saying we have tried our best to raise the kids right and to live right in front of them. You can take your kids to church, send them to a private school, take them to Christian concerts but if you don't walk the Christian walk daily in front of your kids, then you are not raising your child right.
I was raised very strict in a Pentecostal family. Jon was raised a lot less strict as far as spiritual things went. I saw a lot of craziness, Jon's family was very Ozzie & Harriet type (which I love!) He was allowed to go to movies, dances, whatever where I was not allowed to do any of that. It was all "worldly" So in raising our kids, we've allowed them a lot more freedom than I ever had while still not as loose as Jon was raised. If we tell them "no" to something, we give them a real reason. We never want to be legalistic but we also want to honor God in our lives.
Stephen is such a rock, he doesn't even want to do things that we feel are questionable. Maybe because he has some freedom and we talk about stuff, he isn't even interested in doing some things. He has always been such an adult.
When I was a teen, we all wanted to know "how far could we go and still be a Christian" That was the topic of many discussions.... What I learned over the years is it's not how far you can go and still be a Christian, it's "how close can you get to God"
There are things that don't tempt me, or call to me... I don't want it in my life. I don't want to be dirtied with it. And more than anything I want to be a good example to my kids.
I've seen plenty of Christians and even ministers who didn't live it out day to day. I have friends who have scars from their upbringing.....
One thing Jon and I have always said "what you see in public is what you'd see in private" We have nothing to hide.... The way we act together in front of folks is exactly how we act together when no one is around.... I've seen way too many minsters' family where it all was just one big act...I hate that! That is so not us, we are really honest and open.
Parents, have standards, hold those standards up during hard times and in every day life. Don' waver.... Believe the bible, every word of it and teach it to your kids. Live it out in front of them.
My kids have seen me get angry, but they've also seen me apologize. I'm not saying you have to be perfect, but you have to walk it out.
Don't bring filth into your home! We have cable but we have about 20 channels completely blocked on all our TVs. Then we also have anything over PG blocked on the other channels. We've lived like this for years. I don't even know the code anymore to unblock them LOL cause there is NOTHING for me to watch that my kids couldn't watch! If something is on that I don't want my kids to watch, I'm not going to watch it either!
I'll tell you the funniest story. When we were at the Ronald McDonald House in Rochester last year, one night my husband went to go get Steve & Shad for something. As he walked in to the basement TV room, he saw that MTV was on and the lights were off. There was someone sitting on the couch with his back to my husband. Jon said loudly "we do NOT watch MTV" the person ignored him for a moment then as Jon said "we do not watch MTV" a second time, as the person fumbled to change the channel. Jon flipped on the light, ready to give a lecture....and it was NOT his son sitting there LOL Unfortunately it was a teenage father of a newborn...... Jon did laugh and apologized, he explained he thought the boys were in the basement. The funny thing is the guy was scrambling to turn the channel LOL (BTW I think RMH deleted some channels too) That was a huge joke to us, even know we laugh about it. Steve was somewhat offended and said he wouldn't have had MTV on anyhow!
We don't buy DVD's that have any sexual content, or nudity or filthy language....it's just not something we crave to see. And don't tell me that "that's just life" funny thing, I've never sat and watched a couple have sex in real life, why should I watch a tv version of it???? Think about it....
We don't buy any filthy cd's. The worst we have is some Johnny Cash, some 70's music....we aren't going to have our kids' minds filled up with ungodly things.
Our boys have video games and we keep an eye on those too. I don't like ANY video games, but we all reach a compromise on them. That is the ONE thing I wish had never come into our home. Not that my kids have anything bad....it just sucks their minds right out of their skulls!
Am I telling you this to tell you how holy we are? No I am sharing with you our convictions based on the word of God. You have one chance to raise your kids....raise them in the fear and admonition of the Lord ~ I promise you will not regret it.
With Steve turning 18 years old next month, I've done some looking back...I don't have too many regrets, but I do wish video games had never come to our house. I wish I'd spent more time praying with and for him, I wish I would have encouraged him to read the Bible more....those are my only regrets. I find it very hard to pray out loud even in front of my kids but when he was little I used to read Psalms 1 to him all the time....
Blessed is the man that walketh not in the counsel of the ungodly, nor standeth in the way of sinners, nor sitteth in the seat of the scornful.
2 But his delight is in the law of the Lord; and in his law doth he meditate day and night.
3 And he shall be like a tree planted by the rivers of water, that bringeth forth his fruit in his season; his leaf also shall not wither; and whatsoever he doeth shall prosper.
4 The ungodly are not so: but are like the chaff which the wind driveth away.
5 Therefore the ungodly shall not stand in the judgment, nor sinners in the congregation of the righteous.
6 For the Lord knoweth the way of the righteous: but the way of the ungodly shall perish.
I prayed this over him that he be a godly man....we didn't want him to be in the counsel of the ungodly or stand around with the sinners or sit with the scornful..... Can you see the progression of sin...First you are walking with the ungodly, then you are standing around hanging out with them then you sit down with them.....
Some people would say that in keeping our kids in private school or homeschooling them we were "protecting them from the world" You are right, we have and will continue to do so. If you ever plant a tree, you don't just plant it and leave it, you usually put up a stand around it or you put poles beside and tie it to the poles to give it some strength in the winds and storms.... That is how we see our job as a parent, to protect our children till they are old and strong enough to stand on their own spiritually.
My kids have seen PLENTY Of the real world...we are pretty open with them. They've seen the outcome of sin in people's lives. They've seen men in prison (yes we have taken our kids into the prison) they have seen broken people in our church or people we have gone to their homes. They have seen broken families.... They've visited nursing homes, they've been in orphanages, been to funerals and to visit the sick in the hospital, they've done outreaches in the inner city, they've seen people ravaged by drugs and alcohol. ..... They've dealt with all of our LIFE that we've walked out in front of them. I'm pretty sure they have a good idea of what real LIFE is..... Real life isn't singing some stupid rap song with a million cuss words in it.
Don't be afraid to tell kids what sin is and warn them to stay away from it. Some folks say "well I'll just let them decide things on their own" WHAT? You are going to let kids decide their spiritual fate on their own? That is crazy talk! That's like saying I'll just let them eat cake every day and I'll let them decide when they want something else.... or I'll let them decide IF they want to go to school.......Of course you wouldn't' do something so stupid. If you believe the bible, you need to be sharing it with your kids. If you see something on the news, don't just shake your head and say the world is just going to hell in a hand basket....explain to your children WHY that is mentioned in the Word of God and how we should respond as Christians.
Don't worry about being your kids' best friend...be their parent....
And let me tell you all with older teens and young adult kids, don't wink at sin and accept it in your child's life. If your child is involved with someone, why in the world would you let them move back into your house with their live in boy/girlfriend..... I see people do that and I just shake my head..... Love your kid, no matter what, but don't make it easy for your child to be involved in sinful activities.
I say all the time, that I know we can not control what our kids do when they are older BUT we can control how hard we make it for them to do wrong things. My kids might end up in a mess BUT they will have to go through me to do it! I would stand in their way and oppose it all the way....so would Jon. I'd love them every second, but I would never just shrug my shoulders and accept something. I see too much acceptance in the church world today, no one wants to offend anyone.... the bible teaches us to encourage each other to do good works and to avoid sin.
I've often thought what I'd do if one of the boys got into drugs or alcohol, we've told them from when they first heard of such things that if we ever even suspected it, we'd have them in a program so quick they wouldn't know what hit them. Having worked with individuals with those issues for so many years (both Jon and I ) we have our eyes wide open.
I'm not one of those parents who thinks that their sweet children could never do wrong....I think everyone has the potential to do wrong, I believe in original sin....LOL Shoot I know myself and what I'm capable of so why would I think differently about anyone else??? I have been quite amazed at myself at various times so ......
Tonight I feel like I should share this. Maybe it will help one family......
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Duck Dynasty's newest member Uncle Sam!
Friday, September 6, 2013
Day 12 HBOT
Today has been a NORMAL one, no calls from the Governor or the Speaker of the House, no hordes of reporters wanting to talk to us...LOL just me and the boys at the grocery store! Life back to "normal" at our house. I can truly say I slept GREAT last night:) It was a blessing not to have this insurance fight hanging over our heads. I am so grateful to everyone who was involved in this fight for us....but I'm most thankful to God for this victory.
I really hope you can view the videos, my friend put them on YouTube so if you want to go to my last blog to open them, I think you can.
http://www.youtube.com/watch?v=ME3CcBfa-BU&feature=youtu.be
http://www.youtube.com/watch?v=DjjMM3h6pF8&feature=youtu.be
Today Selah worked her mouth like she has been doing but didn't lift her head as many times. In fact she napped a lot, yesterday was a BIG day for all of us and I think she was tired. She is doing great, no issues at all.
Friday is like a weekend for us, since Jon is off on Fridays. He did all his visitation for the church last Monday so today was a chill out day for us:) He took Selah and our nurse to therapy and back and I had the fun of grocery shopping.
Another friend of mine shared a dream she had where Selah woke up.... I love that everyone dreams about her waking up and being healed:) There were times when it hurt when I dreamed that happened because it seemed so impossible....but I have more hope again....
Thought these pictures would be funny. This first one is today's Tampa Bay Times....Jon and Selah are on the top right hand side (sorry the picture didn't turn) and Putin is the big picture. We were cracking up when Jon noticed that he and Selah were on the same page as Putin:)
I really hope you can view the videos, my friend put them on YouTube so if you want to go to my last blog to open them, I think you can.
http://www.youtube.com/watch?v=ME3CcBfa-BU&feature=youtu.be
http://www.youtube.com/watch?v=DjjMM3h6pF8&feature=youtu.be
Today Selah worked her mouth like she has been doing but didn't lift her head as many times. In fact she napped a lot, yesterday was a BIG day for all of us and I think she was tired. She is doing great, no issues at all.
Friday is like a weekend for us, since Jon is off on Fridays. He did all his visitation for the church last Monday so today was a chill out day for us:) He took Selah and our nurse to therapy and back and I had the fun of grocery shopping.
Another friend of mine shared a dream she had where Selah woke up.... I love that everyone dreams about her waking up and being healed:) There were times when it hurt when I dreamed that happened because it seemed so impossible....but I have more hope again....
Thought these pictures would be funny. This first one is today's Tampa Bay Times....Jon and Selah are on the top right hand side (sorry the picture didn't turn) and Putin is the big picture. We were cracking up when Jon noticed that he and Selah were on the same page as Putin:)
This is the spider that lives in my honeysuckle bush. she/he is huge and had spun a web, probably 18 ft tall, from the bush up to the phone line. Unreal. I love stuff like this, we watched him as long as we could last night but the mosquitoes were getting us, so we wished the spider good luck and went inside!
Then when I went inside, Sarah had crawled up on the couch and was asleep:) She always likes to fall asleep in the living room with everyone in there so most nights she crashes on the floor. But I guess she figured out the couch felt better than the floor!
Sarah has always been the happiest and easiest child in the world. I have never been able to go and put her to bed until she was asleep. Not that she wouldn't' go, she rarely cries, but I think of all the nights she was alone....tied to a bed.... and want her to be with us as long as possible. She is quite happy to be with us also.
I love my sweet Sarah Joy....
Please keep praying for Selah!!! I feel like things are happening inside her little mind. Please pray this HBOT will work for her..... Thank you for all the kind and happy comments!!!!!!
New Selah Videos... on Youtube!
Hopefully you can all see these!
The first one - http://www.youtube.com/watch?v=ME3CcBfa-BU&feature=youtu.be
And the second one - http://www.youtube.com/watch?v=DjjMM3h6pF8&feature=youtu.be
The first one - http://www.youtube.com/watch?v=ME3CcBfa-BU&feature=youtu.be
And the second one - http://www.youtube.com/watch?v=DjjMM3h6pF8&feature=youtu.be
Thursday, September 5, 2013
Selah lifting her head!!!! Video
https://www.facebook.com/video/embed?video_id=10201745605832222
Not sure if you can see this, if you can't I'll try and repost tomorrow but Selah is busy lifting her head/shoulders....we are all ecstatic! She did this a little bit but just today she is doing it over and over again.....and her heart rate is low, she is not upset and almost seems like she is doing it on command..... we are blown away..... hope you can see this!!!!
https://www.facebook.com/video/embed?video_id=10201745616352485
here is a 2nd one!
Not sure if you can see this, if you can't I'll try and repost tomorrow but Selah is busy lifting her head/shoulders....we are all ecstatic! She did this a little bit but just today she is doing it over and over again.....and her heart rate is low, she is not upset and almost seems like she is doing it on command..... we are blown away..... hope you can see this!!!!
https://www.facebook.com/video/embed?video_id=10201745616352485
here is a 2nd one!
Day 11 LOTS OF AMAZING NEWS~
Today has been an amazing day:)
Started off this morning, I couldn't find my IPhone anywhere.... my son found it in the fridge....I swear that phone is possessed! I know I did not put it in there.... ummm I HOPE I did not put it there!)
Anyhow I'd missed a call from the Mr Weatherford, the Florida Speaker of the House. I called his office back and one of his assistants asked when would be a good time for him to call to share some good news....I said "Anytime!" So in a few minutes I get a call but it is from a staffer in the Governor's office! He asked if I'd be available to speak to Governor Rick Scott in about 5 minutes? I squeaked out a "YES!" I got off the phone, and my hands started sweating LOL. In just a couple of minutes the Governor called. "Hello this is Rick Scott" He went on to speak about our family and was very kind. He told me a wavier had been signed so that Selah could continue having 24/7 nursing care. He said I would be getting some calls later to go over everything and he even gave me a number to his direct line in case there were any problems. I thanked him for everything and for taking the time to call us.
We are just amazed that the Governor would take the time to call us personally. We have no big connections to anyone, can't really help out anyone's campaign much, give no bid donations....and yet he took the time to call us personally. That was just incredible to us! Thank you Mr Scott!
Then Rep. Will Weatherford called and we talked for a little bit. I was able to thank him for all of his work on behalf of our girl. He is a great guy, very approachable and very kind.
We've not yet gotten the opportunity to thank Mr Mike Fasano (Pasco Co Tax Collector) yet but he is the one who really got the ball rolling for us!
We are so grateful to everyone involved, all of the media who were so kind to share our situation and get the word out and we are grateful to God for this answer to prayer! Just last night I woke up and worried about this whole thing for an hour or so:) So glad I won't have to do that tonight ( I'll find something new to worry about tonight LOL)
Now some news on Selah..... she is MOVING more than ever. She has always been able to lift her shoulders/head off the bed for a few seconds and would occasionally do it (like once every couple of days) . Now she is doing it several times an hour. She is also moving just her left arm at times. This is good because it seems when a person has brain damage like she has, they tend to move both arms together. She is also moving her mouth, sticking her tongue out and she seems to have more control over her mouth movement. This is brand new to her, just started yesterday. In a ten minute time frame we counted her sticking her tongue out 11 times:) She may be telling us what she thinks about everything LOL but it is good because this is something that is tangible, something we can see that she did not do at all before. It looks like the kind of movement a baby makes.... this is a good thing!!
We did an interview with CBS at our home and then I did an interview with Bay News 9 at the HBOT clinic. What a wild day this has been!!!!!
Please continue to pray for Selah! We would LOVE not to need any nursing care at all for her. I miss my little funny girl. Pray that God will use this HBOT to bring her back to us.....
http://www.tampabay.com/news/humaninterest/clanton-family-of-zephryhills-wins-fight-with-state-to-continue-nursing/2140142
Started off this morning, I couldn't find my IPhone anywhere.... my son found it in the fridge....I swear that phone is possessed! I know I did not put it in there.... ummm I HOPE I did not put it there!)
Anyhow I'd missed a call from the Mr Weatherford, the Florida Speaker of the House. I called his office back and one of his assistants asked when would be a good time for him to call to share some good news....I said "Anytime!" So in a few minutes I get a call but it is from a staffer in the Governor's office! He asked if I'd be available to speak to Governor Rick Scott in about 5 minutes? I squeaked out a "YES!" I got off the phone, and my hands started sweating LOL. In just a couple of minutes the Governor called. "Hello this is Rick Scott" He went on to speak about our family and was very kind. He told me a wavier had been signed so that Selah could continue having 24/7 nursing care. He said I would be getting some calls later to go over everything and he even gave me a number to his direct line in case there were any problems. I thanked him for everything and for taking the time to call us.
We are just amazed that the Governor would take the time to call us personally. We have no big connections to anyone, can't really help out anyone's campaign much, give no bid donations....and yet he took the time to call us personally. That was just incredible to us! Thank you Mr Scott!
Then Rep. Will Weatherford called and we talked for a little bit. I was able to thank him for all of his work on behalf of our girl. He is a great guy, very approachable and very kind.
We've not yet gotten the opportunity to thank Mr Mike Fasano (Pasco Co Tax Collector) yet but he is the one who really got the ball rolling for us!
We are so grateful to everyone involved, all of the media who were so kind to share our situation and get the word out and we are grateful to God for this answer to prayer! Just last night I woke up and worried about this whole thing for an hour or so:) So glad I won't have to do that tonight ( I'll find something new to worry about tonight LOL)
Now some news on Selah..... she is MOVING more than ever. She has always been able to lift her shoulders/head off the bed for a few seconds and would occasionally do it (like once every couple of days) . Now she is doing it several times an hour. She is also moving just her left arm at times. This is good because it seems when a person has brain damage like she has, they tend to move both arms together. She is also moving her mouth, sticking her tongue out and she seems to have more control over her mouth movement. This is brand new to her, just started yesterday. In a ten minute time frame we counted her sticking her tongue out 11 times:) She may be telling us what she thinks about everything LOL but it is good because this is something that is tangible, something we can see that she did not do at all before. It looks like the kind of movement a baby makes.... this is a good thing!!
We did an interview with CBS at our home and then I did an interview with Bay News 9 at the HBOT clinic. What a wild day this has been!!!!!
Please continue to pray for Selah! We would LOVE not to need any nursing care at all for her. I miss my little funny girl. Pray that God will use this HBOT to bring her back to us.....
http://www.tampabay.com/news/humaninterest/clanton-family-of-zephryhills-wins-fight-with-state-to-continue-nursing/2140142
Wednesday, September 4, 2013
Day 10 HBOT Half way mark
Today is our half way mark on the HBOT. Our nurse took Selah today. I have not felt well and had a lot of paperwork to do for various things...school stuff for all the kids including Steve, church work and even some personal work to do....
Selah is doing good. Sometimes I do forget to be thankful. I've followed 3 other families who had children in near drownings around the same time as Selah....one little girl recently past away, one little guy had to go back on a vent, and the other little girl has had pneumonia..... Selah has been so stable ....and I am thankful for her being stable and my prayers are with the other families......
So today is short and sweet..... everything is good...we're still praying for Selah and I'm thankful to know you are too!
We've done great on the fast except for Sunday& Monday & Tuesday....just fell off a little (me and the boys- Jon has gone strong!) But we are back on it good and made sure we don't have anything in the house to tempt us!
Selah is doing good. Sometimes I do forget to be thankful. I've followed 3 other families who had children in near drownings around the same time as Selah....one little girl recently past away, one little guy had to go back on a vent, and the other little girl has had pneumonia..... Selah has been so stable ....and I am thankful for her being stable and my prayers are with the other families......
So today is short and sweet..... everything is good...we're still praying for Selah and I'm thankful to know you are too!
We've done great on the fast except for Sunday& Monday & Tuesday....just fell off a little (me and the boys- Jon has gone strong!) But we are back on it good and made sure we don't have anything in the house to tempt us!
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