Saturday, September 28, 2013

Turtle Soup

 
Our wildlife of the day....
a snapping or alligator turtle that made it into our yard.  Steve got a shovel and put him over the back fence so he could head off towards the river.....
 
 
 
 
I tried to pick him up but he wanted to take a piece of me....
But we didn't make turtle soup
 
 

 
Good day yesterday.  I took the boys to a late movie, it was actually a really cute one "Cloudy with a chance of Meatballs 2"  I LOVE going to movies.  I wasn't allowed to go to them when I was growing up.  In fact the first one I saw was "Blue Lagoon"  I was pretty sure that Jesus was going to come back and I'd be "left behind"  The ironic thing is my best friends' dad owned the theater in our town until it burned down!  When I was a senior in high school and a bit older, I did go and work some weekends at his other theater in Madison Fl.  That was fun to me.  One of my friends and me saw one of the "Freddy Movies" at a midnight showing and were too afraid to run to her car LOL  fun times! 
 
Anyhow I love going to the movies, we don't go that often, but sometimes it is just fun to go , get a Pepsi and some pop corn and have a good time!  That's what we did last night.
 
And why was I able to go to the movies?  We had a night nurse:)  and Jon stayed with the little ones who were already in bed:)  It was a good time!!!
 
And we have a night nurse tonight!!!!  WOOHOO!  You have no idea how good it is to know you'll be able to sleep through the night!
 
 
Sarah now will touch MY nose when I say "where is mommy's nose?"   She learned it just since yesterday.  She has the WORST habit of hitting us over and over again.  Not in anger but just to touch us.  It's hard to explain.  Being blind, she now feels confident to touch us but she has to do it quickly, she won't stroke my arm like Sam would do, she would lightly hit my arm over and over again, just to touch me.  Sam did this a little bit but only for a short time.  So now I catch her hand and kiss it and then while I'm holding her hand in mine, put my hand to her mouth for her to kiss my hand....just today she is starting to put her mouth on my hand when I bring it up to her mouth.  It's really cute.   We are really trying to discourage the hitting which a friend of mine described as "being pecked to death by a duck"  LOL  Please understand she is not unhappy when she does it, she just wants contact but can't handle her hands touching someone for a long time.  So it satisfies her need to touch and explore.  She will also hit objects at times, so she can touch them but not too much.  We totally get it and it is a "blind" behavior for kids who can't tolerate too much touch.  Sarah loves to be touched but even then sometimes she will move your arm from around her.  She'll want to sit on my lap but can only tolerate my arm for a little while.  Sam was soooooooo the same when he was little.  Sam totally prepared us for Sarah. 
 
I've gotten on to her but just raising my voice and saying NO loudly scares her and I can't do that to her.  I'd much rather change her behavior by love than discipline.  I say NO softly then kiss her hand...it seems to be helping without scaring her.   She loves to reach out to us.  And she loves rocking herself in this chair.  She'll sit there for an hour and rock happily.  It is actually good for her, it gives her the vesicular  motion she craves in a "normal" way. 
 
 
Sam lost another tooth...his third in just a couple of months.  Now he is 9.5 he is actually loosing teeth.  His dental stuff has been quite interesting.  He didn't have any teeth until almost 2 years old...then he grew his front bottom ones and top ones in a short amount of time.  It took a long time for his baby teeth to all come in.  We've seen several dentists and they'd never seen anything like this!  So he is starting to lose teeth about 3 years later than most kids. 
 
We have often wondered if Sam had a gene that kept him younger longer....  We've all heard of the genetic condition, progeria, that ages kids  faster and they die young looking like an old person....  Well for Sam, it's the opposite, he seems so delayed in his growth that maybe he has a "youth gene"
Sam has so many unusual things that we have actually brought up a theory like that to several doctors and Geneticist.  No one really has taken us seriously but we did see a medical show on three kids suspected of having something like that and it doesn't have a name yet.  Sam was more mentally advanced than the other three on tv but we contacted that Geneticist  and gave them our info.  He did not put Sam into their study since he has a chromnosal deletion in another area....  But they have our info if they ever expand the study.   I tell you our dentist thinks Sam is unique, he'd never seen a child take so long to have teeth.  Just last year Sam went back to the dentist and he said the xray of Sam's mouth looked more like a 4 yr old's than a 8 year old's. 
 
I think the doctors felt like we weren't accepting of Sam's disabilities.  But that was not the case, there were just so many odd things even like his hair and teeth not coming in.  Yes he is delayed but he makes "normal advances".  Most kids with developmental disorders, as they learn to do things, they dont' do them in the "correct way" like crawling and walking....  Neither Sarah or Selah knew the correct way to crawl and Selah didn't know the correct way to walk....the steps in walking like how to get herself up off the floor.  That is a basic skill how a child learns to stand.  A lot of kids with developmental disorders, "commando crawl" rather than crawl normally, it's like steps are not included.
 
Well Sam has been slow, but he has done each step in his gross motor skills in the correct way.  He crawled, learned to pull up and walk correctly even with not having good sight.  He has learned to walk up stairs etc...in the correct ways.  That is what gives us and a few of the folks we've worked with/seen over the years some questions about an undiagnosed genetic condition.....  Anyhow it is interesting to think about.  We kidded around when we went to St Augustine's Fountain of Youth that Sam didn't need to drink anymore of it!  LOL 
 
 
But hey for good luck we gave him some:)
 
 
And I guzzled down some and bought a whole bottle of it!
 
We have a night nurse tonight too!!!!!  Happiness!
 
Well everyone have a good night, and please remember Selah in your prayers.
 
 
 
 
 
 
 

Friday, September 27, 2013

Building My Faith

I seldom go back and read my blog.  Some of it just brings up too much emotion to me.  But I went back today for a few minutes and read our adoption story for the girls....  God did so many financial miracles for us and them.  I felt like I was living in the middle of a miracle.....  I just want to share a few of those blogs on here in order....

http://myreallifebyyvonne.blogspot.com/2011/12/need-miracle-again.html
This one, we realized just how much more money we needed.....Note the date...Dec 28 2011....

http://myreallifebyyvonne.blogspot.com/2012/01/faithfulness-of-god-we-got-another.html  note the date on this one.....January 1 2012.....  (and it was written about the miracle that happened on Dec 31 2011

http://myreallifebyyvonne.blogspot.com/2012/01/faithful-god.html  then this note the date...

http://myreallifebyyvonne.blogspot.com/2012/02/new-van.html  and this.....

Actually if you read from September 2011 till Feb 2011, there are crazy miracles after miracles happening.....it's something else.  I'm so glad I wrote it all down, so many little details I had forgotten but reading it brings everything back. 

Reading over those few weeks, was like a balm to my soul.....   God showed Himself to be so faithful to us and the girls. 

I don't understand all of God's ways, I don't know what the future holds for us for Selah but I know God is good and He is Faithful.  Looking back at their story, makes me know there is more ahead for us, not necessarily financially or materially, but spiritually.....this is not it.  God will remain faithful to us and to our girls just like He was in 2011! 

Reading these blogs makes my faith rise and also makes me sad, remembering all the amazing things and feeling like the future was so bright....  This is another time when I just have to trust God and not be afraid. 

I've said and thought so many times that our girls' story was like a Cinderella story but I never thought the story would have this part in it.   Somehow I just have to know this is not how the story will end for us and for Selah.  Please continue praying for our little LaLa that God will heal her mind and bring her back to us. 


--------------------------------------------------------------------------------------------------------------------------

Today was 31 years ago that my  great aunt "Boot Mama" Bertha Phillips, the lady who raised me died.  She was born in 1899....took me as a baby in 1965 at the ripe old age of 66!  She loved me and cared for me until she left us first from dementia and then in death.  I hope she knows now what she planted in my heart all those years ago.  I literally owe my life to her and probably three little ones from across the ocean do too.  I love you Mama! 

Good Stuff!

Selah had a great appointment today with Dr Schnapf.  He and his associates like Dr C that we saw last time are out of Tampa General and work at USF Department of Pediatrics.  These Pulmonologists have changed our life!   Our wonderful pediatrician sent us to them (and annoyed me by doing it-I was a bit soured on specialists then) back in April when we could not keep Selah out of the hospital and St Joe's was NO help to us whatsoever....  Dr C put Selah on Tobimixion, an inhaled antibodic and it has just made our lives so much easier and kept Selah out of the hospital.  I'm really grateful to this group of doctors and how they LISTEN and treat the patient!  It's reassuring when you find a good doctor(s) like this. 

More good news we have a new weekend nurse coming to orientation today!   That means the nurse on duty will go over Selah's care with her.  The new nurse is experienced, loved by her patients and a friend of one of Selah's nurses.  She recently moved to our county and was wanting to find a patient to work for in this area so she didn't have to travel.  She is an older nurse, which I prefer and an adoptive mom:)  So after this weekend, we will have Friday & Saturday night covered.  There is a possibility that we may be able to have Sundays covered too.  I'm so happy!   I have discovered how much I appreciate a full night's sleep:)  And we were given permission for our regular night nurse to work tonight:)  So that makes the weekend easier for us. 

I'm still so grateful to all the people who helped us with our insurance/nursing problem.  From all the prayers, to Mike Fasino, Will Wetherford (who was on Fox news this am) to Gov Rick Scott...... we are really grateful for the help all of these folks gave us!   What a blessing to not have to worry about losing our nurses!!!!!!

More good news....
Our kids' Physical Therapist had told me about some type of grant for families to help buy a home.  I called and spoke to one of the staff at the office and was just treated so nice.  She was excited about working with our family and is sending us out a packet, then we will schedule and appointment and they will look at all the programs and contacts to see what would best fit us.  She had lots of ideas and many contacts.  I'm excited.

We know we have to move into a bigger home soon.  We actually live in a parsonage (owned by the church)  We could squeeze in before the accident but with Selah having to have her own room, it makes it hard.  Currently Shad & Steve gave up their room and sleep on air mattresses on the floor of the little ones' room.  I appreciate my boys, they have never once complained about not having a room.  All of their stuff is Jon's office at the church. 

We knew we couldn't live like this forever but we didn't have the 'wherewithall" to even think about moving before.  So many people offered to help right after the accident, emails, phone calls and texts.  We told everyone we could not even think about things being over a thousand miles away with a very sick child.  I've always been told not to make hasty decisions after a traumatic event.  We had to focus on Selah and getting her back to Florida.  It was too much to take in at once.  We knew we'd need to move as we didn't want to make accommodations to the parsonage since we don't own it.   Selah needs lifts and her own bathroom etc...lots of expense that once done. couldn't all be taken with us if we moved.  We've been able to "make do" since being home the past 8 months. 

Once home, none of the help we were offered....ever showed up.  I've had to just deal with it and remember that God is our Help.  And He really is....  He provides when there is a need.

So I've just sat back, really haven't "tried" to make things happen.  I didn't feel like I needed to "work" on things.  As you know I can make some things happen but I 've felt like God would work things out for us, when the time was right.

Also quite honestly a part of me has thought that maybe Selah would just be healed and we could go back to our "normal" which would be so much better to me than anything else!!!!!

I have a good feeling about this....it maybe the way God works things out for us.  We'd love a house big enough for the kids to have their own rooms and a therapy room!!!  We have therapy equipment in all the corners of our house now LOL!   There is even some things I can't use (like a ball pit) because we just don't' have room. 

Our son Steve will graduate this year and his plan is to start work as a correctional officer as soon as he turns 19 years old.  He hope to be in the Academy by his birthday next year.  In all probability he will work nights once he gets hired so he needs a good place to sleep during the day!  Not on the floor of the little kids' room!  Steve has wanted to be an officer since he was 10 years old.   He has never wavered on it:)  He has been in the prison and around it all his life.  We actually lived on the campus of the Polk City Prison when Jon was the chaplain there.  He has seen a lot and is fascinated by it.  Plus "back in the day" I used to take him with me to juvenile facilities when I did my monthly check of the clients.  He loved going with me.  I look back and can't believe I took him with me but he enjoyed it.  He's been to my office, seen me in court...it's all been a part of his life.  I'm just thankful he doesn't want to be a cop!  The only thing he wavers on is COLLEGE!  Sometimes he thinks he wants a BA in criminal justice but he has been told he can move up the ranks just as fast without it and of course have NO debt.  So he thinks he wants to go straight to work.  His goal is to be a warden one day:)    I don't know what would be best. college or just go to work.  Jon & I both graduated from college and assumed that our kids would too but it's a different world in 2013 than it was in the 80's......  Thankfully Steve has no plans of moving out anytime soon!  We really appreciate all the help he is to our family.

So a lot of good stuff going on....

Please keep Selah in your prayers as always.......







:

Thursday, September 26, 2013

Beyond Bizarre Day.... Snake Handling and a Hanging....

This has been a Beyond Bizarre Day..... LOL  All the below is true....

Our day nurse swears he is writing a movie script on our family......

So Jon comes in to tell me there is a dead dog in front of our house this morning....  The ONE thing that drives me crazy about my husband is he always tells me problems.  I am not getting involved with a dead dog.  He and Shad moved it to the side of the road and we have had HUGE buzzards out all day. 
 
This was the "best" picture I could get of the many buzzards flying....they are huge, the size of turkeys...
 
 
Then I go to pick up Shad from school....and see all kinds of cop cars at this other little cemetery down the road.... tons of folks there, crime scene tape etc....me being nosy and living near there and the fact we have a cemetery at our church, I called to see if someone had been disturbing graves...No....not that....  come to find out some guy had skipped court this morning, he was to be sentenced to like 50 years for molesting kids and he went and hung himself at the grave yard according to the report I got.....   This may seem very mean but I am very glad he picked that cemetery rather than our cemetery.....  Can you even imagine????   It would have been worse than Jon finding a dog this morning....  Good Lord....   (and for the record, if he molested kids, I don't waste any tears on him!!  And had it been one of my kids....let's say I'd strung him up myself!!!)
 
 
Then as we are turning on our road, I see a dead rattle snake.  I'm all about teaching my kids about nature, especially nature that can HURT them....so me and Shad walked down to see it.  A neighbor had cut it's head off so no one would hurt themselves and he offered to hold it up so I could take a picture

 
Immediately following this picture, it's nerves began twitching and it came up towards our friend....Let's just say NONE of us will be in any snake handling service ROFLOL!!!!! He dropped that sucker and we all jumped back LOL!
 
It was about a 3ft Diamond Back Rattler...  He only had a few rattles on him. He was young, but not so young, he couldn't have killed someone!   I tell my kids ALL the time to wear shoes outside and watch where they are walking!!!!!
 
Do any of you watch that show called "Snake Salvation"?  Its about two churches, one in Tennessee and one in Kentucky that handle snakes....it is a trip and a half.   I have always found snake handling interesting, the whole psychology of it.  For my readers who have never heard of it.....some people feel the bible tells them to handle snake during church.  They take it from .....
 
 
And these signs shall follow them that believe: In my name shall they cast out devils; they shall speak with new tongues. They shall take up serpents; and if they drink any deadly thing, it shall not hurt them; they shall lay hands on the sick, and they shall recover. (Mark 16:17-18)
Behold, I give unto you power to tread on serpents and scorpions, and over all the power of the enemy: and nothing shall by any means hurt you. (Luke 10:19)

You can watch a video of it here....
 http://www.youtube.com/watch?v=cwBVcsWYJd8

this article is the show we watch
http://www.christianpost.com/news/snake-handling-christians-to-star-in-snake-salvation-reality-show-101826/


http://www.amazon.com/Salvation-Sand-Mountain-Redemption-Appalachia/dp/0306818361  here is a link to a book I read recently.  I thought it was very interesting.  The journalist starts out "covering the trial of an Alabama pastor convicted of attempting to murder his wife with poisonous snakes—would evolve into a headlong plunge into a bizarre, mysterious, and ultimately irresistible world of unshakable faith: the world of holiness snake handling.

Set in the heart of Appalachia, Salvation on Sand Mountain is Covington’s unsurpassed and chillingly captivating exploration of the nature, power, and extremity of faith—an exploration that gradually turns inward, until Covington finds himself taking up the snakes."


Can you imagine?  He went to cover the trial and ends up taking up the snakes himself!  WOW!  It was an interesting read:)





 

 

 

 
 
Supposedly in my home town years ago there was a strange little Pentecostal church that did snake handling.  We would hear things about it.  My crazy Grandmother and I often talked about going, it was only like a block behind our field.  We talked about it so often but never went, we figured that if we went they probably wouldn't do the snake handling if they even did it at all.  But we were nosy LOL  We laugh and say what we'd do if someone tried to hand us a snake....LOL 
 
Of course as you know I was raised Pentecostal and my husband pastors an Assembly of God church which is a Pentecostal denomination.  However we do not teach snake handling!  LOL  Our church and the church I grew up in "Church Of God" teach that God does give the believer power BUT we'd say that scripture is talking about accidental things happening...like the story of Paul In Acts 28
 
28 Once safely on shore, we found out that the island was called Malta. The islanders showed us unusual kindness. They built a fire and welcomed us all because it was raining and cold. Paul gathered a pile of brushwood and, as he put it on the fire, a viper, driven out by the heat, fastened itself on his hand. When the islanders saw the snake hanging from his hand, they said to each other, “This man must be a murderer; for though he escaped from the sea, the goddess Justice has not allowed him to live.” But Paul shook the snake off into the fire and suffered no ill effects. The people expected him to swell up or suddenly fall dead; but after waiting a long time and seeing nothing unusual happen to him, they changed their minds and said he was a god.
 
Obviously Paul didn't go around picking up snakes, he was working and a snake bit him.  Then God intervened and Paul didn't die.  That is how most people view those verses....Not to go and do those things!  But that God will protect us if the situation arises.....  Actually most folks would say "don't tempt the Lord"!
 
So these folks also drink deadly drinks like poison and they put fire up to their faces...it is crazy!    We have decided that they have really loud music going on when they picked up the snakes and that confuses the snakes and it's almost like charming them.   Although folks get bit, one got bit on a show, when they were going snake hunting....  Ok I don't have much of a life but I like watching this crazy show!!!
 
So that's all the crazy stuff to share....
 
-----------------------------------------------------------------------------
 
 
Now let me tell you what all the kids are  doing....
 
Sarah knows where her nose it:) She'll grab my hand and put it on her nose when I ask her 'where's Sarah's nose?"   I don't know WHY she has to put my hand on her nose but she will do it over and over again:)  We had just gotten her psychological assessment back and her IQ was very very low...  However the assessment was done last school year and since then she is walking more, understanding more, drinking out of a straw and now she knows where her nose is!  Her PT feels like her IQ will really take off....remember Sarah had to learn to understand English and she is blind....it's quite an accomplishment when I say "Sarah come to mommy" and she crawls/hops over!   Blind kids are evaluated differently than sighted kids, there are so many things we learn just by being able to see. 
 
Selah is doing good.  She is moving her tongue all the time.  She finally has control of it to some degree and she moves it all the time.  We don't know what to think of it.  It is something she could not do until she had the HBOT!  Yesterday  I felt so sad.  It comes in waves....yet two more people (not wackos) told me they dreamed Selah came back....  I don't' know what to think, I just keep praying!
 
We may have a night nurse for the weekends Praise God!!!!!!!!!   All the details are being worked out.  It will be amazing if we have full coverage, we will be happy!!!!
 
Sam has learned to use this little seat...
 
I forgot what it is called, the little ones got it for Christmas from a Sunday School group and they love it.  Sarah knows how to crawl into it and will turn it around for hours.  Sam is so much more afraid than Sarah is...he just learned how to sit himself in it.  It is adorable the way he slowly sits down in it like a very old man.  So now he plays in it every night, it's become a ritual for him.   With a round bottom, it is easy for them to go around and around in circles and they love doing it.
 
Steve is waiting to start Driver's Ed next week at the public high school.  Mama is nervous....but it will be good for him.  He is also waiting on his books to finish his senior year of school.
 
Shad had a field trip today to MOSI in Tampa.  It's a favorite place for kids around here to go on field trips.  The Museum of Science and Industry...something like that.  Evidently they saw all kinds of things about disasters today, earthquakes, tornadoes, fires.... he loved it....   I have never been there, the thought of a bunch of kids frightens me...it's like an upscale Chuck E Cheese LOL  It's probably better than that, don't send me hate mail!!!
 
So thus ends an interesting day....
 
 
 
 
 





 
 

Wednesday, September 25, 2013

Waiting.....

Sitting here on hold with Hewitt Packard about my laptop...... been waiting for about 45 minutes, this drives me NUTS!  Glad I have supper in the crock pot, a beef stew, with garlic bread and a salad.....yum! 

I hate waiting.  One of my BFFs growing up is always late...that drove me batty...then I married my husband.....and continued to wait...throw in a relative or two.... more waiting....    I'm one of those on time people, usually ready BEFORE time even with 5 kids so it is so hard for me to understand why others are late and I'm waiting.....

Like I "see" projects' and how to best do them in my mind's eye.  Say getting ready to got to the beach....I pack the night before, just a few things, and leave out things I'll use in the morning like a toothbrush....then as everyone uses something, it goes on the dining room table to be put in a bag.  If someone doesn't put their toothbrush there, they don't' have a toothbrush....  I have everyone's clothes ready the night before....it's easy.   When I worked I had all our clothes done the weekend before for the next week and ironed...  LOL 

So I'm pretty organized....since the accident, a lot of that slipped, THANK GOD I'm getting back to myself.  I was really worried about my mental status for quite awhile.  I couldn't concentrate and couldn't get tasks done.  I'm still not the person I used to be, but I'm getting better, more organized, more able to get tasks done.   

The past 2 years I feel like I've been waiting....we waited on our adoption, we waited on paperwork, we waited on a travel date, we waited in Ukraine.....then we got home and we were waiting again for a travel date to NY for Sam's exam and Sarah's surgery....then the accident....then we WAITED, waited to see if Selah would live, waited to see if she'd wake up....

Now I'm still waiting...some days I don't' know if I should have any hope for real change in Selah.

I try and remember that God prepared me for this situation by sending the woman to talk to me in the mall months before the accident.  If you just started reading my blog....she came up to me and said she had a "word from God"  on May 30, 2012  She said "Something very big is coming for your family in the next few months, Many will see and God does not want you to be afraid"   Well on August 15, 2012 that word came true....  So many things I do not understand but I know God sent her to me......

The word never told me that we'd get a miracle just not to be afraid.  I figure if God can send someone to tell me that then it seems like there is more ahead....

I dream all the time about Selah waking up,,,,all the time.....  and many others do too......

I don't know.....tonight I just don't know what is ahead.  But I'm still waiting......and I HATE waiting....

Please pray for Selah......

Tuesday, September 24, 2013

Facebook Rant

Who likes Facebook?  I do/did.....

When one of my dearest college friends, Todd, introduced me to Facebook, I thought it was marvelous ...   This was back in '09.  I quickly caught up with a lot of my old college friends and high school friends.  I LOVED that about FB.  Folks I though fondly of, but had lost touch with them.  It was was great!  I felt closer to folks than I had for years.  I caught up with some folks I used to work with both as a probation officer and in various ministries.  Sometimes I'd see someone's name and be so excited to be contacted by them or to contact them.  It was a lot of fun to catch up and share stories and pictures.... 

Then the groups started....and sometimes things got a little odd.  I was in one group for my college and left it because I thought there were some real weirdoes in it.  People I didn't think even went to college with us.  Lot of odd ideas, I love a good argument but I'm usually quite "tongue in cheek" about things but some of these folks were like NUTS! 

Then when we started adopting the girls, things got odder still.....  I found the "adoption world" I'd known when we adopted Shad in "06 was not the same adoption world.  Some crazies were out there.....   too much info, guessing and DRAMA....I joined some adoption groups ONLY to get out of them as soon as we got home with the girls.  Too much complaining and whining on there, too many experts....   I was happy, Over the moon...happy with my babies and I really didn't want to hear about anyone else's issues....  I know that sounds mean but hey I'm being real.  I couldn't relate to the issues some were having with their kids. 

I really try NOT to add "friends" if I don't know the person "in real life"....well in the adoption world, you tend to add folks that you don't know in real life...and you probably won't hang with if you did know them ....LOL   As a disclaimer, I've met some great people on line, mostly ones I actually have friends in common with (REAL life friends)   When we were leaving to pick up the girls, after we lost he little guy were trying to adopt, I basically deleted almost everyone that I didn't know IRL....I felt safer. 

Then over time, I started adding people back on...good people....but people I don't really know.  So now my newsfeeds are stuff about folks I don't really know.  It annoys the heck out of me.  I want to hear about my old friends, see their pictures ....  But then I feel guilty if I delete someone.  But I am just going to have to start doing it again.  I feel like FB is an out of control monster that annoys me most of the time now.  It used to be you could "hide" a person but FB doesn't allow me to do that anymore so I have to scroll through all kinds of things....and miss things others wrote.....

I also hate the people that send friend requests, you add them and they never communicate again....they don't "like" anything you write or a picture....  I have two people that I comment on their stuff occasionally and they don't even "like" what I comment or ever say anything to me...WHY? be friends with someone like that?

So for me FB has gone from really fun to annoying.  The only reason I don't leave altogether is I really like being able to be in touch with some friends easily.  Yesterday I added a friend from high school and we actually called each other and had such a good time telling our life stories since high school.  That to me is what FB is all about....


When the accident happened, FB was wonderful to be able to share things with folks, because I couldn't stand to talk on the phone.  Talking required too much energy and I didn't' have any to spare at the time.  That was a good part of FB.


This has just bothered me lately....  Ok my rant is over....

Facebook get on your nerve too??

-------------------------------------------------------------------------------------------------------------------------

Selah had a good day, she had physical therapy today.  We got her diapers in and a bunch of supplies. 

I enrolled the three little ones in school today.  I had turned in all their paperwork in LAST school year...but somehow it never got in the system.....  so now we wait and see what will happen....and how soon...or how slow...it will take.....


Last night was my "fall out and sleep like a rock night" I'm always so happy to have our night nurse here so I can sleep deep and not worry about missing something Selah needs!  I slept so good last night!  I do not take it for granted! 

Thank you for continuing to pray for Selah.  You have no idea how much we appreciate prayers for our little girl. 








Monday, September 23, 2013

Getting the Ark ready!

WOW it has been raining non stop here....ok I love rain but today I started wondering if there was a hurricane coming and I just hadn't been watching the news....  LOL  I only say that because....that happened to me before!!  The year Sam was born, we had so many hurricanes, direct hit ones, and for the last one ( the worst one for us) I totally zoned out and didn't know until just a few hours before it hit....no lie...  But hey things were just about as crazy as they are now, Sam was a very sick baby!!!  That was a RUDE awakening for me!!!  We ended up living in the adminstrion building at the prison for over a week  since we didn't have electrify and Sam was on a monitor 24/7...fun times....  Anyhow we are going to have a lot of rain for the next few days.  I went to the thrift store and bought me some books to read, nothing like a rainy day and a book.

Last night I had to get up with Selah a few times, and by the third night (we don't have nursing Fri-Sun night) I was beat.  I think the last time I got up with her, I changed her with my eyes closed....no lie.  She has still had a little higher heart rate, but she seems ok.  She still seems more alert for the most part.  Last night she was probably more alert than me!  So this morning I got up about 8:30 and stumbled in her room (our nurse was there by then)  and I'm in my robe, bleary eyed and there is the nursing supervisor and a new worker...LOL  then the Physical Therapist got here, at that point I just took off for the shower.  I had no pride left LOL  The kids also had Occupational therapy today and she worked on EATING...so that means she feed Sam and Sarah !  WOOHOO:)   I told her she was welcomed to come every day and work with them!!!

I cooked today used my 3 crock pot...it's one machine with 3 crock pots in it....I did a chili and a hot nacho cheese and ham & beans , everyone is happy:) 
 
Yesterday I made chicken noodle soup and it was soooo good.  I think the secret is to use a couple of cans of cream of chicken soup.  Tomorrow I already have the meat cooked for spaghetti:)  We ae only using ground chicken now, very low fat and I get the kind that is grass fed/free range/no antibodics...  I try and keep us healthy.  Then on Wednesday I'm doing a roast.  YUM!  I love having the meals planned out
 
 
Please keep praying for Selah.  We appreciate the prayers!!!