Driver's Ed

Steve started Driver's Education today.  We kidded around a lot about him FINALLY going to school right before he turns 18 years old LOL.  He is taking the class at a public school so this was a first for our family.  My kids have never been to a public school.  Of course we had to pay for him to take the class, but it will help him his insurance rates.

 

 

 

I was trying to take a picture of him at the school but he walked away....

 

 

he had a good class and really enjoyed it.  Jon and I both took driver's ed in school and we thought it would be good for him to take it too.  It also gives him an extra half credit for high school. 

 

I remember our driver's education teacher  Coach Barr....an old geezer who had been a coach but by the time he taught me, was just teaching Science classes.  He was a SMOKER, if I remember correctly he smoked in the driver's education car with us LOL!  I'm positive he smoked in his office at school....  I never cared for him at all but some of the students liked him.  I remember driving with him in the smoky driver's ed car.....UGH!  It was not the most pleasant memory.  But all in all we figured Steve would luck out a bit better than I did LOL   

 

 

We are going to a Halloween party and I bought outfits for all of us.....I'm really excited about it.  first time I've ever had an outfit as an adult.  The pictures will be coming!  Even Steve joined in on the fun.  I didn't know if he'd go along but he did:)  I bought Sarah and Selah matching ones, Shad actually found them and they are adorable!  But you'll have to wait for the pictures!

 

Some folks we know don't do Halloween or they do some type of "Fall Festival" but we like old fashion Halloween.  The kids love to go "trick or treating"  It's just fun.  Jon and I both grew up "doing" Halloween and we didn't turn into Satan worshippers so we think it'll be alright LOL

 

Actually the church I grew up going to, used to do a great haunted house.  We were one of the few buildings in Florida to have a basement.  So the basement made a great haunted house.   There were witches and ghosts....lots of fun!  Nowadays that is frowned on in evangelical circles.  Even "trick or treating" is made to be some type of satanic activity.....  we never understood that.  I used to dress up as a witch ( I know that is probably SO approiate for me LOL)  My aunt made me the nicest dress, I wore it for a couple of years and I had a really tall witch hat, I loved that outfit.   My old great aunts would dress up our front porch with ghosts and a stuffed mummy sitting in a rocking chair...it was great fun:)

 

 

October is one of the happiest months for me, I love fall, we got married in October, Steve's birthday is in October but we also lost our twins in October.  So with all things in my life, it's happiness tinged with sadness.......

 

 

Our friend Bill had one stint put in today and he is on his way to full recovery!  He should be released from the hospital tomorrow to go home:)  Thanks for praying for this dear man!!!!  We are all rejoicing:)

 

And thank you for always praying for Selah!  We appreciate it!  She is doing the same, nothing new but boy does she move her tongue around in her mouth!!!!!!  

 

 

 

 

 

 

 

Productive day

As I sit here with my 3rd big cup of Java of the day....I've gotten a lot done:)

Did all kinds of paperwork/bill paying/going through paperwork/ time on the phone for various things....then to pick up Shad and we went to drop off library books, bank, dry cleaners, dropped off my laptop, faxed a bunch of stuff and filled out an application for a home through a county program!  There is another program that I'm filling out paperwork on too.  And we picked up doughnuts....hey....sometimes it can't be helped!

So we are looking into some programs that are through the federal government but administrated through our county and a private organization for homes.  Obviously we need a large home and one that is handicapped accessible.  I just do not think I could live in a subdivision. so we are hoping for something out in the country that could be remodeled or built to our needs.  The whole house thingy is overwhelming to me.  I know if anything works out, it will have to be the Grace of God!  But it is exciting.  Steve & Shad are the MOST excited, they would love to be off the air mattresses on the floor of the little ones' room.  Since our home has only 3 bedrooms, and was perfect but tight for us before the accident.  But since Selah has to have her own room, the boys gave up their room and now all the kids sleep in the same room.  I appreciate their willingness and it's not been too bad, the little ones, both are in cribs so their beds don't take up much room.  The worst thing is Sarah likes to "hum" at night, everyone but Steve can sleep through it, so most of the time, he puts the pillow over his head or he sleeps on the living room couch!  LOL   I do remind myself that there are many people in the world who live in much smaller spaces and are content.  Our bedroom is only a foot or two bigger than their room or we would have switched but it wasn't a big enough difference to do that.   So we will see what happens, please pray that things will open up and be clear for us.


Our dear friend Bill Meyer had a heart attack today and is in the hospital.  We worked with him and his wife Eileen in NYC at Brooklyn Teen Challenge  years ago in ministry.  They have a ministry now called Sarah Heart, a home for abandoned children in the upstate NY area.  They visited us several times while we were in Rochester last year with Selah and took us out to eat, brought the kids things...blessed us in many ways.  You can see Bills' "heart" as he leans over and talks to Selah.....please pray for him.  This world needs more Bill Meyers..... Please pray that the doctors will have wisdom and that God would also touch him and be with their dear family. 

 

 



Since I was really bad today and got us all doughnuts thankfully I have chicken chili cooking in the crock pot.  I'm hoping that will even things out.  I don't keep junk food in the house but I sure know where to find it at times!  I cooked dinner and fixed lunch all last week until Saturday night!  I really used the crock pot a lot.

 

 

I love crock pots, I have a mini, a large, an extra large and the one with 3 crockpots all together.  And I really use them, last week I used all of them but the mini:)  In our family not much is made on a "mini" scale :)

 

 

Hope you have a good night and thank you for your prayers for our family and for Bill and his family!



 



Happy Sunday

Sunday fun day...  great day in church.  Really have to say we missed our music minister....Jon was filling in this week and let's say he had a "moment"   couldn't find the tempo ....the funniest thing was somehow Sam caught on that something was off and started laughing with a belly laugh. Then everyone else was laughing too....it was really cute.    We are not "perfectionists" at Grace Church!   Love seeing our church grow too!   Excited about the new families and folks who are attending.  We have some new things that we are working on and it's exciting. We may have a GOOD BIG announcement in the near future for some new avenues of ministry for our church.  It's exciting as we see things come together in a way we never have before!

Then out to eat at Sonny's with friends and to visit one of our sweet ladies in the hospital.  After that we went to look at a house for sale near us.  GREAT location, in the woods, private, lots of land, very natural and backing up on a state wild life preserve but the house had a pool.  We probably couldn't afford it anyhow but it seemed perfect except for the pool.  I never wanted a pool BEFORE the accident but now knowing what a near drowning can do to someone personally, I barely can handle a bathtub!  Certainly not a pool that I'd worry about all the time.

Our weather is starting to change.....instead of the mid-90's it's like the high 80's LOL  but it feels different.  October is my favorite month and it's almost here....

This coming week will be a busy one, lots of different kinds of paperwork for me and Steve starts Driver's Ed.  I'm a weirdo, I like Mondays....I feel like it is a new beginning for me and a chance to get things done.  Sundays are such work days/long days for us....

We have a night nurse again tonight....oh GLORY!  And our new one will start next weekend.  I am so very thankful!  Sleep is a wonderful thing!!  I loved caring for Selah one on one but.....we've been doing this for 8 months, and at one point doing all her night nursing for over 2 full months so this is a blessing to be able to sleep through the night!  Sleep is a glorious thing....usually by Sunday night I'm about ready to pass out!  It's great not to be so tired.

Hope everyone had a great weekend and hope you have a good week ahead! 

Please keep praying for Selah!

Turtle Soup

 

Our wildlife of the day....

a snapping or alligator turtle that made it into our yard.  Steve got a shovel and put him over the back fence so he could head off towards the river.....

 

 

 

 

I tried to pick him up but he wanted to take a piece of me....

But we didn't make turtle soup

 

 

 

Good day yesterday.  I took the boys to a late movie, it was actually a really cute one "Cloudy with a chance of Meatballs 2"  I LOVE going to movies.  I wasn't allowed to go to them when I was growing up.  In fact the first one I saw was "Blue Lagoon"  I was pretty sure that Jesus was going to come back and I'd be "left behind"  The ironic thing is my best friends' dad owned the theater in our town until it burned down!  When I was a senior in high school and a bit older, I did go and work some weekends at his other theater in Madison Fl.  That was fun to me.  One of my friends and me saw one of the "Freddy Movies" at a midnight showing and were too afraid to run to her car LOL  fun times! 

 

Anyhow I love going to the movies, we don't go that often, but sometimes it is just fun to go , get a Pepsi and some pop corn and have a good time!  That's what we did last night.

 

And why was I able to go to the movies?  We had a night nurse:)  and Jon stayed with the little ones who were already in bed:)  It was a good time!!!

 

And we have a night nurse tonight!!!!  WOOHOO!  You have no idea how good it is to know you'll be able to sleep through the night!

 

 

Sarah now will touch MY nose when I say "where is mommy's nose?"   She learned it just since yesterday.  She has the WORST habit of hitting us over and over again.  Not in anger but just to touch us.  It's hard to explain.  Being blind, she now feels confident to touch us but she has to do it quickly, she won't stroke my arm like Sam would do, she would lightly hit my arm over and over again, just to touch me.  Sam did this a little bit but only for a short time.  So now I catch her hand and kiss it and then while I'm holding her hand in mine, put my hand to her mouth for her to kiss my hand....just today she is starting to put her mouth on my hand when I bring it up to her mouth.  It's really cute.   We are really trying to discourage the hitting which a friend of mine described as "being pecked to death by a duck"  LOL  Please understand she is not unhappy when she does it, she just wants contact but can't handle her hands touching someone for a long time.  So it satisfies her need to touch and explore.  She will also hit objects at times, so she can touch them but not too much.  We totally get it and it is a "blind" behavior for kids who can't tolerate too much touch.  Sarah loves to be touched but even then sometimes she will move your arm from around her.  She'll want to sit on my lap but can only tolerate my arm for a little while.  Sam was soooooooo the same when he was little.  Sam totally prepared us for Sarah. 

 

I've gotten on to her but just raising my voice and saying NO loudly scares her and I can't do that to her.  I'd much rather change her behavior by love than discipline.  I say NO softly then kiss her hand...it seems to be helping without scaring her.   She loves to reach out to us.  And she loves rocking herself in this chair.  She'll sit there for an hour and rock happily.  It is actually good for her, it gives her the vesicular  motion she craves in a "normal" way. 

 

 

Sam lost another tooth...his third in just a couple of months.  Now he is 9.5 he is actually loosing teeth.  His dental stuff has been quite interesting.  He didn't have any teeth until almost 2 years old...then he grew his front bottom ones and top ones in a short amount of time.  It took a long time for his baby teeth to all come in.  We've seen several dentists and they'd never seen anything like this!  So he is starting to lose teeth about 3 years later than most kids. 

 

We have often wondered if Sam had a gene that kept him younger longer....  We've all heard of the genetic condition, progeria, that ages kids  faster and they die young looking like an old person....  Well for Sam, it's the opposite, he seems so delayed in his growth that maybe he has a "youth gene"

Sam has so many unusual things that we have actually brought up a theory like that to several doctors and Geneticist.  No one really has taken us seriously but we did see a medical show on three kids suspected of having something like that and it doesn't have a name yet.  Sam was more mentally advanced than the other three on tv but we contacted that Geneticist  and gave them our info.  He did not put Sam into their study since he has a chromnosal deletion in another area....  But they have our info if they ever expand the study.   I tell you our dentist thinks Sam is unique, he'd never seen a child take so long to have teeth.  Just last year Sam went back to the dentist and he said the xray of Sam's mouth looked more like a 4 yr old's than a 8 year old's. 

 

I think the doctors felt like we weren't accepting of Sam's disabilities.  But that was not the case, there were just so many odd things even like his hair and teeth not coming in.  Yes he is delayed but he makes "normal advances".  Most kids with developmental disorders, as they learn to do things, they dont' do them in the "correct way" like crawling and walking....  Neither Sarah or Selah knew the correct way to crawl and Selah didn't know the correct way to walk....the steps in walking like how to get herself up off the floor.  That is a basic skill how a child learns to stand.  A lot of kids with developmental disorders, "commando crawl" rather than crawl normally, it's like steps are not included.

 

Well Sam has been slow, but he has done each step in his gross motor skills in the correct way.  He crawled, learned to pull up and walk correctly even with not having good sight.  He has learned to walk up stairs etc...in the correct ways.  That is what gives us and a few of the folks we've worked with/seen over the years some questions about an undiagnosed genetic condition.....  Anyhow it is interesting to think about.  We kidded around when we went to St Augustine's Fountain of Youth that Sam didn't need to drink anymore of it!  LOL 

 

 

But hey for good luck we gave him some:)

 

 

And I guzzled down some and bought a whole bottle of it!

 

We have a night nurse tonight too!!!!!  Happiness!

 

Well everyone have a good night, and please remember Selah in your prayers.

 

 

 

 

 

 

 

Building My Faith

I seldom go back and read my blog.  Some of it just brings up too much emotion to me.  But I went back today for a few minutes and read our adoption story for the girls....  God did so many financial miracles for us and them.  I felt like I was living in the middle of a miracle.....  I just want to share a few of those blogs on here in order....

http://myreallifebyyvonne.blogspot.com/2011/12/need-miracle-again.html
This one, we realized just how much more money we needed.....Note the date...Dec 28 2011....

http://myreallifebyyvonne.blogspot.com/2012/01/faithfulness-of-god-we-got-another.html  note the date on this one.....January 1 2012.....  (and it was written about the miracle that happened on Dec 31 2011

http://myreallifebyyvonne.blogspot.com/2012/01/faithful-god.html  then this note the date...

http://myreallifebyyvonne.blogspot.com/2012/02/new-van.html  and this.....

Actually if you read from September 2011 till Feb 2011, there are crazy miracles after miracles happening.....it's something else.  I'm so glad I wrote it all down, so many little details I had forgotten but reading it brings everything back. 

Reading over those few weeks, was like a balm to my soul.....   God showed Himself to be so faithful to us and the girls. 

I don't understand all of God's ways, I don't know what the future holds for us for Selah but I know God is good and He is Faithful.  Looking back at their story, makes me know there is more ahead for us, not necessarily financially or materially, but spiritually.....this is not it.  God will remain faithful to us and to our girls just like He was in 2011! 

Reading these blogs makes my faith rise and also makes me sad, remembering all the amazing things and feeling like the future was so bright....  This is another time when I just have to trust God and not be afraid. 

I've said and thought so many times that our girls' story was like a Cinderella story but I never thought the story would have this part in it.   Somehow I just have to know this is not how the story will end for us and for Selah.  Please continue praying for our little LaLa that God will heal her mind and bring her back to us. 


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Today was 31 years ago that my  great aunt "Boot Mama" Bertha Phillips, the lady who raised me died.  She was born in 1899....took me as a baby in 1965 at the ripe old age of 66!  She loved me and cared for me until she left us first from dementia and then in death.  I hope she knows now what she planted in my heart all those years ago.  I literally owe my life to her and probably three little ones from across the ocean do too.  I love you Mama! 

Good Stuff!

Selah had a great appointment today with Dr Schnapf.  He and his associates like Dr C that we saw last time are out of Tampa General and work at USF Department of Pediatrics.  These Pulmonologists have changed our life!   Our wonderful pediatrician sent us to them (and annoyed me by doing it-I was a bit soured on specialists then) back in April when we could not keep Selah out of the hospital and St Joe's was NO help to us whatsoever....  Dr C put Selah on Tobimixion, an inhaled antibodic and it has just made our lives so much easier and kept Selah out of the hospital.  I'm really grateful to this group of doctors and how they LISTEN and treat the patient!  It's reassuring when you find a good doctor(s) like this. 

More good news we have a new weekend nurse coming to orientation today!   That means the nurse on duty will go over Selah's care with her.  The new nurse is experienced, loved by her patients and a friend of one of Selah's nurses.  She recently moved to our county and was wanting to find a patient to work for in this area so she didn't have to travel.  She is an older nurse, which I prefer and an adoptive mom:)  So after this weekend, we will have Friday & Saturday night covered.  There is a possibility that we may be able to have Sundays covered too.  I'm so happy!   I have discovered how much I appreciate a full night's sleep:)  And we were given permission for our regular night nurse to work tonight:)  So that makes the weekend easier for us. 

I'm still so grateful to all the people who helped us with our insurance/nursing problem.  From all the prayers, to Mike Fasino, Will Wetherford (who was on Fox news this am) to Gov Rick Scott...... we are really grateful for the help all of these folks gave us!   What a blessing to not have to worry about losing our nurses!!!!!!

More good news....
Our kids' Physical Therapist had told me about some type of grant for families to help buy a home.  I called and spoke to one of the staff at the office and was just treated so nice.  She was excited about working with our family and is sending us out a packet, then we will schedule and appointment and they will look at all the programs and contacts to see what would best fit us.  She had lots of ideas and many contacts.  I'm excited.

We know we have to move into a bigger home soon.  We actually live in a parsonage (owned by the church)  We could squeeze in before the accident but with Selah having to have her own room, it makes it hard.  Currently Shad & Steve gave up their room and sleep on air mattresses on the floor of the little ones' room.  I appreciate my boys, they have never once complained about not having a room.  All of their stuff is Jon's office at the church. 

We knew we couldn't live like this forever but we didn't have the 'wherewithall" to even think about moving before.  So many people offered to help right after the accident, emails, phone calls and texts.  We told everyone we could not even think about things being over a thousand miles away with a very sick child.  I've always been told not to make hasty decisions after a traumatic event.  We had to focus on Selah and getting her back to Florida.  It was too much to take in at once.  We knew we'd need to move as we didn't want to make accommodations to the parsonage since we don't own it.   Selah needs lifts and her own bathroom etc...lots of expense that once done. couldn't all be taken with us if we moved.  We've been able to "make do" since being home the past 8 months. 

Once home, none of the help we were offered....ever showed up.  I've had to just deal with it and remember that God is our Help.  And He really is....  He provides when there is a need.

So I've just sat back, really haven't "tried" to make things happen.  I didn't feel like I needed to "work" on things.  As you know I can make some things happen but I 've felt like God would work things out for us, when the time was right.

Also quite honestly a part of me has thought that maybe Selah would just be healed and we could go back to our "normal" which would be so much better to me than anything else!!!!!

I have a good feeling about this....it maybe the way God works things out for us.  We'd love a house big enough for the kids to have their own rooms and a therapy room!!!  We have therapy equipment in all the corners of our house now LOL!   There is even some things I can't use (like a ball pit) because we just don't' have room. 

Our son Steve will graduate this year and his plan is to start work as a correctional officer as soon as he turns 19 years old.  He hope to be in the Academy by his birthday next year.  In all probability he will work nights once he gets hired so he needs a good place to sleep during the day!  Not on the floor of the little kids' room!  Steve has wanted to be an officer since he was 10 years old.   He has never wavered on it:)  He has been in the prison and around it all his life.  We actually lived on the campus of the Polk City Prison when Jon was the chaplain there.  He has seen a lot and is fascinated by it.  Plus "back in the day" I used to take him with me to juvenile facilities when I did my monthly check of the clients.  He loved going with me.  I look back and can't believe I took him with me but he enjoyed it.  He's been to my office, seen me in court...it's all been a part of his life.  I'm just thankful he doesn't want to be a cop!  The only thing he wavers on is COLLEGE!  Sometimes he thinks he wants a BA in criminal justice but he has been told he can move up the ranks just as fast without it and of course have NO debt.  So he thinks he wants to go straight to work.  His goal is to be a warden one day:)    I don't know what would be best. college or just go to work.  Jon & I both graduated from college and assumed that our kids would too but it's a different world in 2013 than it was in the 80's......  Thankfully Steve has no plans of moving out anytime soon!  We really appreciate all the help he is to our family.

So a lot of good stuff going on....

Please keep Selah in your prayers as always.......







:

Beyond Bizarre Day.... Snake Handling and a Hanging....

This has been a Beyond Bizarre Day..... LOL  All the below is true....

Our day nurse swears he is writing a movie script on our family......

So Jon comes in to tell me there is a dead dog in front of our house this morning....  The ONE thing that drives me crazy about my husband is he always tells me problems.  I am not getting involved with a dead dog.  He and Shad moved it to the side of the road and we have had HUGE buzzards out all day. 

 

This was the "best" picture I could get of the many buzzards flying....they are huge, the size of turkeys...

 

 

Then I go to pick up Shad from school....and see all kinds of cop cars at this other little cemetery down the road.... tons of folks there, crime scene tape etc....me being nosy and living near there and the fact we have a cemetery at our church, I called to see if someone had been disturbing graves...No....not that....  come to find out some guy had skipped court this morning, he was to be sentenced to like 50 years for molesting kids and he went and hung himself at the grave yard according to the report I got.....   This may seem very mean but I am very glad he picked that cemetery rather than our cemetery.....  Can you even imagine????   It would have been worse than Jon finding a dog this morning....  Good Lord....   (and for the record, if he molested kids, I don't waste any tears on him!!  And had it been one of my kids....let's say I'd strung him up myself!!!)

 

 

Then as we are turning on our road, I see a dead rattle snake.  I'm all about teaching my kids about nature, especially nature that can HURT them....so me and Shad walked down to see it.  A neighbor had cut it's head off so no one would hurt themselves and he offered to hold it up so I could take a picture

 

Immediately following this picture, it's nerves began twitching and it came up towards our friend....Let's just say NONE of us will be in any snake handling service ROFLOL!!!!! He dropped that sucker and we all jumped back LOL!

 

It was about a 3ft Diamond Back Rattler...  He only had a few rattles on him. He was young, but not so young, he couldn't have killed someone!   I tell my kids ALL the time to wear shoes outside and watch where they are walking!!!!!

 

Do any of you watch that show called "Snake Salvation"?  Its about two churches, one in Tennessee and one in Kentucky that handle snakes....it is a trip and a half.   I have always found snake handling interesting, the whole psychology of it.  For my readers who have never heard of it.....some people feel the bible tells them to handle snake during church.  They take it from .....

 

 

And these signs shall follow them that believe: In my name shall they cast out devils; they shall speak with new tongues. They shall take up serpents; and if they drink any deadly thing, it shall not hurt them; they shall lay hands on the sick, and they shall recover. (Mark 16:17-18)

Behold, I give unto you power to tread on serpents and scorpions, and over all the power of the enemy: and nothing shall by any means hurt you. (Luke 10:19)

You can watch a video of it here....
 http://www.youtube.com/watch?v=cwBVcsWYJd8

this article is the show we watch
http://www.christianpost.com/news/snake-handling-christians-to-star-in-snake-salvation-reality-show-101826/


http://www.amazon.com/Salvation-Sand-Mountain-Redemption-Appalachia/dp/0306818361  here is a link to a book I read recently.  I thought it was very interesting.  The journalist starts out "covering the trial of an Alabama pastor convicted of attempting to murder his wife with poisonous snakes—would evolve into a headlong plunge into a bizarre, mysterious, and ultimately irresistible world of unshakable faith: the world of holiness snake handling.

Set in the heart of Appalachia, Salvation on Sand Mountain is Covington’s unsurpassed and chillingly captivating exploration of the nature, power, and extremity of faith—an exploration that gradually turns inward, until Covington finds himself taking up the snakes."


Can you imagine?  He went to cover the trial and ends up taking up the snakes himself!  WOW!  It was an interesting read:)

 

 

 

 

 

Supposedly in my home town years ago there was a strange little Pentecostal church that did snake handling.  We would hear things about it.  My crazy Grandmother and I often talked about going, it was only like a block behind our field.  We talked about it so often but never went, we figured that if we went they probably wouldn't do the snake handling if they even did it at all.  But we were nosy LOL  We laugh and say what we'd do if someone tried to hand us a snake....LOL 

 

Of course as you know I was raised Pentecostal and my husband pastors an Assembly of God church which is a Pentecostal denomination.  However we do not teach snake handling!  LOL  Our church and the church I grew up in "Church Of God" teach that God does give the believer power BUT we'd say that scripture is talking about accidental things happening...like the story of Paul In Acts 28

 

28 Once safely on shore, we found out that the island was called Malta. ² The islanders showed us unusual kindness. They built a fire and welcomed us all because it was raining and cold. ³ Paul gathered a pile of brushwood and, as he put it on the fire, a viper, driven out by the heat, fastened itself on his hand. ⁴ When the islanders saw the snake hanging from his hand, they said to each other, “This man must be a murderer; for though he escaped from the sea, the goddess Justice has not allowed him to live.” ⁵ But Paul shook the snake off into the fire and suffered no ill effects. ⁶ The people expected him to swell up or suddenly fall dead; but after waiting a long time and seeing nothing unusual happen to him, they changed their minds and said he was a god.

 

Obviously Paul didn't go around picking up snakes, he was working and a snake bit him.  Then God intervened and Paul didn't die.  That is how most people view those verses....Not to go and do those things!  But that God will protect us if the situation arises.....  Actually most folks would say "don't tempt the Lord"!

 

So these folks also drink deadly drinks like poison and they put fire up to their faces...it is crazy!    We have decided that they have really loud music going on when they picked up the snakes and that confuses the snakes and it's almost like charming them.   Although folks get bit, one got bit on a show, when they were going snake hunting....  Ok I don't have much of a life but I like watching this crazy show!!!

 

So that's all the crazy stuff to share....

 

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Now let me tell you what all the kids are  doing....

 

Sarah knows where her nose it:) She'll grab my hand and put it on her nose when I ask her 'where's Sarah's nose?"   I don't know WHY she has to put my hand on her nose but she will do it over and over again:)  We had just gotten her psychological assessment back and her IQ was very very low...  However the assessment was done last school year and since then she is walking more, understanding more, drinking out of a straw and now she knows where her nose is!  Her PT feels like her IQ will really take off....remember Sarah had to learn to understand English and she is blind....it's quite an accomplishment when I say "Sarah come to mommy" and she crawls/hops over!   Blind kids are evaluated differently than sighted kids, there are so many things we learn just by being able to see. 

 

Selah is doing good.  She is moving her tongue all the time.  She finally has control of it to some degree and she moves it all the time.  We don't know what to think of it.  It is something she could not do until she had the HBOT!  Yesterday  I felt so sad.  It comes in waves....yet two more people (not wackos) told me they dreamed Selah came back....  I don't' know what to think, I just keep praying!

 

We may have a night nurse for the weekends Praise God!!!!!!!!!   All the details are being worked out.  It will be amazing if we have full coverage, we will be happy!!!!

 

Sam has learned to use this little seat...

 

I forgot what it is called, the little ones got it for Christmas from a Sunday School group and they love it.  Sarah knows how to crawl into it and will turn it around for hours.  Sam is so much more afraid than Sarah is...he just learned how to sit himself in it.  It is adorable the way he slowly sits down in it like a very old man.  So now he plays in it every night, it's become a ritual for him.   With a round bottom, it is easy for them to go around and around in circles and they love doing it.

 

Steve is waiting to start Driver's Ed next week at the public high school.  Mama is nervous....but it will be good for him.  He is also waiting on his books to finish his senior year of school.

 

Shad had a field trip today to MOSI in Tampa.  It's a favorite place for kids around here to go on field trips.  The Museum of Science and Industry...something like that.  Evidently they saw all kinds of things about disasters today, earthquakes, tornadoes, fires.... he loved it....   I have never been there, the thought of a bunch of kids frightens me...it's like an upscale Chuck E Cheese LOL  It's probably better than that, don't send me hate mail!!!

 

So thus ends an interesting day....