Family Time

Selah continues to be stable.  I got an email from the doctor in Germany.  At this time it seems they are only working with children whose cord blood from their umbilical cord was saved:(  But I was given the name of a doctor at Duke that has some type of study going on....I will be contacting them soon.  I actually have an email into a doctor at Duke, but not the same name.  It does seem like with all the searching I did before and now, it seems to circle back around to Duke University...who knows maybe we can get her in a study there! 

Thank you all for your info, I looked at everything and used the email addresses I was given.  Someone even sent me the phone number but it was answered in German...LOL so I stuck with the email! 

We were able to see some dear friends today and Jon got to spend some time with his dad.  By the time I got back to his dad's, he had fallen asleep so I didn't get to see him just my brother and sister in law.  It was good to just sit with family for awhile and reconnect.  Sometimes it seems so hard to get together with family but once you are together, you think "WHY do we wait so long?"  Family is so important to me, not really having one growing up.  When I married Jon, I truly embraced his family 100%.  I called all his aunts & uncles, aunt and uncle too:)   Now so many have passed away but I'm glad for the relationships I've had.  Jon has two married brothers, one older and one younger and we all been together all these years.  It's special. 

Jon Sarah and me today at lunch.  She loves to eat and I have to say our local Olive Garden is so nice to us.  They puree her soup and she just loves it:)  One of the managers became friends with us years ago when Sam was little and they really have helped out when we go in with Sarah.  She was all smiles today:)

 

There is just something about doing special little things for Sarah that warms my heart.  I am so glad I can take care of her.  She was so mistreated for years.  To see her smile just makes my day!   It seemed the staff didn't even want to touch her, now she is loved and treated like a princess.  Selah fared better than Sarah but she went through some hard times too.  To be able to take care of them is a blessing that is hard to explain. 

 

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Please pray that I will be able to find a study (they are usually free AND more structured) that will take Selah.  Since she doesn't have her cord blood obviously then it's going to be harder.  BUT some of the things I've read suggest they can harvest her own stem cells from various parts of her body.  If she gets her own stem cells there is no danger of any type of rejection or problem.  We probably would NOT be interested in getting stem cells from anywhere else, too many ethical issues and dangers. 

 

My mind keeps going back to last summer, comparing and it just is like a knife in my heart.  I really want to see Selah back to us. 

 

Also pray for our extended family, we have some folks really going through some hard times and they need God's help!