Day 15 HBOT and great pictrues!!!

Ok before you get to the pictures.....a little disclaimer.....  Selah has always had a little neck control, some days better than others.  When we were still in NY she could hold her head up at times up to 15 seconds.  Then when we transferred to the "rehab" ( and I use that term loosely)  she seemed to lose all of the neck control she had. 

Today we really wanted to see what she could do.  We took off the back of the stander where her head rests...and she had a little head control.  Her Occupational Therapist was here and she said that Selah was more alert and aware than she had ever seen her in the 8 months that we have been home!  Selah held her head up completely a couple of times, for a few seconds each time.  She seemed to have a bit more control in putting in down (it didn't just drop down fast) and she didn't put it all the way down. 

I am careful not to exaggerate things with her, it would be easy to make things look better than they are and claim some type of healing from God or help from the therapy that isn't proven yet.   So with that said, I am still happy with what we saw from La La today.  She was a bit mad and she shows it in a picture, that is good too:)

 

yes she is ticked off in this picture!!!!!!

 

 

 

 

 

This is the one, she had already held her head up some and I was hoping to catch it, the therapist moved her hand and Selah kept her head up!!!!!!

 

 

 

 

 

 

 

 

she put it down but still had some control over it.   Her head went down slower than usual, no big drop! 

 

she looks so cute and is working hard!!!!!!!!

 

So Selah had Physical therapy then HBOT, then Occupational therapy and then HBOT.... she has been one busy little girl today!  (Sam and Sarah also got PT and OT)    Selah's PT felt like Selah had better tone than usual.   Meaning not too tight and not too loose....she felt good. 

 

If you are wondering about her outfit....she has to wear scrubs to HBOT and they wash them in their soap, they are very particular.  So all they had clean yesterday was Spider man scrubs.  But if you notice her hair ribbons match! 

 

I want to thank some friends, the Blacks who picked up Selah's meds that we have to get from Brandon for me so I didn't have to drive an hour there and an hour back to get them!  Today has been crazy!  That was such a BIG help for me!!!!!!!!!!!!!!!!!!!

 

I know looking at these pictures, it is hard to understand that Selah is considered still in a persistent  vegetative  status...  but she is and if you were around her all the time, you'd understand.   But we still pray that God will bring her out of the PVS and heal her brain completely. 

 

One thing we need to see if for her to swallow and manage all of her secretions.  She does swallow and she does handle most of them, say 80% but we want to see that go to 100%! 

 

We are seeing some "good" movement and we want to see more!  I love when she moves just one hand/arm.  When she moves them together, that is not good, that is like basic brain stem activities.  But she does move them independently and I love that!

 

Last night we didn't have a nurse and Selah decided to be all awake at midnight!   She kept lifting her head off the pillow even though I told her it was night night time:)  She was moving all around in bed, her shoulders and even her feet some.  I was glad to see it, but was afraid she didn't feel good.  It seems like she was just moving ....:)  that is also good.  Tonight we have a nurse, she can move all she wants LOL.  When I'm by myself, I worry if I'm not watching her.....

 

So we continue on this adventure...please pray for Selah, pray that God will  heal her!!!

 

 

PS.  if you've wondered about my neck/shoulder/back pain....I've been meaning to tell you.....  I started using a travel pillow, those ones shaped like a U and it seems to help by holding my neck in place while I sleep.  I've had much less pain in the last month, still have to watch it but it might have just been the way I slept on it.