http://www.13wham.com/news/local/story/sehlah-clanton-canal/TqDZu-FUMEukRVCjBoGeBg.cspx
Here is the link to the news story we did tonight. If the above link doesnt' work then try to go to Rochester NY channel 13, we were the top story
DISCLAIMER: As far as I know the ABC station in Florida is just looking into partnering with Home Depot and a contractor about adding a room for Selah to our home. I don't think they are going to be building us a new house LOLOLOL So see don't believe everything you read or see on TV!!!! Although if they'd like to build us a new home, that's ok too BUT I just don't know anything about it:)
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
Friday, September 14, 2012
Friday Update
Selah is still stable. The PT got her up today and Jon was able to hold her for over 30 minutes. This is the first time she has been out of bed since the accident. As soon as a bed becomes available, she will be moved off the PICU unit to a step down room. We should be able to put her in a wheelchair soon and help her to adjust to being in a UP position. It may take her some time to adjust since she has been lying down for over 4 weeks.
Her blood pressures still aren't completely normal. She does have periods of time where her BP is in the normal range but often the BP is above normal but closer to a normal range than it was. Please pray that her blood pressure can be stabilized completely. Her heart rate is near normal most of the time. Everything else is going good physically.
Sam has been fine today, no more puking thank God!!!!
Today we did an interview with the local ABC station. It is our hope that we can share our faith and hope with others. I will post the link later tonight.
Please keep praying for Selah. Pray that with us being able to touch her and hold her that it will trigger some responses. Thank you for your thoughts and prayers!
Her blood pressures still aren't completely normal. She does have periods of time where her BP is in the normal range but often the BP is above normal but closer to a normal range than it was. Please pray that her blood pressure can be stabilized completely. Her heart rate is near normal most of the time. Everything else is going good physically.
Sam has been fine today, no more puking thank God!!!!
Today we did an interview with the local ABC station. It is our hope that we can share our faith and hope with others. I will post the link later tonight.
Please keep praying for Selah. Pray that with us being able to touch her and hold her that it will trigger some responses. Thank you for your thoughts and prayers!
Thursday, September 13, 2012
LIFE
Selah is doing good. Her blood pressures have been closer to normal most of the day. All her labs are good, her heart rate is still a little high but not too much. It runs in the 120's, which is much better than it was running.
She did do something new tonight. I was looking at her eye and it looked red so I turned on the overhead lights and she squinted her eyes closed! I managed to look at the eye and it was fine. Then I turned off the lights and she opened her eyes. Selah never liked bright lights and would often close her eyes and cover her face if she was in direct sunlight. So it seemed like a normal response from Selah and that was good.
So physically she is doing pretty good, neurologically she needs so much prayer.
Tonight sitting with her, I just felt peace...an assurance that everything is going to be alright. I don't know what "alright" is going to be, but it's going to be alright! What a peace to trust in the Lord. And what is also helps is that we knew before this ever happened, that we respect LIFE and we had had conversations about various public situations and how we would react if we ever found ourselves in any type of situation where we had to make decisions of care and life/death decisions.
Now we never were asked about "pulling the plug" with Selah. She always had brain activity. But we were faced with the question of whether we would put in a trach and g-tube. Evidently some families do not chose to do those things. Since Selah doesn't' have a gag/swallow reflex, she can not swallow her saliva and could choke or aspirate and possibly die. Obviously she can not eat either, so she needed a g-tube for nutrition. Jon and I respect the God given Life inside her and we are committed to her care. In my opinion, since the medical advances are there to help people to live longer, more comfortable lives, then we should use it. If the medical know how is there, we believe we should use it to take care of a person. It was allowed to be created for a reason and we are going to use it to take care of our child.
So honestly we thought about questions like this more in regards to ourselves as adults, not really that we would have a child in a situation like this. But it is a blessing to KNOW what you believe and not to be shaken in that belief if something like this happens. There was never a question in either of our minds about her care or how far to go in saving her. She was without a heartbeat for at least 30 minutes. When they finally got a heartbeat in the ER and she was transferred to the PICU, I was told that she probably wouldn't live through the day. I immediately asked if there was ANYTHING that could be done, any surgery, study, medicine, whatever. The doctor told me that there was a study that she could be enrolled in. where she would be put on cooled sheets and her temperature would be kept within a certain range. I said "lets do it" Then the doctor said he needed to go over everything with me. I was quick to tell him, that he had just told me my daughter was not going to live, he didn't have to tell me anything just get her set up! We have laughed about it since and he told me Selah was entered into the study the fastest that any other child had been LOLOL! I can get a bit aggressive and I was on aggressive overload that day! See I was able to make decisions on my own KNOWING the beliefs and values that my husband and I have. I didn't wonder or think twice about it. I didn't even have to talk to him about it because i knew what he would say!
Why did I know what he would say? Because we have a value system based on the respect of LIFE! Not that we don't believe in a wonderful Eternal Life to come but we believe Life is a gift from God and should be considered precious. We wanted to give our child every chance of Life there was to give! What a blessing not to have to have some moral dilemma! We had no questions...we wanted the doctors to give her the best care to give her a chance at Life.
So our daughter defied the odds. The next day when one of the admitting doctors made rounds I asked him if she would live and he said that he hadn't expected her to be alive when he came on. So again I asked him if he thought she would live and he said he'd have to rethink it....well now more than 4 weeks later she is alive and doing quite well physically.
Now the doctors and medical staff don't expect to see a change in her neurological condition. It's hard for me to believe sometimes that it will change and that she will come back. I understand the medical explanation of her brain damage and the ramifications. During the time she was so critical, I was afraid but I think in my heart that I did expect her to live. It was such a confusing time emotionally that nothing was clear. The way I hear from God, is I try to clear my mind of all the confusion and really try to hear from HIM, not my desires but what He is saying. God has spoken to my heart before, and sometimes it has been a clear NO. When we lost the twins, I knew it was going to happen, God prepared me and I knew in my heart as BAD as I hated it that they were gone. During that really awful time with Selah , I told Jon that I felt like God was saying to me that she would live but I wasn't sure if she would recover. I couldn't hear God's voice on that. I still don't know in my heart what the answer is. I still pray that He will in His mercy touch our wonderful unique little girl and bring her back to us! Sometimes I think maybe I don't hear the answer because I don't want to know the answer...I'm not sure.
I do remember the dream I had right after this accident that we were home and she just "woke up" Now I know that they type of brain injury Selah had with the lack of oxygen is not a type of injury that you just "wake up" from like some traumas to the brain. But it was a good dream and I'd love for it to happen. So we are all just holding onto to Jesus no matter what the future is for us!
So let me share with you, have your heart settled, know what you are believe based on the Bible BEFORE you are faced with any type of situation so you are prepared. I have questioned WHY did God allow her to come back to be in the shape she is in now BUT I only think that because I know how wonderful Heaven is and it's hard for me to see her suffer. But God is the giver and taker of Life, since He allowed her to come back, we rest in that. We are committed to making her life as comfortable and as full of love as possible. We will take care of her and get her the best medical help there is and we will pray for her for God to heal her.
This may sound very simple to some reading this...I'm too tired to give a big long in depth ethical argument but simple is sometimes the easiest... Simply trusting that "this is the way it is".....we are going to make the best out of it. I know from experience that simply trusting God brings Joys that you never dreamed of....So we are simply trusting....
Other Family news
I took the kids out to eat today and we are sitting just starting to eat and relax...THEN Sam made a noise like a burp, then he did it again and threw up a GALLON of puke! I thought I was going to pass out! I had to strip him at the table because there was NO way I was going to pick him up like that!!!! He seems absolutely fine now, I got him back to RMH, gave him a bath and put him to bed. Went and bought a huge cheap plastic table cloth so he won't get anything on their carpet if he gets sick again. Jon came back from the hospital to help me cuz I don't do puke very good. I'm proud of myself that I didn't join Sam, I have been known to do that!
He has been fine since then and ate soup for supper. We won't be going back there to that particular restaurant even if we are allowed LOL But I have to say that was my grossest parenting moment in almost 17 yrs of being a mom:)
It's actually funny to me now but standing in the restaurant, I didn't know what I was going to do!
I've gotten some questions about Shad and Steve. They are missing school but the good thing is Shad is almost a year ahead in his schoolwork so we aren't worried about him missing some time. Steve brought some work with him knowing that there ws a chance he'd miss the first few days of school and the school has sent him some more work also. They go to a private christian school that is working with us.
Sam and Sarah are missing their therapies but they will be able to get back to that when we get home.
Our kids have done well during this time. They really "go with the flow" and are very flexible. We've been here almost 5 weeks and they seem to be fine. It is different living in the Ronald McDonald House than at home. We all six share a room, talk about communal living LOL! Good thing I don't snore (wink wink) RMH is large so there are various tv rooms, we've kinda taken over the one closest to our room, cause we can put in a baby gate and the little ones will stay in there and play with their toys. I cook them breakfast every day, lunch is usually leftovers and most night volunteers bring in the suppers. If not we go out and eat or I cook a simple meal. Jon and I have tried to eat supper with the kids since all this has happened so they feel the comfort of something they are used to. It's been a growing time for our family. I've never believed that you should shield your children from the realities of life, we believe you should use Life experiences to help prepare them for their future. We've been honest with the kids and have answered any questions they've had without unduly worrying them. They have gone up a few times to see Selah but haven't gone in her room because she continues to test positive for MRSA, although she has no symptoms of it. So we are working through this as a family and it has created a tenderness between all of us. We aren't taking each other for granted. Even hard times can become a time of learning and bonding, even through tears.
So thank you for your prayers for our family, please continue!!!!!
She did do something new tonight. I was looking at her eye and it looked red so I turned on the overhead lights and she squinted her eyes closed! I managed to look at the eye and it was fine. Then I turned off the lights and she opened her eyes. Selah never liked bright lights and would often close her eyes and cover her face if she was in direct sunlight. So it seemed like a normal response from Selah and that was good.
So physically she is doing pretty good, neurologically she needs so much prayer.
Tonight sitting with her, I just felt peace...an assurance that everything is going to be alright. I don't know what "alright" is going to be, but it's going to be alright! What a peace to trust in the Lord. And what is also helps is that we knew before this ever happened, that we respect LIFE and we had had conversations about various public situations and how we would react if we ever found ourselves in any type of situation where we had to make decisions of care and life/death decisions.
Now we never were asked about "pulling the plug" with Selah. She always had brain activity. But we were faced with the question of whether we would put in a trach and g-tube. Evidently some families do not chose to do those things. Since Selah doesn't' have a gag/swallow reflex, she can not swallow her saliva and could choke or aspirate and possibly die. Obviously she can not eat either, so she needed a g-tube for nutrition. Jon and I respect the God given Life inside her and we are committed to her care. In my opinion, since the medical advances are there to help people to live longer, more comfortable lives, then we should use it. If the medical know how is there, we believe we should use it to take care of a person. It was allowed to be created for a reason and we are going to use it to take care of our child.
So honestly we thought about questions like this more in regards to ourselves as adults, not really that we would have a child in a situation like this. But it is a blessing to KNOW what you believe and not to be shaken in that belief if something like this happens. There was never a question in either of our minds about her care or how far to go in saving her. She was without a heartbeat for at least 30 minutes. When they finally got a heartbeat in the ER and she was transferred to the PICU, I was told that she probably wouldn't live through the day. I immediately asked if there was ANYTHING that could be done, any surgery, study, medicine, whatever. The doctor told me that there was a study that she could be enrolled in. where she would be put on cooled sheets and her temperature would be kept within a certain range. I said "lets do it" Then the doctor said he needed to go over everything with me. I was quick to tell him, that he had just told me my daughter was not going to live, he didn't have to tell me anything just get her set up! We have laughed about it since and he told me Selah was entered into the study the fastest that any other child had been LOLOL! I can get a bit aggressive and I was on aggressive overload that day! See I was able to make decisions on my own KNOWING the beliefs and values that my husband and I have. I didn't wonder or think twice about it. I didn't even have to talk to him about it because i knew what he would say!
Why did I know what he would say? Because we have a value system based on the respect of LIFE! Not that we don't believe in a wonderful Eternal Life to come but we believe Life is a gift from God and should be considered precious. We wanted to give our child every chance of Life there was to give! What a blessing not to have to have some moral dilemma! We had no questions...we wanted the doctors to give her the best care to give her a chance at Life.
So our daughter defied the odds. The next day when one of the admitting doctors made rounds I asked him if she would live and he said that he hadn't expected her to be alive when he came on. So again I asked him if he thought she would live and he said he'd have to rethink it....well now more than 4 weeks later she is alive and doing quite well physically.
Now the doctors and medical staff don't expect to see a change in her neurological condition. It's hard for me to believe sometimes that it will change and that she will come back. I understand the medical explanation of her brain damage and the ramifications. During the time she was so critical, I was afraid but I think in my heart that I did expect her to live. It was such a confusing time emotionally that nothing was clear. The way I hear from God, is I try to clear my mind of all the confusion and really try to hear from HIM, not my desires but what He is saying. God has spoken to my heart before, and sometimes it has been a clear NO. When we lost the twins, I knew it was going to happen, God prepared me and I knew in my heart as BAD as I hated it that they were gone. During that really awful time with Selah , I told Jon that I felt like God was saying to me that she would live but I wasn't sure if she would recover. I couldn't hear God's voice on that. I still don't know in my heart what the answer is. I still pray that He will in His mercy touch our wonderful unique little girl and bring her back to us! Sometimes I think maybe I don't hear the answer because I don't want to know the answer...I'm not sure.
I do remember the dream I had right after this accident that we were home and she just "woke up" Now I know that they type of brain injury Selah had with the lack of oxygen is not a type of injury that you just "wake up" from like some traumas to the brain. But it was a good dream and I'd love for it to happen. So we are all just holding onto to Jesus no matter what the future is for us!
So let me share with you, have your heart settled, know what you are believe based on the Bible BEFORE you are faced with any type of situation so you are prepared. I have questioned WHY did God allow her to come back to be in the shape she is in now BUT I only think that because I know how wonderful Heaven is and it's hard for me to see her suffer. But God is the giver and taker of Life, since He allowed her to come back, we rest in that. We are committed to making her life as comfortable and as full of love as possible. We will take care of her and get her the best medical help there is and we will pray for her for God to heal her.
This may sound very simple to some reading this...I'm too tired to give a big long in depth ethical argument but simple is sometimes the easiest... Simply trusting that "this is the way it is".....we are going to make the best out of it. I know from experience that simply trusting God brings Joys that you never dreamed of....So we are simply trusting....
Other Family news
I took the kids out to eat today and we are sitting just starting to eat and relax...THEN Sam made a noise like a burp, then he did it again and threw up a GALLON of puke! I thought I was going to pass out! I had to strip him at the table because there was NO way I was going to pick him up like that!!!! He seems absolutely fine now, I got him back to RMH, gave him a bath and put him to bed. Went and bought a huge cheap plastic table cloth so he won't get anything on their carpet if he gets sick again. Jon came back from the hospital to help me cuz I don't do puke very good. I'm proud of myself that I didn't join Sam, I have been known to do that!
He has been fine since then and ate soup for supper. We won't be going back there to that particular restaurant even if we are allowed LOL But I have to say that was my grossest parenting moment in almost 17 yrs of being a mom:)
It's actually funny to me now but standing in the restaurant, I didn't know what I was going to do!
I've gotten some questions about Shad and Steve. They are missing school but the good thing is Shad is almost a year ahead in his schoolwork so we aren't worried about him missing some time. Steve brought some work with him knowing that there ws a chance he'd miss the first few days of school and the school has sent him some more work also. They go to a private christian school that is working with us.
Sam and Sarah are missing their therapies but they will be able to get back to that when we get home.
Our kids have done well during this time. They really "go with the flow" and are very flexible. We've been here almost 5 weeks and they seem to be fine. It is different living in the Ronald McDonald House than at home. We all six share a room, talk about communal living LOL! Good thing I don't snore (wink wink) RMH is large so there are various tv rooms, we've kinda taken over the one closest to our room, cause we can put in a baby gate and the little ones will stay in there and play with their toys. I cook them breakfast every day, lunch is usually leftovers and most night volunteers bring in the suppers. If not we go out and eat or I cook a simple meal. Jon and I have tried to eat supper with the kids since all this has happened so they feel the comfort of something they are used to. It's been a growing time for our family. I've never believed that you should shield your children from the realities of life, we believe you should use Life experiences to help prepare them for their future. We've been honest with the kids and have answered any questions they've had without unduly worrying them. They have gone up a few times to see Selah but haven't gone in her room because she continues to test positive for MRSA, although she has no symptoms of it. So we are working through this as a family and it has created a tenderness between all of us. We aren't taking each other for granted. Even hard times can become a time of learning and bonding, even through tears.
So thank you for your prayers for our family, please continue!!!!!
Wednesday, September 12, 2012
Tv Interview
http://www.whec.com/news/stories/S2763794.shtml?cat=566
I hope you can click on here, if not try this one....
http://www.whec.com/news/stories/S2763794.shtml?cat=566
I looked up Rochester Ny channel 10 and it's the top story
LOVe that we were able to share our faith and be able to thank RMH for everything :)
I hope you can click on here, if not try this one....
http://www.whec.com/news/stories/S2763794.shtml?cat=566
I looked up Rochester Ny channel 10 and it's the top story
LOVe that we were able to share our faith and be able to thank RMH for everything :)
Busy Day~
Pictures-Sam waiting for Dr A
Jon, Dr Aquevella, Sam and Yvonne
Selah had a good day! Her blood pressure is closer to a normal level, it seems that the new blood pressure medicine is helping her thank God. Everything else physically is going good too. We are thankful! Please continue to keep our dear girl in your prayers. We are still praying for a total miracle for her! Thank you for your prayers!
Today Sam had an appointment with Dr Aquevella, to make sure that his eyes were ok following the accident. Sam has corneal implants in both eyes so we have to always watch for infection or any type of problems. We try not to get any water in his eyes whatsoever. His eyes are fragile and more susceptible to infection. We are thankful that when he was in the dirty canal water, he didn't pick up any infections from it. His pressures were normal too!
We love seeing our dear Dr Aquevella. He used his God-given gifts to give our son sight...what can you say about a man like that?? We appreciate him with all our hearts! The gift he gave to Sam, PRICELESS! He gave Sam SIGHT! And Sam enjoys every bit of it and uses it to do much mischief and we LOVE it!!!!!! Thank God for Dr Aquevella!!!!!
We did an interview with the local Rochester tv station Channel 10 and it will be shown tonight. We plan on doing interviews with all the local stations in the next week or so. We haven't responded to any of their requests before because we just couldn't handle doing them but we want to thank the Rochester Area for all they have done for our family and all the kindness shown. What a great town this is:) We've always thought highly of Rochester and these past few weeks have just shown us that there is plenty of "Northern Hospitality" too!!!!!
As we were doing the interview with Ms Adams from Channel 10, she asked some real questions about our faith and how we are dealing with this. I thank God that we can say that we serve a Good God, One who is with us no matter what is going on in our life. The last few days I have been so very sad, missing my little girl's funny litte self, my heart literally aches with in me. I've never been a "crier" but now my tears flow like a river at times. But tonight I can confidently tell you that God is good! His mercies endures forever! No I don't see the miracle I want right now but our life is but a vapor...so even if Selah is not healed on this earth, she will be healed for ALL eternity! I am so thankful for the eternal hope that we have in God! So I might sit in Selah's room and do nothing but cry at times but even tho my heart is breaking, I truly can tell you I trust God! What a precious Lord we serve! The presence of God is so real and true, I can't hardly believe the deep peace I feel despite the sorrow. No one can ever tell me that God is not real!!! Because without God I would be beyond a mess at this time! In the past, I've tried to handle hard times on my own and it was a MESS! What a difference to "lean upon the everlasting Arms"
So if you think I'm strong, you're wrong! It's God's strength that is holding me together!!! And the wonderful thing is YOU can also have this kind of peace in the midst of your storms. Turn your life over to God and just get as close to Him as you can, don't let any bitterness into your heart. It's a choice. I chose throughout the day NOT to get bitter, NOT to turn away from God in anyway in my heart. I say this all the time but I've been bitter and I do NOT plan on going back there!! Daily I throw myself on God and I depend on Him. He's a God that is dependable. When I can look at life through the lens of eternity, it is a bit easier to handle heartache. Sorrow is fleeting when we think of that which is to come...there is coming a day ....when all is made right and I'm so thankful for that. But also serving God, gives us strength for today, and even through this God's spirit is so sweet and tender.
Love the verse 1 Peter 4:12
Beloved, do not think it strange concerning the fiery trial which is to try you, as though some strange thing happened to you; but rejoice to the extent that you partake of Christ’s sufferings, that when His glory is revealed, you may also be glad with exceeding joy
And this one...
1 Peter 1:5-7
In this you greatly rejoice, though now for a little while, if need be, you have been grieved by various trials, that the genuineness of your faith, being much more precious than gold that perishes, though it is tested by fire, may be found to praise, honor, and glory at the revelation of Jesus Christ,
So when trials come, we shouldn't be surprised by them but we should expect them and trust God through them.
Tuesday, September 11, 2012
Quick update
Today has been a good day physically for Selah. Her blood pressure is staying nearer to normal range. She seems to be reacting good to the new meds. Since she is responding to this medicine, it seems to point out that this problem has been caused by her brain injury. So there was not a physical problem that caused this but more her brain responding to the injury:(
So we continue to ask you all to keep her in your prayers. Selah needs a touch from God to heal her brain.
Thank you all for your prayers.
So we continue to ask you all to keep her in your prayers. Selah needs a touch from God to heal her brain.
Thank you all for your prayers.
Monday, September 10, 2012
Nightly update pray for her neurological condition
Well Mommy had a rough day but physically Selah had a better day. It seems she is responding better to the new BP meds and her BP is near normal range. It does change throughout the day when it wears off. She still is breathing on her own and keeping her oxygen levels up to 100%! She is at her goal on her g-tube feeds and has had no problem with it. Her heart rate has come down to a near normal range the last few days. So we just need prayer that she will remain stable and that her BP can continue to be controlled. She finally had the EEG and they do not feel she had any seizure activity.
The biggest prayer we need is that God will touch and heal her neurologically ! Today a doctor basically told me "this is where she will be". Of course this is the same doctor who told me she would not live through the day of her accident so I can put it into perspective...
So if you wonder where she is....she is in a vegetative coma. She can breathe on her own but that is it. Her limbs have already stiffened, they feel like wood and she rarely moves except for movements that affect her whole body. They are not "good" movements, they are the kind of movements that show she has massive brain damage. She can not swallow. She has rare periods when it seems she responds to us but they are few and far between. she is not constant with responses like she needs to be. The neurologist who read her EEG today but it rather bluntly....he compared her EEG to a "normal" 8 yr old and said if it were normal, she'd be like a car running on all 6 cylinders. Taking into account her delays, he compared what he thought her EEG would look like , maybe a car running on 2 or 3 cylinders...where she is now...it's like she is running on a half of a cylinder....Her EEG shows massive damage, very slow responses...Hard news to hear for me and for me to write to you...but you need to understand where she is at.
So now you know where she is at and how to pray! We need to see more response and we need to see her limbs relax. It is so very hard to see her like this. You have no idea. Just looking at pictures of her, tear at my heart.
We feel the doctors do everything that can be done that is safe for her. She is on several meds, some to relax her body/limbs, she has Pt and OT, she has splints on her hands so that won't curl up. She wears boots on her feet so the toes won't point out. We play music and interact with her. There is nothing else to be done....She needs a touch from God!
There is no hope for her except in God. We have no one to turn to but Him. I'm so thankful He is our refuge and our strength, a very present help in time of trouble! All I can say is that scripture is true. I promise you it's true!!! Thank God it's true! This God that I serve does fulfill His promises! So if you wonder if God is real, let me tell you He is. He is the only ONE keeping me sane:)
Thank you for praying for Selah! Please keep her in your prayers! We so appreciate your prayers!
BTW it is COLD here in Rochester NY! Tomorrow it will be in the 40's, we think it's kinda neat for it to be so cold in September, the kids are amazed:) Tonight I'm wrapped up in a nice blanket that a friend sent the girls, I'm borrowing it!
The biggest prayer we need is that God will touch and heal her neurologically ! Today a doctor basically told me "this is where she will be". Of course this is the same doctor who told me she would not live through the day of her accident so I can put it into perspective...
So if you wonder where she is....she is in a vegetative coma. She can breathe on her own but that is it. Her limbs have already stiffened, they feel like wood and she rarely moves except for movements that affect her whole body. They are not "good" movements, they are the kind of movements that show she has massive brain damage. She can not swallow. She has rare periods when it seems she responds to us but they are few and far between. she is not constant with responses like she needs to be. The neurologist who read her EEG today but it rather bluntly....he compared her EEG to a "normal" 8 yr old and said if it were normal, she'd be like a car running on all 6 cylinders. Taking into account her delays, he compared what he thought her EEG would look like , maybe a car running on 2 or 3 cylinders...where she is now...it's like she is running on a half of a cylinder....Her EEG shows massive damage, very slow responses...Hard news to hear for me and for me to write to you...but you need to understand where she is at.
So now you know where she is at and how to pray! We need to see more response and we need to see her limbs relax. It is so very hard to see her like this. You have no idea. Just looking at pictures of her, tear at my heart.
We feel the doctors do everything that can be done that is safe for her. She is on several meds, some to relax her body/limbs, she has Pt and OT, she has splints on her hands so that won't curl up. She wears boots on her feet so the toes won't point out. We play music and interact with her. There is nothing else to be done....She needs a touch from God!
There is no hope for her except in God. We have no one to turn to but Him. I'm so thankful He is our refuge and our strength, a very present help in time of trouble! All I can say is that scripture is true. I promise you it's true!!! Thank God it's true! This God that I serve does fulfill His promises! So if you wonder if God is real, let me tell you He is. He is the only ONE keeping me sane:)
Thank you for praying for Selah! Please keep her in your prayers! We so appreciate your prayers!
BTW it is COLD here in Rochester NY! Tomorrow it will be in the 40's, we think it's kinda neat for it to be so cold in September, the kids are amazed:) Tonight I'm wrapped up in a nice blanket that a friend sent the girls, I'm borrowing it!
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