Nightly update pray for her neurological condition

Well Mommy had a rough day but physically Selah had a better day. It seems she is responding better to the new BP meds and her BP is near normal range. It does change throughout the day when it wears off. She still is breathing on her own and keeping her oxygen levels up to 100%! She is at her goal on her g-tube feeds and has had no problem with it. Her heart rate has come down to a near normal range the last few days. So we just need prayer that she will remain stable and that her BP can continue to be controlled. She finally had the EEG and they do not feel she had any seizure activity.

The biggest prayer we need is that God will touch and heal her neurologically ! Today a doctor basically told me "this is where she will be". Of course this is the same doctor who told me she would not live through the day of her accident so I can put it into perspective...

So if you wonder where she is....she is in a vegetative coma. She can breathe on her own but that is it. Her limbs have already stiffened, they feel like wood and she rarely moves except for movements that affect her whole body. They are not "good" movements, they are the kind of movements that show she has massive brain damage. She can not swallow. She has rare periods when it seems she responds to us but they are few and far between. she is not constant with responses like she needs to be. The neurologist who read her EEG today but it rather bluntly....he compared her EEG to a "normal" 8 yr old and said if it were normal, she'd be like a car running on all 6 cylinders. Taking into account her delays, he compared what he thought her EEG would look like , maybe a car running on 2 or 3 cylinders...where she is now...it's like she is running on a half of a cylinder....Her EEG shows massive damage, very slow responses...Hard news to hear for me and for me to write to you...but you need to understand where she is at.

So now you know where she is at and how to pray! We need to see more response and we need to see her limbs relax. It is so very hard to see her like this. You have no idea. Just looking at pictures of her, tear at my heart.

We feel the doctors do everything that can be done that is safe for her. She is on several meds, some to relax her body/limbs, she has Pt and OT, she has splints on her hands so that won't curl up. She wears boots on her feet so the toes won't point out. We play music and interact with her. There is nothing else to be done....She needs a touch from God!

There is no hope for her except in God. We have no one to turn to but Him. I'm so thankful He is our refuge and our strength, a very present help in time of trouble! All I can say is that scripture is true. I promise you it's true!!! Thank God it's true! This God that I serve does fulfill His promises! So if you wonder if God is real, let me tell you He is. He is the only ONE keeping me sane:)

Thank you for praying for Selah! Please keep her in your prayers! We so appreciate your prayers!

BTW it is COLD here in Rochester NY! Tomorrow it will be in the 40's, we think it's kinda neat for it to be so cold in September, the kids are amazed:) Tonight I'm wrapped up in a nice blanket that a friend sent the girls, I'm borrowing it!