Quick Update

Today was a quiet day for Selah.  Jon did some training with her trach.  It doesn't look like we will be leaving in the next few days as her blood pressure spiked or 'stormed"  and went high several times.  The doctors want to see this completely stable before she is flown back to Florida.  We are ok with that as we trust the medical care here.  They seem to really "turn over every stone" trying to find what is wrong and why and how to fix it!   So we are confident that they will adjust her medicine in a way to keep her BP more stable.  They certainly have been working on it.  They believe everything points to the reason for the high BPs is because of the brain damage only.  They do not feel there is any other physical reason. 

I took the boys to get hair cuts today, they were looking pretty wooly:)  Steve found a dvd of MADEA that we didn't have so that is what we watched tonight and I got some real laughs  going!  "Madea goes to jail ~ the play"  it was different than the movie (it was a real play) we got the movie one.  I have all of Madea's movies now I think!   It was good and had some good points and certainly some good laughs.  If you don't know Madea is my some what alter ego.  I appreciate Tyler Perry's work and how he always brings in a redeemative message as well as a prayer of salvation.  

I did LOADS of laundry today, really feeling at home LOL.  I actually had everything including our towels and sheets cleaned for about 10 minutes! 

Meet a sweet family who are here for their daughter to get a corneal implant tomorrow morning.  Their little one has faced alot of physical issues since her birth.  Pray that she will have sucess and pray for Dr A and Dr Chung as they work on this sweet little girl.  She could see for a short time after receiving corneal transplants but her eyes soon rejected them.  She was sad and let her family know that she wanted to see!!!  Please pray that this surgery will work for her and she will be able to see again!  Her mom and dad are very anixous!  You can just see the love they have for her!    Thank you for praying for this dear little one!  Put yourself in the parents' shoes and pray like that was your little bitty girl who wanted to see again.....

We see so much while we are staying at the RMH.  Some kids are here for just routine checkups and stay a few days, others have serious surgeries, or are born prematurely, or have accidents, or cancer ....it really makes us realize that we all go through trouble in this life!  We often find ourselves in rather deep conversations with families, some who are quite bitter about what their child has had to face.  We can truly speak from expirence when we talk with parents, even if our expirence is somewhat different but we've expirenced alot...  Actually while you are praying for us, remember all the families here, they are all facing some kind of storm and need  God to be with them!  Thanks!