Wednesday, September 5, 2012

HOPE


Four months ago today we walked out of an Ukraine Mental Institution with Selah and Sarah. Three weeks ago today the accident happened. Today Selah had her g-tube and trach put in. She did great thank God! Tonight I can look at her sweet little face without all the tape and tubes!

The plan is to try and wean her off the vent. Right now the setting is very low, 8 breathes a minute, she is doing all the breathing over that. The doctors expect her to be able to breath totally on her own. The reason she had to have the trach is that she is not swallowing/gagging or coughing and would aspirate on her saliva. When she gets the cough/gag reflex back the trach will be able to come out. You notice I said when and not if....I believe she will get the cough/gag back!

Since this happened three weeks ago, God has answered many prayers. Our first answered prayer is that Selah lived! She was not expected to live at all! We were repeatably told she would not live...but she did. Second, we prayed for the fevers to go and they did. Third we prayed for her to have a corneal reaction and she did. Fourth we prayed for her kidney function to recover and it did. Fifth we prayed for some neurological response and we believe she responded to Jon today before her surgery.

She has had some movements but they have not been "good purposeful" movements. They were what is called "posturing" which indicated neurological damage. All her limbs move at the same time in response to pain/pressure or stimulation. Today she seemed to make some purposeful movement when Jon said "Selah come to daddy" She seemed to lift and turn her head towards him (and he was on her left side which is not the side she seems to favor. Her limbs did not move all together (which was good-less chance of this being posturing) She did it 4 times ONLY when he said "Selah come to daddy" Then I called the nurse into see it. She didn't think it was posturing but said she wasn't sure of what she was seeing.

I wasn't sure if I was going to share this...it is a very small step and she needs to show constancy with this. We have been disappointed before with Sam who has done something once or twice and then NEVER did it again. So we are cautious about getting too excited about this and really would appreciate restraint on your part too LOL! Certainly it is good and anything that is not a step backwards is great but we have been extremely disappointed in some small strides Sam made that he never could repeat again to be too excited UNTIL we see a good consistent pattern. But we are excited and do feel like it was a true response.

The doctors have told us they feel all of her cerebral brain function is gone. That 's the part of the brain that is her intellect and her personality. They feel she only has a small part of her brain stem left The brain stem controls the basic functions like breathing, pain, temperature control (the concern with the fevers), gag/cough reflexes etc.... So since she doesn't seem to have even all of her brain stem function, it is hard for them to think she has anything above it. I don not think the doctors are trying to mislead us. They see near drownings all the time and know how things usually go. I believe they would be thrilled to see her exceed their expectations but they have seen so much they do not want us to get our hopes up.

So we are cautiously optimist and we are trusting in God. We are very thankful for the care she has received here at Strongs'. This is a great hospital with a wonderful approach to the whole person and family. So while we are thankful for the care she has received physically we know our real HOPE is in the Lord. We have been told over and over that there is nothing that can be done for her neurologically....

So please pray that Selah will respond more and more neurologically. Pray that all will see it and that God will get the glory for it. That is one thing that is for sure, if she recovers neurologically it will be God. Nothing can be done by any doctors for her at this time. They acknowledge that. We have some hope for some stem cell research but that is in the future.

Our hope is in God who made heaven and earth...pray for Selah!

28 comments:

  1. So very glad to hear that Selah came though the surgery with no complications. Praying for her total healing.

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  2. Yvonne, I was so encouraged by the five prayers and answers you mentioned! I will join you in praying that "Selah will respond more and more neurologically."

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  3. Absolutely praying this specific request for Selah. Praising the Lord for this glimmer of hope for you.

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  4. still praying for little Selah!

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  5. Praying for Selah! I am sure that she has angels surrounding her and watching over her precious life. Praying for your requests.

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  6. Prayers for Selah and the rest of the family. glad the surgery went well.

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  7. Has she had an EEG to confirm or rule out the doctors' assertion of no cerebral function?

    The brain stem controls heart rate, too, which could explain her increased heart rate.

    I understand how difficult it is to hear these dire reports/predictions about your child & I pray that God will give your family peace.

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    1. her EEG was more to rule out seizures...since she was very delayed anyhow, it's not sure if she would have a normal EEG

      But based on her lack of basic brain stem responses like cough/gag and for the weeks she had no corneal response, it leads them to believe there is not alot going on above the brain stem

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  8. Praying for Selah to heal. Praying for your hearts.

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  9. Our family is praying for you. We also had to walk the long road of neurological damage in a child six years ago. At three weeks we also had a hard time finding hope, but Abby gives glory to God everyday now as a college freshman. Every road is different, but God can bring hope from despair, beauty from ashes. God bless you and hold you.
    -Lee Ann Linam
    www.abbylinam.blogspot.com

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  10. Our God . . . He reigns. Praying for you, and believing with you for God's mercy and goodness to your family.

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  11. Prayers for Selah and praises for the answered prayer to this point! Believing God with you for neurological restoration.
    Love and hugs and prayers,
    Debi

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  12. Praying for Selah and your family. Prayers for neurological restoration and for continued miracles.
    Love and hugs and prayers,
    Debi

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  13. I have been reading this blog for several days and just wanted you to know that you have touched me. Your faith and trust has touched a teenage girl all the way in Tulsa, OK. I have been praying for sweet Selah and every time I do I am reminded of a song we sang at my church camp this summer and I thought I would share it to try and send a little encouragement your way. Thank you so much for being an example of strength to me.

    http://youtu.be/n1bXG4WIesA

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  14. Yvonne you have me sobbing. For some reason this post instead of all the others got me. PRAYING PRAYING PRAYING!!! Selah is one amazing little girl, thank you for listing those 5 miracles. She is overcoming challenge after challenge!! Believing and praying with you!!!

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  15. I'm so glad you can see your little doll's face without tape and tubes! The family picture of y'all at the top of the blog is beautiful and everytime I see it, Selah reminds me of baby dolls I had as a little girl! I'm choosing to believe that she can hear what is being said over her, especially the voices of her mommy and daddy! I'm choosing to believe there is hope for improvement and healing (look how far she has already progressed!). God is watching over her, as He has always been with her. Praising Him for answering our prayers to spare her life and giving her the responses you are seeing! Asking God to continue keeping your family through all of this.

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  16. I am praying fervently and often. I'm glad that you shared what you saw, and pray that she is able to repeat the purposeful movements. Thank you for taking the time to write an update, and God bless all of you.

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  17. You are right, there have already been answered prayers. Selah is already a miracle, and we don't really know what God's healing looks like for her. That said, I pray with all I have for more improvement for Selah. Our God is a kind and loving God. Praying for His tender mercies for Selah and your family.

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  18. Been reading Phillip Yancey's book "Prayer" ... just read Chap 7, Wrestling with God. Since then I've been prayed BOLD prayers for Selah's complete healing (& Conner's - salmonella again, & Easton's - newborn w/ EB, & Bethany's - post-heart surgery, needs 2 more surgerys, & Cheyenne's - shaken baby). I add "Your will be done" at the END of my prayers, but want Him to hear my heart - for complete healing for all of these precious babes!!

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  19. praying for your precious daughter.

    God,

    whatever your will is let it be so. Give the parents rest and energy to care for their other children. Help Selah to respond more and more. Thanks for this sliver of hope in the head moving. bring more Lord. bless this precious family with your healing power.
    "Cast all your anxieties on the Lord because he cares for you" (1 Peter 5:7)

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  20. Words are never enough to express what is in the heart...I will continue to lift your whole family, especially Selah, up to the Lord.
    Love from NC

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  21. Our God is able!! To Him be the glory now and forever!! Continued prayers for his healing touch upon your little girl! Amen and Amen!!

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  22. Proverbs 13:12 NKJV
    Hope deferred makes the heart sick, But when the desire comes, it is a tree of life.

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  23. Proverbs 13:12 NKJV
    Hope deferred makes the heart sick, But when the desire comes, it is a tree of life.

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  24. Yvonne, I am so glad that you and Jon have each other and that you both have God, and that you have such a wonderful medical establishment backing you up.

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  25. Yvonne, I am so glad that you and Jon have each other and that you have God, and that you have such a wonderful medical community behind you.

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  26. Praying as always! And for today, rejoice in what the Lord allowed Selah to do. I read your words and I hope and pray for more, but I also pray for God to be merciful and give you all strength.

    Yes I got so excited when I read your FB update and sometimes we need to celebrate the little things. I am happy she responded the way she did and pray for her to continue to heal. But above all, God be praised for everything He has given you. God is good, no matter what.

    Love to you mama & love to Selah!

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