Selah's blood pressure is still high, last reading 161/110! She responds to the meds given for about an hour then her pressures go back up. She had two "seizure like " movements today. She will have an EEG tomorrow to see if anything registers...she'd had it on continuously for about a week with no sign of seizure activity.
She has had many tests to try and determine why her blood pressures are this high. They've ruled out most regular reasons. It could be that her brain is "changing" and it needs more blood. That is not really a "good" thing.
Her heart rate has become a bit more stable, it seems to mostly stay in the 120-130 range which is still on the high side but not as high.
So again our girl is in a dangerous situation. Please pray for her. We are so disheartened that she is having these problems. She hasn't really responded to us in the last couple of days.
She is breathing great on her own and she is doing well with feeds. Her g-tube seems to be working good. We are thankful that she is doing good in these area.
I just ask and ask for you to pray for her...ask your church to pray, ask your friends to pray...Please dont' forget about her. We haven't given up hope for recovery, but some days are way harder than others, this is one of those days.
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
Sending as many prayers as I possibly can. Praying for Selah and for all of you. God bless.
ReplyDeleteGod does not forget Selah, and neither do I. Your precious girl is in my thoughts constantly and I am praying.
ReplyDelete*love hugs and prayers*
We will surely not forget about your little sweetie!!! God has already done miraculous things for her as you mentioned several posts earlier! We ask for MORE in faith that it will be done! Thank you Father God!! Selah will most certainly be lifted high this morning in our prayer circle. We must remain confident that God hears every cry for mercy on her behalf. (((BIG HUGS))) for this new day....the one that the Lord has made!!
ReplyDeleteYvonne, I rarely comment, but have followed you from the beginning of your RR journey. Just wanted to say I am still praying for Selah, and will not forget her or your family.
ReplyDeleteAsk nephrology if they can try Soliris for her, its new medications and used for different stuff like neuro and hight BP. we had friend she was in coma and they give her that med and she recovered very well. the company that makes that medicine is ALEXION .
ReplyDeleteYvonne, I will not forget Selah. And my prayers continue not only for this precious daughter you've been given, but for your whole family. I'm sorry you're having a difficult day. May God be with you.
ReplyDeleteGreat Physician, Lord Jesus, we ask for you to come and lay your hand upon Selah and bring her blood pressure down to normal. It is in Your Holy Name we petition You for Your Grace for the sake of Your Glory.
ReplyDelete