The last few days, Sam's good eye has been unusually red. I try and not freak out too much if he has a tiny bit of redness as that will happen sometimes. But I called Dr A and he advised me to go back on an eye drop that he had had us discontinue. Prediforte is a steroid drop that Sam has used all his life but it can cause his glaucoma pressure to go up. I added it back and all the redness is already gone thank God!! With just one little very fragile eye....it gets scary!
Selah had an appointment today with the doctor who does Botox. He saw her in the hospital back in February. He was very positive and said Selah has improved so much he is not sure she needs any Botox!!! Botox is used to numb/deaden muscles and their responses in order to get more range of motion. Selah's range is really good, even tho she was not happy with us today. He is talking with our physical therapist and then they will decide whether or not to do it. He was very very complimentary of the care Selah has received by her nurses and by her great physical therapist, Chris. He said Selah looked really good. I loved that he took his time, examined her and didn't try to rush us to do things to her. I also loved how he kept saying how much better (less stiff) she is than when he saw her in February. I asked him if it was unusual for a child to improve so much and he said it can happen but it shows she has had extensive therapy and been worked with a lot:) I'm very thankful for our nurses and for our therapists especially our PT! I think we are her "project" This mama loves to her a doctor say something GOOD for once!!!
Tomorrow Sarah will have her first swim lesson. The lady who teaches the class I take will be her teacher. Sarah loves the water and seems to understand it some. She has no fear of it. Sarah will have private one on one classes. I love that she is getting the chance to do this:) I promise pictures:) We hope she will at least learn to float....but who knows, Sarah is such an amazing girl, she might end up making the Special Olympics swim team:)
Shad is 100% back to normal....
Steve has been busy doing some different things. He has been such a help to me this summer. I really appreciate him!! I focus on making sure he has some real free time every week. I just pre ordered him something big for his birthday....LOL something I swore I'd never buy....but he is such a big help and never complains about much:) He is also having to do schoolwork over the summer....but is flying through thank God!
it was much more vivid in real life!
On the way home from the doctor, there was a huge rainbow...it literally looked like it ended over our home... It reminded me of the big rainbow I saw as we entered Rochester last year.....it seemed like a good sign then....now it seems like it mocked us. But maybe it didn't mock us. Maybe it was there, to remind us of Gods promises....after the storm that was to come.
I'm not one of those folks who read signs in the sky at all. I can not remember a time BESIDES driving into Rochester last summer when I was affected by seeing a rainbow. We drove in from Buffalo, having come up a different way than we usually do and as we were going off of I-90 onto I-390.....it just looked amazing..... I really felt like it was a SIGN that things would go good with Sam, that Sarah would get her eye surgery done and that we'd have a great time in Rochester..... thankfully Sam's eye check up was good....but Sarah was unable to have the same eye surgery due to the abnormity of our little eye (she only has one eye) and of course....the accident was only a few days away from happening....
Maybe this rainbow was a good sign....I do think our home life is wonderful. I love my family and am thrilled with my life....except I want Selah healed and well. If Selah was back to her normal, I would not have one complaint at all. I like to think I've had a grateful, happy heart and that I was totally content before the accident...there is no way I can every be every be content or truly happy again unless Selah is healed.
In just a little over a month, it will be a year since the accident....I've lived with this huge ache in my heart for almost a year now..... I keep remembering the dream I had right after the accident. I keep hoping it will come true...
Please pray for Selah!!!
Rainbows have been in abundance here in rainy NY this summer. I will remember to pray for you the next time I see one...as well as all the other times in between. :)
ReplyDeleteWhew, Glad Sam's eye is ok! I use predforte for my eye condition--so I understand the concern about eye pressure.
ReplyDeleteYAY Selah for not needing botox!! That's good news for sure.
I bet Sarah will do great with swim :)
Glad to hear Shad & Steve are doing well too. The big 18!! You've almost raised an adult--it's a pretty awesome achievement :D
I love rainbows, esp double rainbows. I've had a few that were signs to me. Either way they are beautiful.
Praying always xo