Monday, August 19, 2013

A God Moment!

Most amazing experience today....I felt strongly to go back to the Hyperbaric Oxygen Clinic and talk to them about letting Selah start the therapy (and she is next week) but the amazing thing was there was the sweetest little guy was there and walked past me with no shoes on, and then turned and grabbed me around the neck....he immediately reminded me of Sam. (the way he hugs and the NO shoes!) ...He was there for therapy, I started talking to his dad and found out that he has Peter's Anomaly too! The family is from the Bahamas and have just traveled all over to get their son all the help he has needed. His mom and I started talking, they had never met another child with Peter's (it is so rare!) We have traveled to many of the same doctors and have the same opinion on some of them LOL (not GOOD opinions!!) So you know how tiny our little town is? Do you know how rare PA is??? For two families to meet like this.....it is unusual to say the least! This family traveled from the Bahamas for their son's therapy and we could have so easily missed each other.....really if that sweet little boy hadn't grabbed me like he did, we probably wouldn't have started talking.   Being a mom of special needs kids, I don't stare at other families, or act curious, Lord knows how I hate that!   I am so thankful for that little guy's hugs and that his family and I started talking...it was a real God moment!   I've never quite had such a moment when I knew I was right where I was supposed to be and with the people I was supposed to be with!!!! Looking forward to spending Wednesday afternoon with them!!!!!!  I am still amazed at how all that worked out. 
 
So Selah starts HBOT on Monday!  She will go two times daily for 20 days, every day, weekends included.  Since I first talked to the clinic, they have dealt with another person like Selah who has both a trach and a g-tube.  They are more comfortable now with working with Selah.  She will be in a chamber (think a sub) for 1 hour as 100% oxygen is pumped in.  The idea is that it will cause her brain to start "firing"  more normally.  We do not know if it will work but we feel we would be remiss if we did not try this for her.  If we seem to notice any significant changes we will do more.  We will go in the mornings and again in the afternoons.   I am excited to try this....if it doesn't work, at least we have tried.  They gave us a nice break on the charges but it is still expensive.  I'm thankful that God has provided for her to go! 
 
Shad started school today....
 
 
He is ready with his Duck Dynasty lunch box!  My SOUTHREN Chinese son who loves everything Duck Dynasty.....  ( our dream is to meet them LOL) 

 
4th grade look out!  Here comes Shad!
 
 
Steve started his senior year but in his PJ's:)  No picture allowed....he is looking forward to finishing up soon with school as a homeschooler.  He has less books to do than he originally thought and is thrilled!
 
 
Hope you all have a Happy Happy Happy Monday....I'm feeling pretty happy:) 
Please pray for Selah that this treatment will do a miracle for her!
 
 

7 comments:

  1. I love the Gos Things when I realize it is a God thing.
    I am thrilled you had a great time with the parents.
    And Shad looks really happy to be starting another year of school...
    Will be paying more specifically for Selah with this new treatment...
    Love from NC

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  2. This post made me smile...but not quite as big as Shad's smile is! :) So happy you are feeling happy!

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  3. I am really glad you are trying the HBOT. I hope and pray that it helps.

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  4. I love it when you have "Godincidences" like that :) I don't believe in coincidences or luck. How wonderful :)

    PRAYING HARD for Selah at the HBOT!!

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  5. WOW!! That is a total moment! Love how He does those things. :-)

    Praying you will see huge improvement with Selah w/ the HBOT.

    Hope Shad had a great day!

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  6. Yvonne, I know what PA is, and that it's 1 in 5 million!;) There are roughly 5 million people in AL, and I have the 1 with PA=). I have not heard of hyper...sp? for PA, can you tell me more? I'm glad that, despite little daily drama's, everyone at your house is doing well. I have checked your blog occasionally, since I found it researching PA, 3 years ago.

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  7. Janet do you have PA or does your child? It is very rare.... my email is theclanton5@aol.com please feel free to contact me directly.

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