Monday, October 28, 2013

It's Monday again!

 
 
 
 
 
 
Just some pictures from after church.  I like to take pictures of all of us together. 
 
 
 
 
 

 
 
Sarah had taken off her socks and shoes, she is a whiz at that! 
 
 

 
 
 

 
 
 

 
Selah was beyond ready to go inside!  She had a little tear so we hurried up.
 
 
 
 
Oh paperwork and phone calls....that is all I did today.  It is so overwhelming!  One of the nurses, Rose, really helps me with some coordination of prescriptions and helps us to just order the things we need from the medical supply company each month.  She realized that the prescription for Selah's feeds are wrong and has been working since last week to try and get things straightened out.  We are still working on it.  Selah was not sent the right amount of feeds so she ran out early.  Last night and tonight she is getting apple juice and pedialyte.  We are not happy as our nurse ordered things more than a week ahead of time!   The doctor's office said it was ok for her for a couple of days but it still makes me mad.  She gets such a special formula, there is no way to get it anywhere else.  I do have some Pedisure, we gave that last time when the company ran late and Selah got a lot of gas and just felt awful.  We won't do that again to her.  I'm ordering a few weeks supply so this will never ever happen again.  Our insurance won't pay for it but I don't care, I want it on hand!  I had to do that with the mickey buttons/gtubes and they were so expensive but after her's messing up and not having one on hand because "the insurance won't pay for it yet"  I said "forget the insurance we will just buy some and be on the safe side!!!!!"
 
 
Well I have a lot of loose ends to tie up this week so we are ready to start HBOT on Friday.  Once we start it, that is the focus.  It seems like I have so much paperwork (insurance , bills, stuff for the church...)  it just paralyzes me some days.  Right now, I need to "grab the bull by the horns" and just do some stuff and I just can't get myself to do it!  I hate that, never used to be like this.    But hey my closet and the little kids' closets are cleaned out LOL  I like that kind of work!
 
And I have a chicken casserole cooking.  It's really easy, it reminds me of a dish my mother in law used to make. 
 
 
 
CHICKEN CASSEROLE
 
1 box of Uncle Ben's wild rice ( I use 3 boxes)
 
1 can of condensed cream of chicken soup  ( I use 3)
 
1/2 cup of milk  ( I use 3/4 cup)
 
2 1/2 cup of hot water  (I use 3 cups)
 
you can add mushrooms (no way!) and green onions
 
Lots of pepper, I put lots!
 
Chicken or Turkey- sometimes I use the canned chicken from Sam's but you can use shredded chicken or turkey.  Or what I used today about 6 boneless/skinless chicken very thin.  I put them in raw, but have also used cooked chicken. 
 
cook at 350 for an hour.....it's so good!
 
I have a dish of green beans and usually a bread and salad with it.  It's easy, pretty healthy and very good.
 
 
I also made a trip to the grocery store today....NOW that is avoiding paperwork LOL!  Needed some meats and ideas so I could have some good suppers this week and things to cook in the crock pot once we get started on Friday!  
 
Hope you all have a good night.  Please pray for Selah as we are getting ready once again to start HBOT!
 
 
 
 
 
 
 
 
 

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