We are starting the process to get Selah into a study involving fish oil. If you've seen my latest posts, you may have read the story that was on CNN about the benefits of fish oil for comatose patients. A mom whose daughter takes fish oil for other reasons put us in touch with the team that is working on this. It happened FAST, like most good things do:) Today there was discussion on both sides and it looks favorable that Strong's will work with this study! We are excited and anxious at the same time. Obviously we are excited because of the two men who were given NO hope and then given the fish oil, they recovered! Selah is actually in a better place than they were at the time they were started on the fish oil. She is doing more things and is stable. We are anxious because there is alot of things that have to come together to make all of this work, so far Strong's has seemed open to this study, we just hope all the details can be ironed out quickly and she can be started on it. So please pray that everything will come together and that Selah will be another success story! I have not seen that any other children with near drownings have participated in this study so perhaps she will be a trail blazer!
Today has not been a great day for her, her heart rate and blood pressure stayed up off and on since late last night. It was never so high that she had to have any additional meds but we like for it to be normal and stable. Please pray for Selah that she will have a good night.
I want to say thank you to so many folks who have done things for our family. I had gotten thank you cards and had many addresses written down to send thank yous to and now I can't find my address sheet! I am so sorry and I hope you all know how much we appreciate all the things that folks have done for our family! God has just surrounded us with loving people! I hope I can find the addresses, but please know we appreciate each one and many cards and letters have brought us to tears!!!!!
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
I read that article on CNN yesterday. How exciting that you might have the opportunity to try a similar treatment! I will be praying that you will be able to do it and that Selah's body will benefit from it. I'm praying for sweet Selah and your family.
ReplyDeleteThis is exciting--praying that it works. Thank God for people willing to help this little girl that supposedly "no one wanted"!
ReplyDeleteGreat news about the fish oil study! We will continue to pray she can get started soon! Praying for Selah and your family.
ReplyDeleteBeware that most western trained medical staff do not know a darn thing about supplements or the curing healing power...I highly recommend finding a good holistic doc near home to work his magic on the side or in addition to what is already going on. 9x out of 10 most doc don't know supplements b/c they weren't trained, mistrust anything off the beaten path and or must learn to work in harmony for the benefit of the patient. If you believe in this, make it work. Been here, fought this and still am...
ReplyDeleteI hope and pray that this works! I read a CNN article about it....and as long as it doesn't conflict with her meds, I say it won't hurt. My daughter--a future neuroscientist--is VERY interested in all this.
ReplyDeletePraying Selah has a good night--and you too (((((Hugs)))))
Great news. Have you looked into hyperbaric oxygen chamber therapy. I have read a few articles where this was very helpful in near drownings. Maybe something to consider.
ReplyDeleteStill praying for you! And just wanted to say that even though Selah did not have a great day today, from an outsider's perspective it really seems like a 2 steps forward, one step back situation. I'm sure it all feels so slow and awful for you, but I read your posts every day and can only think, "Wow! Selah has come so far! And she is still getting better despite the odds she was given!"
ReplyDeleteI can't imagine how horrible it must all be as her parent... but just wanted to offer some encouragement for the days you are having trouble seeing the forest for the trees.
Still praying for you! And just wanted to say that even though Selah did not have a great day today, from an outsider's perspective it really seems like a 2 steps forward, one step back situation. I'm sure it all feels so slow and awful for you, but I read your posts every day and can only think, "Wow! Selah has come so far! And she is still getting better despite the odds she was given!"
ReplyDeleteI can't imagine how horrible it must all be as her parent... but just wanted to offer some encouragement for the days you are having trouble seeing the forest for the trees.
Praying her blood pressure will stay steady.
ReplyDeleteSOO EXCITED about her progress though as well as this new study! Praise God! Will be praying about that too!
So thankful to hear about the potential approval for the fish study! And sorry to hear about the bad day. We are praying every day, Yvonne, even on days when we don't get to check the internet to hear the progress.
ReplyDeleteLove you!
Shawnee
Katya's nuerologist, Dr. Benjamin Carson, ("Gifted Hands") has approved putting her on fish oil post-op . . . he says that the amount of brain damage she has from 7 yeas of untreated craniostenosis is so great that medically speaking she can't do all the stuff she can do already, so we are all hopeful that fish oil will help improve what brain fuction she does have. We have seen some encouraging things in terms of her attmepting speech since putting her on the fish oil, so I'm hopeful you can get Selah on it too.
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