Saturday night Selah update!

Selah had another great day.  No storming for more than 36 hours.  She is averaging  a storming session about every two days now.  That is great, there was a time when it was almost constant.  She has come a might long way thank God.  The good thing NOW when she storms, it is generally just her heart rate that goes up.  She doesn't seem to have spikes in her blood pressure at all anymore!  It's been a couple of weeks since she has had to have extra meds!  That is huge and an answer to prayer.  Many near drowning patients only get worse with the "storms".


She swallowed several times today.  We got her up and in her carseat.  She was up for almost an hour with no head support.  Obviously the car set has a little support but it is her toddler car seat, so it doesn't have much, unless her head was to really go from one side to the other.  She moved her head side to side a lot during the time she was up, mostly to escape me!   I cleaned her ears out and she moved away from me from both sides and was not happy with me at all.  

Since the accident, we were told she could be deaf and blind.  We knew she had stated following us with her eyes and now with head movements.  We also believed she could hear.  Well today I was straightening up the room and fell over the trash can, Selah woke up from a sound sleep, jumped and made a face like she was crying!  No hearing issues here!!!

We bought these cute little animals that are kinda beanbags and can be heated in the microwave.  We use them to help her legs relax.  I found another little heat up thingy that I'm using too.  It has really helped her.  I am looking for one of the travel pillows that look like a U that goes around the neck that can be heated.  We have several we've been using but we'd love to get one that heats up.  If anyone can find one, let me know.  She is much more relaxed.  Her arms and hands are in really good shape.  Her legs are much better but not back to normal.  At one point, her knee literally were so tight that they looked like they were going backwards.  Like the kneecaps would come out the back of her legs...OMG that was so hard to see!  She is much better than that now!!!!  Her ankles are movable but her toes still point down but she can be worked with now,  At one point, they were telling us to prepare for the stiffness to get worse and that the meds would probably stop working1!!  Thank God we are far from that now!!!!

I need to find oneof the neck pillows  in a store...on top of everything else, our debit/credit card got comporomised about a month ago at Walmart so it was cancelled. Thankfully our bank has a business relationship with a bank here so we can withdraw money but we can't get a card until we go home and go into our bank.  So I can't order anything on line

Thank you friends, I have 2 friends sending me one!  So she will have a spare:)  thanks so much!!!!   Heat is something that is used in the rehab hospitals, I didn't know it but started using it with Selah on her legs and her therapist told me that was what was used to help a rehab patient's limbs relax before therapy.   That was cool.  I'm always trying to think of things to help her.  All the years with Sam has taught me alot too and we have all kinds of therapy things back home...but I'm not there yet:)

We are still waiting for her to get started in the fish oil study.   Both doctors seem motivated to see it happen asap but there is red tape to get through....  can't wait till it gets started!  I keep meaning to go through some articles about it and post some of them, I just haven't had time to lately but soon!!!!  There actually have been 7 brain damaged individuals in the study (the two in the article were the big stories) but ALL have seen significant improvement!  I am going to read the studies tonight (maybe)

We are bracing for a storm!  It's been cold and drizzly up here already thanks to a front in the area but we might (oh I hope) get hit by a snow storm!!!  We want to see some snow!  I 'd love for the boys to go snow tubing!!!

Please request prayer tomorrow for Selah, pray that this progress continues and that the fish oil study will be started without a hitch and it will work perfectly for her!  thank you all!!!!!!!