Selah remains stable. She seemed alert today. Her nurse felt that Selah was more alert than the last time she had her. We love to hear things like that from the staff. We are waiting on all the arrangements to be made for her transfer. Please pray that everything falls into place for her.
We all are doing ok. The kids actually love being at the Ronald McD House. They will miss being here when we get home. The staff/volunteers and other families are just so great to be around. There are several families who are "long timers" like us (although I think we at almost 8 weeks are the longest residents at this point) We all talk and keep up with each other's journey. What a blessing Rochester Ronald McDonald House has to been to us and so many others.... We've always loved it here but now I know there will be tears when we leave after this journey! We've been loved & supported so much...what a blessing! Steve & Shad are totally spoiled here! Sarah and Sam seem totally happy too. Sam has continued to grow up. He loves riding the elevator and tries to walk to it every time he can! Sarah is so close to walking, she has grown up so much too. The other day I figured out that of all the time we've had her and Selah, they've been up here 1/3 of their time with us. Despite the fact that Sarah was just getting used to us and home, she has had no issue at all being here. It's like she is just like me, as long as my family is with me, I am Home! People ask me if I'm homesick for Florida...and to be honest I'm not since I have my husband and children with me. Of course I love our friends and family in Florida....(don't worry!) but I've just learned to be "home" wherever I am as long as I have "my tribe" with me!!!!
So we are just waiting for the next step, the future is so unknown but we know Who holds the future. Several times today I have had to remind myself not to be afraid....God is with us. We've been in a "bubble" here and we are used to the hospital and how things are done and now everything will be changing...UGH I HATE change! I'm a snob when it comes to health care....Rochester Strong's is really top of the line....I will probably be comparing everything from now on to Strong's .... and I don't want to leave that security!
Thank you all for your prayers for Selah and our family! We so appreciate it!
As usual, I love this update. I totally understand the idea of being a "healthcare snob". As much as I miss home, I really like that we are so close the one of the top children's hospitals in the nation. My daughter has gotten the best care here.
ReplyDeleteAnd I want to congratulate Sarah on being so close to walking. GO Sarah! Keep up the hard work.
Samantha
www.thestewreport.blogspot.com
Continuing to pray and love to read your posts. I will continue following you for as long as you post on your blog.....If I never meet you here on earth, I will know you in Heaven...
ReplyDeleteLove from NC
Continuing to keep you and your amazing family lifted up in prayer. Your strength and grace is amazing.
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