Just found out today that Lakeland Regional Medical Center in Lakeland Fl has turned Selah down as a patient. It seems that this was an administrative decision, not a medical one. We were not really given a reason why... Selah has insurance, a primary and a secondary so it's not based on that. We will be looking into this tomorrow.
Selah did something new today. Both Sarah and I have quite a cold so I've not gone over since Sunday. But Jon had her in her chair as he walked across the room and saw her open her mouth as if to respond to him. He immediately got on the ground close to her and started talking to her. She moved her mouth as if to speak ( she babbled back and to, to us before the accident) She was looking right at Jon and he felt she was interacting with him. This is precious to us when she has such a response. She has had some more "storming" where her blood pressure goes up and she shakes but she has been able to calm herself without using additional meds.
So please pray that Selah gets moved to the right hospital and that it is one that we are happy with. We need her to have a good placement while we finish our training and get our home ready for her. We could not just take her straight home. Our home is not set up for her. We had hoped for LRMC from the beginning because of the location and the fact we know and trust the nursing staff and doctors there. Sam used to be a "frequent flyer" there and honestly we preferred it to any of the other hospitals around. For s smaller hospital it has a good Peds ER and floor. It's very clean and secure, probably the best security of any hospital we've ever had a child at and that means alot to me. We are disappointed to say the least, as we'd been led to believe they would take her....We are hoping this is not some type of "Obama care" type of decision......
There's so many different aspects to an accident like this....I'm thankful that through it all we still have God to depend on
FYI, for anyone who still thinks I'm a super christian should speak to the administer I talked with today...LOLOL Got a feeling she would not think I'm a pastor's wife LOL (and no I didn't cuss her out, I did restrain myself to some degree but I was not too nice) When it comes to my children, get out of my way!
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
The mama bear has to come out of us sometimes in order to get the care that our children, especially those with special needs, need and deserve. I'm so sorry Lakeland didn't work out. Is All Children's an option. I know that would be a bit of a drive. I sure do hope Selah (and your family) can go back home to Florida very soon.
ReplyDeleteSamantha
www.thestewreport.blogspot.com
Heartbroken for you :( Praying for a God sized solution!!!
ReplyDeleteHow very very very exciting that she responded today!!!! YEA!!!!!!! :)
Well, Mama Bear, if you hadn't given the administrator a piece of your mind, we would be wondering if your bad cold was making your mind foggy. :-)
ReplyDeleteI am so sorry Selah was not accepted for LRMC. With all the other many pressures you are facing, I can only imagine this must have been a heavy blow.
I'm sorry, too, about your cold. It IS hard to think and function well when you don't feel well. I've had allergies or a cold or something hit me just in the last hour, and I'm having trouble concentrating now.
But I'm excited about the response from Selah! I will just continue to pray for these kinds of responses, these moments of connection.
Praying for you tonight!
Love,
Shawnee
P.S. Just read this passage on another site and wanted to share it with you:
ReplyDelete“The Lord is near to all who call on him, to all who call on him in truth.” – Psalm 145:18
I call on Him so often!
Oh no.....I literally gasped out loud and my daughter came in. Since she wants to be a neuroscientist, she is glad to hear all the "new things" Selah is able to do--and as for her communicating with her daddy, my daughter said "Good for her!"
ReplyDeleteI am shocked and saddened by LRMC's actions--and yes their pedes ER is awesome (having taken DS there a few times). I hope you at least find an answer as to WHY (and GO MAMA BEAR!!)
I hesitate to even say this....but I know you had contemplated staying in NY. Is God giving you any sort of feeling about that? I mean I can't imagine uprooting your family and your lives so that isn't something to be taken lightly.
I will be praying hard for you to find a place for Selah, and for that amazing little jewel to keep responding and healing!
We love you!! xoxo
I watched the video tonight, so heart-rending. Such a good Daddy! I appreciated the hymns he was singing. There is no question that Selah should be allowed support to live, not to be deprived of sustenance and left to die ... I (with my daughters) made the same
ReplyDeletedecision without equivocation when my husband was comatose following a massive brain hemorrhage in 1997. The Lord took him home when HE chose to, after he lived 32 days in the coma.
He also confirmed to us that it was my husband's time to go home to heaven at age 56. We wouldn't have chosen such a short life for our loved one but only God knows the number of our days on earth.
I am praying for you to have the favor of the Lord with the hospital administration that Selah will be admitted and cared for until you are ready to bring her home. I am reminded that we "have not because we ask not" and that Jesus said "Ask and it will be given to you; seek and you will find; knock and the door will be opened to you. For everyone who asks receives; he who seeks finds; and to him who knocks, the door will be opened." Matt. 7:7-8
I also believe that God DOES love for us to be persistent in earnest prayer, believing, that it is not selfish for His children to ask Him for healing. He did more works than could be recorded I am reminded often of Hannah who "poured out her heart" to the Lord for a child (indicating desperation), how in Psalms 62:8 we are admonished to "pour out your hearts to him", and there are other similar principles cited in scripture. I think of it as "end of the rope" situations. I cannot agree with you that "most people don't get healed" as, in 72 yrs. of life, I have received healing directly from God myself and have seen (and also heard testimonies of) many, many people healed,even creative miracles, especially more-so in recent years. I marvel at the signs and wonders God is doing all over the world to arrest the attention of individuals that they will see how real and glorious He is and receive his forgiveness and be born again. One has to have the eyes of their spirit opened (and a humble heart) to see God performing his works in present days as he did in the early church.
Hey Mama Bear, I am glad that you went off about the decision of those people in admin. in Lakeland...I pray that it wasn't one of those obummercare things, but one doesn't know in this time we are living in....
ReplyDeleteIt is a God thing, I believe, that Selah responded to her daddy when she saw him....God is so faithful....
And, one of the ladies in a comment from this post said something about your saying before that staying in Rochester was something you guys thought about.....I know FL> is home, but maybe God is nudging you all to stay where Selah an Sam can get the care they need without you having to get in their faces to protect your babies....Just sayin.....
Colds are rough this time of year, and I will pray for your health and that of your precious Sarah...
In Hims time and His place will your answer be given to you guys about where Selah goes before home with you. God sees!!
Done rambling...
Love from NC
I know a Man who overturned tables...
ReplyDeleteYou know Him too.
=)
Praying for all things to work together for your good. Much love.
I was thinking of you all last night and wondered if you would read Isiah 41:10 to Selah for me. Tell her that I learned this verse when I was 8 years old like she is now and that it is still my favorite verse 39 years later.
ReplyDeleteAlso, in your last post when you mentioned about looking forward to the snow I had to laugh. I guess after so many winters up north, it is refreshing to see someone who is looking forward to the dreaded white stuff.
Peace to you all!
:)De
Praying the right place opens up and all the steps are perfectly ordered for a smooth transition.
ReplyDeleteI'm praying prayers of thanks for Selah's continued responsiveness. Praying for all of you, and for the right facility/medical team to be found.
ReplyDeleteI SO wish that you could stay in Rochester, or that they could recommend somewhere as perfect in Florida. They have earned their international reputation for excellence!
God bless all of you.
I often wonder why hospitals turn away patients. Two years ago I needed to have my gallbladder removed and I got turned down for surgery by four local hospitals. Their reason? I was too high risk...I have lupus but it is and has been in remission my whole life, so it definitely seemed like they were just using it as an excuse! They were ALL private/religous based hospitals though.
ReplyDeleteFinally, I decided to just screw it and go to a state run hospital 4 hours away. They welcomed me with opened arms. It was amazing.
I live in the PNW, so I'm not familiar with the hospitals you are talking about. But maybe try a state hospital? Can she not go to a "nursing" home until you get your house ready?