That's a silly Sponge Bob song but ....today has been THE BEST DAY EVER!!!!! This has been the best day since the accident!
Selah was responsive and relaxed all day long. She was looking at us, following us with her eyes. She tolerated being in her chair for an hour or more. Then she made her "crying face" and her heart rate went high quickly. I grabbed her up and put her to bed and she immediately calmed down and stayed calm!!! She wore her "nose" for 3 hours with no issues. A "nose" is a filter that hooks over the trach and acts like our nose, it filters air and it humidifies the air going into her lungs. This is great for her because we can transport her without the tube that humidifies her air now that is large. That means we can take her outside in the stroller, put her in her swing and be alot more flexible.
We got her a new stuffed animal that is weighted and can be heated in the microwave. I used it today on her legs and arms. She was had her hands completely open and resting on it. That is huge since just weeks ago, her hands were clutched into fists! Her legs relaxed and pointed down in a normal way. I was able to even work with her feet/ankles! She was much more relaxed than usual. We also saw her move her head a few times on her own!
The attending doctor was open to her getting fish oil. He sent a request to the pharmacy to make sure it would be ok to give with her current meds and we are still waiting to her.
Tonight we went out to eat and to buy her another one of the microwaveable stuffed animals so she can have one for each leg. We also went to a Trader's Joe! FUN! We bought some healthier snacks and breakfast foods. We've not been eating the healthiest in the past few weeks, to say the least. I think we will all have to detox when we get home from all the snack foods/soda/candy.....my kids are going to have a rude awakening:)
Please keep praying for Selah, we are seeing answers to prayers! Please pray that she will get the gag/cough reflex back and that she will continue to improve in all areas. Tomorrow is Sunday, so if you attend church, please ask for special prayers for our sweet girl! Thank you!!!!
We love praising God in our church for Selah's life and for each new response she exhibits! When we have our prayer circle on Sunday morning, everyone is anxious to hear about her progress. We will not stop praying for her continued improvements. It is a privilege to watch what God does in answer to the many many prayers being offered on her behalf! SOOOO thankful for this "BEST DAY EVER"!!!
ReplyDeleteWhere is it that you bought the stuffed animal? Great job Selah!!!! We've been praying for you. We are actually in your area today. We are in Syracuse New York. My sister in law lives in Rochester.
ReplyDeleteTJ Max, they have all kinds of stuff
DeleteSuch awesome news!!! The Lord is answering prayers!!! Praise HIM!!!
ReplyDeleteGod is amazing. All honor and glory to him.
ReplyDeleteI'm glad to hear she's doing so well.
ReplyDeleteI'm glad to hear she's doing so well.
ReplyDeletePRAISE GOD from whom all mercies flow!!! I am......almost speechless with joy for Selah! She is a very strong little jewel :)
ReplyDeleteI'm glad to hear SO many things are helping and her responses are improving. Continuing to pray for her needs.
(((((Giant hugs))))))) xoxoxoxo
Such fantastic news! I'm so happy for you!
ReplyDeleteThis is great news, so happy for you all.
ReplyDeleteThe "nose" reminds me of a funny story with our first little trach baby. She was a toddler when we took her to Silver Dollar City in Branson. She was in a stroller and we were all standing in line to get into one of the Christmas shows. It was after dark. I realized she lost her "nose", so I told everyone. "Stand still, don't move, Angellica lost her nose and I can't find it. Help me look for it, don't step on it." All of a sudden I started laughing when it dawned on me what that must sound like to the people in line who had no idea how a "nose" could be on the ground.
ReplyDeletethat story is TOO funny!!!!!! Can you imagine what the other folks were thinking???LOL
DeleteYvonne, we are thrilled for you over your "best day ever since the accident," and I will continue to pray for these good days and especially for the gag/cough reflex.
ReplyDeleteLove,
shawnee