We're just waiting on word on our next step.... still don't know all the details but hoping that things will work out for Selah to go to Lakeland Regional. LRMC will be having a multi disciplinary meeting on Friday to discuss her coming to them. Please pray that everything will be worked out for her. So many changes will be coming for out family soon. Being home will be a huge change for us after these past almost 10 weeks up here.
Selah seems to be more resting today although she paid attention to Jon this morning as he sang and talked to her. This afternoon she is just sleepy. She seems to be on a plateau as far as doing anything new and of course that worries me alot. Please pray that she is able to cough/gag and start moving her limbs. She was so sleepy with me, it just worries me! Please pray!!!!!!
There is alot rolling around in my head today, none of it too spiritual to be sure. Feeling down and rather alone in this fight for Selah. We want to see her get the best care, in a setting that we are comfortable with. No one will fight for your child but yourself but that gets hard. It's just a shame that things come with such a fight!!
Thinking that Friday will be 10 weeks since we left home....thankful that God has been with us during this time and that our family has been held in the palm of His hands. When I look back, it amazes me that our family has made it through. We are living in a small bedroom/bath in the RMH, our kids have just "rolled with the punches" we're making it work for us. Someone asked if we were homesick...I anaswered "Nope, my family is with me, I don't miss a house!" We've tried our best to keep things as normal as possible for them and thankfully it's working. But it is difficult to go through such a valley, in a place that is not home. We've been blessed by so many folks in the Rochester area to make us feel "at home" So with every difficulty, we've been blessed.....but it's been a hard walk.
So please pray for Selah and for us ...thank you!!!!
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
Will pray daily as I have been....
ReplyDeleteGod is Faithful
Love from NC
Continued prayers. In fact, tonight as I tucked my daughter in and we started to pray, she immediately said "pray for Selah, too".
ReplyDeleteSamantha Stewart
www.thestewreport.blogspot.com
You don't know me, but have been reading your blog for the past month or so and have been praying for you, thinking of you and checking up on here to see how Selah is doing.
ReplyDeleteLoneliness amongst fighting for her sounds difficult and I can't imagine, praying for that! I think in times when people can't relate to us and we feel no one is understanding, it makes me realize how much GOD is the only one that does and is with us.
Praying for Selah to continue on a path toward healing each day at a time and that she will cough/gag and swallow soon!
Praying that LRMC will approve taking Selah! Then we can be there for "in person" support instead of just "online" support!!
ReplyDeleteI imagine it takes alot of energy to heal and after a day of "baby steps" perhaps she just needs a bit more rest.
I am so glad you have your entire family with you. I know when I've had to have surgery I was glad family could look after the kids so when I got home, they'd be there. Going thru anything is easier when you have the people you love the most with you.
I have a song to send to you, I'll post it on FB, your words made me think of it.
Love you all, snuggles for Selah!
xoxo
Remember, Mama, we heal best when we sleep. Her little body is very busy right now knitting tiny connections back together with His guidance. Mustard seeds are very small, but they grow into something potent!
ReplyDeleteRemember, Mama, we heal best when we sleep. Her little body is very busy knitting back together tiny connections, guided by His hands. Mustard seeds are tiny, but they grow into something potent!
ReplyDeleteWhen you feel down know there is a community of support lifting you up. It can't be easy, life never is. These battles you wage to help your children feel the most victorious in the end so keep up the good fight :)
ReplyDeleteSo sorry for the hard day, Yvonne!
ReplyDeleteI will be praying for acceptance to LRMC and for the cough/gag reflex for HER, and for some joy for YOU tomorrow.
Love,
shawnee
Sorry I haven't stopped by in a while. You are always on my heart and mind. Praying for God to continue to grant you peace and wisdom. If you have the opportunity to pick up a daily devotional by Joni Eareecson Tada I would recommend it. Or you can have them emailed to you daily from her website (Joni and Friends). I never get tired of her insights into pain and suffering and God's plan for us. Just little nuggets to chew on when I need them most.
ReplyDeleteHUGS!