Tuesday, November 20, 2012

Day 16 Fish Oil Study~ Good day!

So a really good day:)

Selah has a cold, just a cold not pneumonia and the great thing is I picked up on Saturday that something was off.  It's not bad, she has never even had a fever but they are watching her.  Her lungs are clear, no issues.  I'm just happy that I picked up on it and so did her therapist as soon as she saw her yesterday.  That was what had her "off" and it a relief to be honest that that was all that was going on!!!

Selah did lots of good stuff today, she coughed some and the nurse thinks.....she may have gagged some when she was suctioned out!!!   We are going to look for that more.  She did all her usual things and did them well.  Her therapist actually stood her up for the first time and her feet flexed some.  She probably will need surgery & botex in order for her ankles to be normal again but they all feel it is doable.  I don't want to quote the doctor but.....there is hope that she will get to the point she will walk!  There are so many good things that happened today, it's hard to remember all the little points...today felt like Christmas to me:) 

I was able to talk to the doctor some today about her blood work.  She had very high levels of inflammation which is what the fish oil targets.  She was at 15 and needs to be at 5.  Selah had her blood drawn yesterday and we hope to hear by Monday if the level is down.   The doctor feels that she is waking up more.  There are alot of small signs that point to that!  I also asked her how we will know when she is out of the coma since she will probably come out of it with some issues still.  She said for us to look for "purposeful" movement.  We are getting some and today we got quite a bit!  She will have the after affects of the accident, for awhile, even if she recovers completely. 

A VERY big thing is she has had NO storms now for TWO weeks.  I can not tell you what a blessing that is.  If you have never seen "storming" I can promise you it is awful to watch.  I get the impression that people are amazed that they are gone.  As I've said before we were advised that the meds would eventually stop working and she would storm over them.  What a blessing that that has not happened and that they are gone!  This reaction to the fish oil alone maybe a huge thing for other people with neurological injuries.  All I can say is to watch someone you love have a storm is an awful awful experience.  I am so thankful they are gone!!!

Selah is accepted into the Brooks Rehab in Jax Fl.  Our plan is to leave next Tuesday.  But who knows with the weather and this cold if we will leave then.  All the plans have to come together just perfect for this to happen.  I'd be fine being here longer to give Selah more of a chance to improve before we leave.  But I've learned to say "whatever the Lord wills"!

We still are looking for housing for our family in the Jax area, if you can help, let me know.  We are too large of a family for the RMH there.

Thank you all for your prayers!  We have just really struggled the last few days with our emotions.  It was hard because she had been doing so good and then things stopped sorta, and she seemed far away again.  I'm glad that there was a reason, her being sick, that makes sense in the whole feeling of her being "off" and that she seems to be better today.   We were both really struggling with our emotions and some real worries about the future.  Today was like a breath of fresh air in our souls to see her more responsive and to have others point out somethings....it was great!  Please keep praying!!!

Thanks to all who have nominated us for Extreme Home Make Over!!!  I just sent mine in today.  I was not able to download any pictures or videos!  Hopefully they will look on here!!  We are keeping our fingers crossed:)  It would be fun and it would be great to have everything done so our house was ready for Selah and more handicapped accessible for all of the children.



4 comments:

  1. How thrilling! It seems there will be peaks and valleys but today was an excellent peak and what an encouragement to you and Jon! Who knows just WHAT God will do before next Tuesday but whatever happens, He will definitely be ordering your steps as you make the plans. It appears you are reaping from sowing good things in times past. I will of course continue to uplift Selah and all of you in prayer. I am so glad to hear that Extreme Makeover is starting up again! I will be sure to nominate you but...hope they will accept it from someone who doesn't know you personally but has followed your story and feel your family is an excellent candidate.

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  2. I just finished posting on Extreme Makeover, ABC and it was lengthy but I was happy to put in a good word. I SO HOPE and pray that your family will be chosen very soon to receive this blessing.

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  3. I will be MORE than happy to nominate you for a makeover! I pray this will be the answer for you all!!

    Sorry to hear Selah has a cold :( I hope she is better very soon so those advancements keep coming!

    We are adding more omega 3's to our own diets because if it can help severe cases then surely it can help less critical things in our lives! Thank you for posting so much about it! We already knew it was good--just not HOW good it is!!

    Sending love, prayers, strength and hope your way!
    xoxoxo
    Krista

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  4. What a relief for you to know it was the cold that was causing her to be "off"! And I am thrilled to read that she may have gagged a bit during the suctioning -- may that continue!

    I pray that EHME will choose you. They did a makeover for my friend CJ who has two sons with autism, and the makeover was totally amazing, and CJ says that the building crew and filming crew were really wonderful.

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