Day 5 Fish Oil study

So....we finally went to sleep at 1am last night and then she had to be suctioned at 2 am.  Once we got back to sleep I slept till 10 am with just a few interruptions:)  I don't think I've slept that late for awhile. 

Today she had OT and did good.  All in all she has been quieter today.  That is "how she rolls" but everything was stable.  She has continued all the behaviors including the sticking the tongue way out, like she is playing with her tongue, trying it out again.  We are watching her to make sure that she is positioned good so she can't fall forward.  She has enough strength to move her shoulders forward, but can't come back. 

Despite all that was going on today NO storming!  It's been a full 4 days now!!!!!

She got a flu shot today, upon our request as flu season is coming.  She stuck her tongue way out when she got that shot!

Monday her trach will be changed to the kind of trach she can speak over.  We are expecting LOTs of noise!!!!!  She didn't really speak before this, more of a baby babble but we are expecting to hear something:)  Maybe some screams....she looks like at times that she wants to yell her head off!

If she tolerates this new trach with no problems, then the next step is to cover the trach and just let her breathe through her mouth/nose.  If she can handle that, she can come off the trach!!  She will have to be consistant and not have any issues before that could happen.  That is our prayer!  Please pray for Selah and for the trach situation over the weekend.  IF and this is a big IF this could happen in the near future, we might just be able to go straight home.  That means skip rehab, skip hospital...go home.....we'd love that!!  

We've been patient over the past 13 weeks and still are.  But we are dreading the thought of going to another place, another RMH,  possibly Jon being in Zephryhills, me and the kids being in Jax....and all the ramifications....  We'd rather be here a little longer and then go straight home if that could be possible.   I have to say, we kinda have learned to go with the flow this year with all the traveling and unknowns we have faced and we are still going with the flow even if it includes a rehab but we'd love to be at a point we could go home together......PLEASE pray for that to happen, for Selah to be at the point she doesn't need a trach soon...thank you!!!!!!