Here is the picture of Selah getting her first dose of fish oil just a few minutes ago! Yes that is a big syringe and yet it is only a half dose! She will have a dose in the morning and in the late afternoon every day. On Thursday, she will start the full doses, that will be two syringes at a time! I'm very thankful for a gtube! I can not imagine getting a child to take that much fish oil by mouth! They have found it is better for a person's system to take lower dosages first, just to make sure it's not too much an overload for their system!
She has had a great day today. She did OT and Speech today. They worked with her on the therapy ball. She was very alert through the day and watched her DVDs. Jon changed her trach and she handled it well.
So.....we wait and pray that this will be the medical answer for her and hopefully it will mean a change to how near drownings are treated! Maybe this will change Selah's situation and many others also! Please pray for Selah!!!
We are thankful for the God given wisdom that led a doctor (Dr Barry Sears) to try this to help people. We are thankful for the doctors and staff at Strong's Hospital who help facilitate this study so quickly, especially Dr Asselin
So tonight I sit by my daughter's bed, another night, with hope in my heart! There have been many nights I've sit here and hung on to God as my heart was breaking.... I'm so thankful that God was with me through all those days and nights.....and He is still with us, no matter what happens in this study!
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My FB post
Just keep thinking that SIX months ago today, we walked out of the orphange with the girls. Obviously I did not have any idea of what was ahead for us! I didn't know that 6 months later we'd be In NY and Selah would be in a coma after a drowning...nor that she'd be getting a new treatment to see if it would help her...I had no idea what was ahead for us but God knew and He prepared us and has walked with us....
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*I have to say THANK YOU to one of my sweet readers who sent me for a massage today! I can actually move my neck, almost normally in one direction! It was wonderful!!!!!! Thank you Jennifer:)
I'm really excited that Selah is in this study. I'm praying mightily and often that this will help. God bless all of you. ♥♥
ReplyDeleteMy heart is full of resounding joy tonight that the fish oil study has started. I know that the results of this will be astounding and it is my prayer that it will not only change life in a wonderful way for Selah but for many others also.
ReplyDeleteI can't help but think of that woman's words, the one you met in the mall--that many would see God.....Selah could change the world! One sweet small girl, and her family who won't give up on her....the world SHOULD see this!! No matter what happens, you cannot help but see God in all this.
ReplyDeletePraying for the fish oil to work!!
Thinking of what you said, about being able to use her g-tube for the oil....my son, for whatever reason (we never knew why for sure), was very tiny at a year old, and we had to add flax seed oil to his diet every time he nursed or ate. And YES it was SO HARD to get him to take it (and wow did it stain stuff). It was such a struggle but I knew he NEEDED it in order to start adding weight (it still hurt to see him cry so much). Thankfully it did...but I am glad you do not have to add that struggle to her daily schedule--she is working so hard as it is!!
Love and prayers for you all
xoxo
Marvelous about the study starting....I will
ReplyDeletebe praying for Selah and for you all....
It is great that you had a massage to release a
lot of tension in your muscles...Drink lots of
water to get rid of the toxins that have built
up during this season of your life...
Love from NC
Exciting!! We take fish oil over here... but not THAT much! :)
ReplyDeleteYIPPPPEEEEEE!!!! Praying that this treatment will bring so much healing to so many! Praising God for the continued hope he has brought through this!
ReplyDeleteSo excited for you all!! I am hanging on to hope with you, that this brings forth amazing results!!! We are also using Fish Oil on my 4 year old that has CP, We are a week in and I am noticing a difference! Blessings!!!!
ReplyDeleteSo EXCITED to read that Selah has started the study! And of course to hear that she has had a good day today. May God continue to bless her progress day by day and to provide you with strength and resources.
ReplyDeleteI can't wait to see how Selah progresses on this study. Praying every day! And God bless the reader who treated you to a massage!
ReplyDeleteDid I miss something? Is she alert?? Happy she is making progress.
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