Still NO storming!!!!!!! If she makes it till tomorrow it will make a week! That is amazing! Storming had become such a part of our life and her response to things that I can not believe it seems to be gone. Storming is the body's reaction to brain damage. It is not a seizure but is is still awful to have to see. With Selah she basically would stiffen, her limbs would become rock hard and her arms would stick out and vibrate....her heart rate and blood pressure would increase to scary levels...and so would mine! What a relief to not have that anymore.
Jon was with her all afternoon and had her sitting up in her chair. She was much more relaxed today in her limbs. He said she stuck her tongue out at a nurse when she walked in. I doesn't seem like she is doing it on purpose but we think she is just trying to make a noise and that is how it happens. She hasn't done anything new but tomorrow is going to be a big day for her! We are planning on getting over early, we are pretty sure she will make noises as soon as the trach is changed out as she tries to now.
Please pray that all goes well with the changing of her trach and that she will handle this new one with no problems.
I read a great book today...Kisses from Kate http://kissesfromkatie.blogspot.com/ what a story!! It really spoke to me about giving my all..... We have so much and the rest of the world has so little.....the thoughts I have are for another blog. One that probably won't get alot of comments on...it's funny to me how that is....I'm mulling it all around in my brain but her book just rocked my world.
"Our life maybe a crazy life but it's our life" I'm married to a pastor of a small rural church, who is also the prison chaplain. We have 5 kids, each with their unique story. I love gardening & we all love the outdoors. Our life is not the way we planned it to be, but we are learning to trust God in every area. Come and read about our life as we live it to the fullest!
WOW! That book--and Katie--sound amazing!! To hear God's voice so clearly and His calling...what a beautiful and humbling thing!
ReplyDeleteI definitely would be interested in reading anything you have to write. And as you've probably learned, I like commenting ;) I feel you have so much to say and that I can learn, even at the age of 42, so much from you.
Lots of prayers for Selah tomorrow, I will check FB and here for updates! I am so excited as I know how much can change with the new trach!
Love and big hugs,
K
Praying for Selah, and thankful as always that you keep us posted -- it is much easier to remember to pray and to know how to pray when we have information about what is happening, so your daily reminders keep me praying daily for Selah's progress. :-)
ReplyDeletei haven't read Katie's book but have spent a lot of time on her blog. She has a beautiful heart and a powerful ministry.
So glad little Selah is doing so well! Glad too to hear a review about that book - had it in my hand this summer and put it back. I need some good inspiring story so I'll pick it up for sure...And one random question - how do you pronounce Selah? Is it See - la or Sell - ah? Sorry, just wasn't sure and we try to pray for her each week :)
ReplyDeleteThere was quite the debate on the pronounciation of Selah....we decided on Say-la My husband says that is how it is pronounced and that is how the christian singing group pronounces their name thanks for the prayers!
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