Day 23 Fish OIl Study

Day 23 of fish oil, and Day 105 of hospital stay....105 days since this nightmare began.......

So she has this spot on her lung that they are assuming is pneumonia since she has also had a few fevers.  The various doctors have had various theories...one says it seems to be viral, one says maybe it is bacterial and another one thought it could be aspiration from her having liquids during therapy.   That  theory bothered me the most because it would mean regression.  Now we do have proof that she had aspirated yesterday but she ate at least 1/4 of a Popsicle and is sick so....we think it was just a one time occurrence.    Well tonight I think the mindset is it is NOT aspiration pneumonia, probably viral since she has been "off" for a week or so.  She is on antibiotics just to be safe.  Right now she is allowed to taste things with her tongue, we're just not really going to feed her anything. 

She wasn't as into therapy this morning and I missed our therapy session this afternoon so I didn't get a video.  Maybe on Thursday....

Believe it or not I suctioned her trach out about 4x today.  This is big for me, as much medical stuff as I have had to do, trachs just gross me out and I get lightheaded and once almost passed out.  I'm just trying to think of it as a high tech way of getting boogers out!  LOL  I love to clean noses....I have a thing about cleaning out the little kids' noses and they hate it!  So that's what I told myself today and I did ok.  The first time, I felt a little dizzy after but then I was ok!  The other times were fine:)

OK for the very best news.....Selah's blood work from the first two weeks of the fish oil study is back!   Her inflammation level was 15~ not super high but far above what it should be.  They wanted her to be in the 1.5 range....she is at 1.1!  Her doctor says now her brain should start healing!    The idea is the inflammation in the brain is down, gone, and now the brain should be able to start healing itself:)   I asked the doctor directly if she ever thought Selah would walk again and she says she sees no evidence why not:)  She cautioned that we have a long road ahead of us still but we are totally going in the right direction.  She said Selah has come much further, in a relative short amount of time than anyone here ever thought she would!   She didn't not respond really at all until week 7             day 5 ....and then it was not consistent.   Tomorrow is the beginning of week 15!  She is so much more consistent now! 

So I was feeling quite down until we got the blood work in and talked with the doctor.  Now I feel more encouraged. 

So please pray for her, pray that this pneumonia will resolve and that her brain will heal quickly!

 

My two favorite Chinese......LOL

 

Sarah and me

 

 

The men in my life!

 

 

Selah trying to push out of her chair!  When I wouldn't help her she turned her head all the way to the other side so she didn't have to look at me.  My goal was 1.5 hours in the car seat:)  We made it